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‏إظهار الرسائل ذات التسميات best interests of the child. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات best interests of the child. إظهار كافة الرسائل

Autism and Education: CACL Promotes Discrimination Against Autistic Children

The Canadian Association for Community Living, and its provincial counterparts like the New Brunswick Association for Community Living, have done much to help persons with disabilities. Unfortunately despite their many good deeds they have also, for many years, been actively and intentionally promoting discrimination against some children with Autistic Disorders and other children for whom education in the mainstream classroom is not in their best interests because of their disabilities.

The message of the CACL is clear, consistent, and made without regard to the best interests of some children: No excuses for educating children outside the mainstream classroom, no accommodation of children whose disabilities require alternative learning environments, no concern for the best interests of children, like some children with Autistic Disorder, if their best interests require education in a setting outside the mainstream classroom. No excuses, no accommodation, no concern.

As a parent who has long ago requested that my son with Autistic Disorder and profound developmental delays be removed from the mainstream classroom I am offended by the message, relentlessly pushed by the CACL, and here in NB by NBACL, that portrays any request to educate children outside the classroom as an "excuse". My son began his education in the mainstream classroom where he was overstimulated by noise and other conditions in the classroom. He would come home each day with self inflicted bite marks on his hands and wrists. Those bite marks, were evidence. Those bite marks were Conor's way of telling us that education in the mainstream classroom was not in his best interests.

Conor was removed from the classroom and educated primarily in a separate room for academic purposes. He also visits some more social settings for appropriate purposes and for defined activities with an Autism trained, very competent Teacher Assistant. He goes to the school gym (see videos on sidebar of this blog), the kitchen, the pool, the library, the cafeteria and so on but his academic learning takes place in a separate room.

Conor has not suffered socially. Although he does not generally inititiate conversation, and in fact has limited verbal skills, he has been well liked by many children over the past several years. I drive Conor to school and on arrival I have seen several boys and girls approach Conor to greet him, say hi and show real joy at seeing him. More than one child has actually sought Conor out at our home.

The "education system" has accommodated Conor's disability, his special needs. The educators we deal with have sought our input and worked to help Conor; taking into account the realities of his Autistic Disorder including the fact that Conor was overstimulated in the mainstream classroom, was learning a different curriculum using different methods than other students. Conor has received this accommodation because of some conscientious educators and because we fought to get that accommodation. We did so despite the NBACL which is very well entrenched and influential. NBACL carries the CACL message that says that such accommodation is wrong, that the benefit Conor has received is not a sufficient excuse for education outside the mainstream classroom. The CACL message is discriminatory, harmful and offensive.

CACL has been told in the past that the full inclusion model for all is probably discriminatory. In Canada discrimination can be direct, intentional discrimination, or it can result from a failure by service providers to reasonably accommodate the needs of persons with disabilities. Yude Hentellef,Q.C. has been legal representative for many disability organizations and persons with disabilities. In 2004 he presented a paper The Fully Inclusive Classroom is Only One of the Right Ways to Meet the Best Interests of the Special Needs Child at the C.A.C.L. National Summit on Inclusive Education in Ottawa, Ontario. Mr. Hentellef reviewed studies, and case law, which indicate that full classroom inclusion is not appropriate for all special needs children and stated:

Page 7:

"The Supreme Court of Canada has categorically rejected the kind of contextual analysis that rests on group stereotypes of what is presumed to be in the best interest of a group of persons, regardless of their disability. The proposal that full inclusion will meet the needs of all special needs children is such a group stereotype. In other words, what may be good for one group is therefore good for all groups, no matter their disability. The Supreme Court of Canada has rejected this approach, which, because of its very nature, is discriminatory. "

Page 8:

"To suggest that even with everything in place in the inclusion classroom, it will be the best place for all children regardless of their need, is group stereotyping at its worst. It denies the absolute right of special needs children to be placed other than in the full inclusion classroom, when their parents and qualified professionals view a different placement as one that best meets their interests. In Eldridge, a 1997 decision, Mr. Justice LaForest who gave the unanimous decision of the Supreme Court of Canada, stated that persons with disabilities have too long been subjected to insidious stereotyping.


For anyone to insist the inclusion classroom can be the best place for all children regardless of their needs is by its very nature stereotyping and discriminatory.

The CACL philosophy summarized in its recent "No Excuses "campaign is stereotyping and discriminatory. With the emphasis on "no excuses" it implies that concerned caring parents, and competent professionals, who seek education settings outside the full inclusion classroom for a special needs child are in some way morally deficient, making excuses instead of doing what is best for the child.

In New Brunswick the NBACL and other full inclusion for all advocates like Gordon Porter, the current chair of the NB Human Rights Commission, have insisted that their way is the only way. They have dominated NB education for more than a quarter century and they are celebrated around the world. What the world may not know is that our full inclusion model has in fact itself been discriminatory and harmful. In the past 10 years changes have begun to be made on the ground by activists parents of some special needs children, including some autistic children, by conscientious educators and by the undeniable evidence that education in the full inclusion classroom is NOT in the best interests of ALL special needs children.

Hopefully some day CACL, NBACL, and other promoters of the Full Inclusion for All model will come to their senses and cease trying to impose their deeply held beliefs over the evidence and over the best interests of special needs children.

Hopefully someday the CACL and NBACL will cease promoting discriminatory practices in education.




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Autism's Phony War

Autism has almost become a synonym for controversy.

The role that vaccines play, or do not play, depending on which camp one is a member of, generates the most heat and is often described as the vaccine-autism war, on this blog, generally, and by respected experts like Dr. Bernadine Healy. One issue that also generates controversy, and has been described as a "war", is the issue of whether autism should be cured or not. Unlike the vaccine-autism war though this war is a phony war, one that does not involve a serious contest between legitimate interests.

In the vaccine-autism war the public has a legitimate interest in ensuring the continuation of public vaccine programs. Parents concerned about their children also have a legitimate interest in ensuring the safety of substances injected often and directly into the bodies of their young children at early ages, including the first day they are born, and even while in the womb through vaccination of pregnant women. These intense and legitimate interests, generate much legitimate controversy.

Even the financial interests of pharmaceutical companies and vaccine patent holders like Dr. Offit are legitimate. Vaccines have saved many lives and without the financial interests of pharmaceutical companies and vaccine patent holders vaccines would not be produced. These competing, but legitimate interests, generate a real "war" in public discussions.

In autism's phony war there are no legitimate competing interests. The heat that does exist in public discussion of autism cures is generated largely by those with no legitimate interest in whether a cure for autism is found or not. The anti-cure "movement" is essentially the ideology of a few persons with High Functioning Autism (HFA) and Aspergers. These are generally intelligent, articulate people who can speak for themselves and who do not want to be cured of their autism disorders. All well and good. The thing is ....... no one is trying to force a cure on them for THEIR autism conditions.

No one, to my knowledge, is trying to force Michelle Dawson, Ari Ne'eman, Amanda Baggs, Alex Plank or any of the other HFA or Aspergers media regulars to seek a cure. These people speak about their opposition to curing autism in the abstract at best. At worst they are trying to interfere with the rights of other autistic people to obtain a cure and the rights of parents to seek a cure for their childrens' autistic disorders.

Jonathan Mitchell author of the Autism's Gadfly blog is a person with an autism disorder who has received the hostility of the anti-cure Neurodiversity autism bloggers because he does not accept their ideology. He has expressed the desire to be cured of his autism disorder. That is his right and his right alone. Harold Doherty does not have the right to tell Mr. Mitchell to be cured or not of his autism. Neither do Michelle Dawson, Amanda Baggs, Ari Ne'eman, Alex Plank or any other anti-cure autism ideologues.

For daring to express a desire to be cured of his autism Jonathan Mitchell has been described by one Neurodiversity extremist, "Timelord", as an autistic Joseph Goebbels. Timelord has also started a blog site specifically to target Jonathan Mitchell whom he smears wrongfully as a coward and a traitor, Mitchell's Gadfly. Timelord is a 40 year old unemployed Australian with Aspergers as described on his posted profile at another site he authors:


What right does Timelord Phil, an unemployed 40 year old, diagnosed with Aspergers Syndrome, have to tell Jonathan Mitchell, an autistic adult, that he should not seek to be cured of his autism? The obvious answer is: none. He has no right to oppose Mr. Mitchell's right to seek a cure. Period. When an autistic adult seeks a cure for his autism disorder other autistic adults have no legitimate competing interest and there is no real conflict, there is no real "war".

Some autistic persons, including children and adults, lack the cognitive and communication skills to live independently in the real world. Some injure themselves. Parents have a legitimate interest, a responsibility and a duty, to act to help their children develop to their fullest potential and to prevent injury to their autistic children when they seek to injure themselves. There is no competing societal interest. To the contrary society has an interest in ensuring that autistic persons are able to be cured of a disorder which causes serious pain and suffering and results in lives of dependency, often at state expense.

Self-injury is a problem for many people with autism disorders. I have seen it and shown it on this blog site with pictures of my son's self inflicted bite marks on his hands and wrists. Neurodiversity icon Michelle Dawson also testified about her personal autistic self injury in her Canadian Human Rights Tribunal proceedings Dawson v. Canada Post Corporation, 2008 CHRT 41. In that cased Ms Dawson brought several complaints against her former employer Canada Post Corporation alleging that CPC discriminated against her based on her disability: autism. The Tribunal rejected some of her complaints but found that some CPC employees had harassed Ms Dawson because of her disability and that CPC was responsible for the acts of its employees and officers.

In rendering its decision the CHRT summarized Ms Dawson's evidence and in particular Ms Dawson's own testimony about her self injurious behavior:


[58] Ms. Dawson testified that after she disclosed her diagnosis to Canada Post, everything went wrong. Before that time, even though Ms. Dawson came to work with self-inflicted injuries, this did not seem to create any qualms or concerns with respect to Canada Post. Things started to change, she stated in her testimony, after some Pierrefonds employees felt threatened by Ms. Dawson and sent a letter to that effect to Ms. Daoust in July 1999.


...


[97] In her testimony, Ms. Dawson spoke about her self-inflicted injuries. Ms. Dawson testified that, at the very worst, there was probably a week or two weeks where two weeks in a row, she would have something, that she would injure herself. She added, however, that this would be rare. According to her, she would self-injure about once a month and never more. She testified that for cuts, it would not be more than one small area affected and not more than one or two cuts, but they would be in the same place.


[98] Ms. Dawson testified that, well before Canada Post knew she was autistic, she would show up at work with self-inflicted wounds, that she did not suddenly start showing up with obvious signs of self-injury in 1999. According to her, any time after 1990, she would have had at times signs of self-injury, sometimes more than at other times, sometimes with long gaps.


Even the expert witness Dr. M, who, based on the Tribunal's description, was obviously Dr. Laurent Mottron, and who promoted his own pet theories about autism intelligence, acknowledged that autistic persons "sometimes" engage in self injurious behavior:


[110] Dr. M. testified that, while the ordinary person will become aggressive when anxious, autistic individuals will sometimes self-injure. This is especially the case, according to Dr. M., when an autistic person cannot understand a situation or cannot get an answer to a question. According to Dr. M., self-injury is the most extreme response to a psychological impasse that has no solution. It is a response to a disorganization of the world. It is the way for an autistic person to respond to negative situations whereas non autistic persons will show anger. Dr. M. stated in his testimony that he was aware of Ms. Dawson self-injury behavior. He had seen one of the wounds she had inflicted upon herself. For Dr. M., a self-inflicted injury is a sign of a deep psychological suffering.


I can't pretend to have any great respect for Dr. Mottron's views of autism generally. I don't care how many learned articles he has written based on his studies of persons with High Functioning Autism, Aspergers and Autistic Savants, his views about autism generally are inconsistent with what I have seen in my son with Autistic Disorder, with the knowledge that I have from working as a lawyer with families with autistic children and Aspergers, my involvement in autism advocacy in New Brunswick and my visits to psychiatric facilities where some autistic adults live out their lives in the care of strangers. Nonetheless even Dr. Mottron acknowledges that self injury is "sometimes" a feature of autistic behavior.

For the record here is a re-post of a picture of my son's self inflicted bite mark on his hand. (Dr. Mottron should also be informed that with ABA we have been able to increase our ability to communicate with Conor, he with us, and reduce such self injurious behavior) :


Those who oppose cures for themselves or for their autistic children have no right to oppose the development of autism cures for autistic adults like Jonathan Mitchell or for children whose parents seek a cure for their disorders. There is no legitimate basis for fighting to ensure that autistic children, particularly severely autistic children, should be prevented from being cured of a disorder which results in some cases in cognitive impairment, lives of dependency, and self injurious behavior. There is no legitimate basis to oppose the rights of parents to help their children live the best life possible without suffering from a debilitating neurological disorder.

Autism has many wars the cure or don't cure controversy though is a phony war between those with a legitimate interest in curing themselves of their autism disorder or their own children and those who oppose that right on abstract, ideological grounds.

Autism's phony war generates unnecessary heat and gives governments and service provides an excuse to refrain from providing needed services and funding for research. It does a great disservice to autistic adults seeking cures and for autistic children whose parents, acting in their children's best interests, and with the responsibility to do so, seek to cure them.

NOTE: At the request of Timelord Phil his picture has been removed from the profile posted above. The picture seemed innocuous to me, a picture of a guy in a black and white striped referee's jersey with his arms crossed, but it is his image and his request.




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On World Autism Awareness Day Respect Parents of Children with Autism Disorders


On World Autism Awareness Day respect the parents of autistic children and remember the role they play in helping their children realize their fullest potential in life.

From the days of Bruno Bettelheim when mothers of autistic children, based on one man's musings, were blamed for causing their children's autism disorders by being cold and lacking affection for their children, to the present, parents of autistic children have been vilified. Today anti-cure ideologues attack parents of autistic children for trying to treat and cure their own children.

Parents who speak openly about the negative realities of their children's autism disorders are condemned by the ideologues who praise autism disorders as a natural variation. Parents of autistic children concerned about the safety of what is injected into their children are mocked and ridiculed, behavior condoned and joined in by vaccine patent holders and ill informed journalists alike. Parents of autistic children who tantrum publicly are scorned as bad parents by ill informed strangers in shopping malls. Parents of autistic children are perhaps the only set of parents who have ever been so vilified by so many for trying to fulfill their responsibilities as parents and care for their children. Today the attacks continue albeit disguised under other labels "anti-vaxxers", "autism advocates", "behaviourists" etc.

Why whine about attacks on parents of autistic children instead of focusing on the children themselves in this post? Because, it is parents, with some exceptions, who protect and advance the interests of autistic children. Not advocates on behalf of abstraction, on behalf of a medical disorder generally.

When Ari Ne'eman says "we don't want to be cured" of our autism who is he representing? He is not representing my son with autistic disorder. I do that. Ari Ne'eman, Michelle Dawson, Amanda Baggs, Jim Sinclair, none of these people represent my son. None of them cleaned his butt as a baby, went to work each day to provide for him, took him to the hospital to have his fractured arm taken care of or to have dental filling work done. None of them got out of bed when he screamed at night or take him to school every day. They do not laugh with him every day, walk the trails with him in Fredericton, New Brunswick, or rise with him every day to hug him and watch the 7:10 sun.

It is parents who represent our children, protect them and advocate for their best interests. We are not advocating for an abstraction, we are not advocating on behalf of "autistics", whatever is meant by that expression when used by people who claim to be autistic but claim that autistic disorder is not really a medical disorder. Attacks on parents advocating for their children with autism disorders are attacks on autistic children by attacking those who protect and advance their children's interests.

The UN Declaration of the Rights of the Child, 1959, stated:


Principle 7

The child is entitled to receive education, which shall be free and compulsory, at least in the elementary stages. He shall be given an education which will promote his general culture and enable him, on a basis of equal opportunity, to develop his abilities, his individual judgement, and his sense of moral and social responsibility, and to become a useful member of society.

The best interests of the child shall be the guiding principle of those responsible for his education and guidance; that responsibility lies in the first place with his parents.

The child shall have full opportunity for play and recreation, which should be directed to the same purposes as education; society and the public authorities shall endeavour to promote the enjoyment of this right.


The responsibility for the best interests of autistic children lies in the first place with his or her parents. Attacking parents of autistic children, in most cases, will be nothing more than an attack on the autistic children for whom they are responsible.

On World Autism Awareness Day I ask that you respect the role and responsibility of parents in representing their autistic children's best interests.




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