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‏إظهار الرسائل ذات التسميات National Autistic Society. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات National Autistic Society. إظهار كافة الرسائل

Autism Crisis In Scotland - Invisible Autistic Adults


In Scotland Lacks Autism Services I commented on an article on healthcarerepublic on July 6, 2007 and the lack of services for people with autism in Scotland. That article, Call to find autism early in Scotland, focused on guidelines published by the Scottish Intercollegiate Guidelines Network (SIGN) calling on doctors to look for signs of autism in children and adolescents, including problems with social interaction and play, speech and behaviours. The article also expressed the doubt of many professionals in Scotland that early diagnosis would make much difference because of the lack of autism services available in Scotland.

In Revealed: ‘invisible’ adults living with autism, the Sunday Herald today reports, on an impending report by the National Autistic Society, the lack of services for autistic adults in Scotland, their dependency on family members for support and the isolation in which many spend their lives:

"Issues in the report include limited access to diagnosis, with 56% of those surveyed saying they found it hard to get their condition recognised. One adult said: "The GP did nothing. She didn't see any point in diagnosis for an adult."

But even after diagnosis many say they do not get the support they need. One participant in the survey commented: "I have had little or no support ever - my mother has done everything."

...

Bill Welsh, president of the Edinburgh-based Autism Treatment Trust, said the plight of many adults with autism had been "swept under the carpet", yet one child in 100 in the UK was diagnosed with the condition and the cost to society for each autistic child was estimated at £4 million. He added: "A major social, health and financial problem is upon us and urgent action is required."

Adults with Autism - We Can Do Better, Much Better


The UK National Autistic Society has published results of a survey, "I Exist", indicating that adults with autism in the UK are ignored and their needs are not being met. The survey results reveal a "stark and often desperate reality", with most adults with autism lacking necessary support and services and living ignored and in isolation.

Here in New Brunswick attempts are made to address the needs of adults with autism but they are, in many areas, grossly inadequate. Families whose adult members with autism live at home have inadequate support, staff in private group homes lack autism specific training, and we have no institutional level facilities to provide residential care for the most severely autistic who are not capable of living in a group home facility. In fact we export our autistic adults and youths to other provinces, even to the United States, in search of treatment.

In the UK and in New Brunswick we can do better for adults with autism, much better.

The Real Autism Argument

Sally Eva, as quoted in the Independent, summarizes nicely one of the most intense points of discussion in world autism debates:

"People with autism range from those at the severe end who can't tell a person from a post to those at the mild end who may be madly over-communicative. The NAS employs people with autism so it is over-influenced by those at the mildly affected, employable end of the spectrum. The real argument is between people who believe in "neurodiversity" – that autism is on the normal spectrum and we should work for more public acceptance of it – and those who believe it is a medical condition that needs treating."

- Sally Eva, UK, Parent of a 15 Year Old Daughter with Autism

Autism Heroines Lara Hawkings and Sally Eva

In the United Kingdom parents fighting to help their autistic children overcome the deficits of their autism disorders, fighting to help their children as all parents do, face opposition from a National Autistic Society which has drunk deep from the kool aid of the neurodiversity "movement". In Autism: What are the ethics of treating disability the Independent reports on a letter Treating Autism signed by parents, including Lara Hawkings and Sally Eva, fighting for treatment for their autistic children in the face of opposition by the National Autistic Society.

In the UK the National Autistic Society has adopted the "autism is beautiful" ideology and frowns upon parents like Lara Hawkings and Sally Eva who fight to help their own children overcome and recover from the sometimes debilitating deficits of their neurological disorder. Awareness is helpful. But saying that society should change how it views autism will not help those autistic children who need help for the more serious symptoms of autism, a neurological disorder.

Neurodiversity ideologues are not human rights advocates. They are in fact suppressing the human rights of autistic children; their right to be treated for their neurological disorders. And they are suppressing the rights of parents to help their own children. The UK NAS should be ashamed of itself for imbibing this topsy turvy ideology and for helping suppress the human rights, including the right to be treated for their neurological disorders, of autistic children in the UK.

I wish the best for Lara Hawkings and Sally Eva and all parents in the UK trying to help, to truly help, their autistic children. And for the NAS I wish that some day they will cease swallowing the neurodiversity kool aid and drink from the well of common sense.

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