Recent Movies
‏إظهار الرسائل ذات التسميات NBACL. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات NBACL. إظهار كافة الرسائل

New Brunswick's Extreme Inclusion Fantasy Harms Some Children With Severe Autism Challenges


Education and Early Childhood Development Minister Jody Carr 
 EECD/NBACL Event Focus on Inclusion: Walking in our shoes.

Minister Carr spoke for 40 minutes, repeating the word
 inclusion 30 - 40 times but never mentioning  evidence based 
accommodation of individual needs and challenges 

Premier David Alward's government has transferred control over New Brunswick education policies and practices to the NB Association for Community Living.  The NBACL is, beyond doubt, an organization of  people with good intentions committed to improving the lives of those with intellectual challenges.  I wish , as the father of a son with severe autism disorder and profound developmental delays I could support them.   Unfortunately the NBACL, and its federal counterpart the CACL, have subscribed for decades to a philosophical, non-evidence based, belief  that all children's best interests are served, protected and accommodated by placement in a regular classroom. Alternative learning arrangements are demonized as "segregation" when in fact such arrangements constitute evidence based accommodation of disabilities that some children, including my son with severe autistic disorder and profound developmental delays, need in order to gain access to a real education.  

In handing control over the education of children with disability challenges to NBACL the Alward government is acting in defiance of its obligation to ensure that education decision making represent the best interests of children founded on evidence.  It has placed many children with autism and other severe disability challenges at risk of being deprived of meaningful access to a real education, at risk of suffering mental and physical harm and at risk of being charged with criminal offences.  The Alward government has sacrificed some children with autism disorders and other disabilities to a fairy tale, one that is known to be untrue by many teachers, education assistants and parents.

In handing control over education of children with disability challenges to NBACL the Alward government  has abandoned democratic principles by surrendering one of government's most important responsibilities to an outside organization unaccountable to voters.  Equally concerning is the fact that the NBACL does not subscribe to modern, evidence based approaches to educating children with disabilities.

The NBACL adheres to one philosophical principle which it places above the best interests of individual students and which ignores the government's existing Inclusive Education Definition policy which requires education decision making based on the individual needs of the student and founded on evidence (not simplistic extreme inclusion philosophy) ... needs which in some cases, such as my severely autistic son, require education outside the regular classroom.  In any public discussion by NBACL reps of the Inclusive Education Definition no mention is made of the stipulation that inclusive education decision making is premised on  individual student needs  based on an a foundation of evidence requirement.  Nor is any mention made of the  fact that students with special challenges, autistic students in particular, in some instances very young, grade school students, are sent home from school when they can not function in NBACL inclusive classrooms. 

My son is severely autistic with profound developmental delays.  He has been well accommodated in Fredericton schools since he was removed from the regular classroom at our request. He was overwhelmed in the regular classroom and came home each day with bite marks on his hands until he was removed to an alternate, individualized instruction area where he worked with an autism trained Education Aide.  Some children for whom the regular classroom is not the answer are not as fortunate though; some are expelled from NB schools, sometimes under police escort, and some are charged with assault when their behavior, their inability to exist and function in the NBACL dominated school system results.  It is always the child who is blamed never the ridiculously simple, non evidence based, unthinking philosophy of the NBACL which is forced on parents, education assistants, teachers, resource teachers and education department officials who must fall in line and repeat the NBACL belief in extreme, everyone in the regular classroom fairy tale.

The children who are sent home and in some cases charged with criminal offences are powerful evidence that the simplistic everybody in the mainstream classroom philosophy is a failure that has hurt some children and impedes their access to a meaningful education contrary to the Education Act, the official Definition of Inclusive Education and contrary to principles enunciated in the Moore decision of the Supreme Court of Canada.

New Brunswick Inclusive Education Definition 

The New Brunswick government  Inclusive Education Definition  resulted from two inclusive education reviews: the MacKay and Ministerial Committee reviews. Both were initiated by the Lord government although the Ministerial Committee review continued under the Graham government during which time the Inclusive Education definition, after years of consultation with a wide range of stakeholders,  was concluded. I attended throughout both proceedings as an Autism Society New Brunswick representative,  and advocated, over the persistent opposition of NBACL representatives, for an evidence based approach to the individual education needs of students.  Those principles are set out throughout the Inclusive Education definition but particularly in the vision statement, the student centered principles and the accommodation sections (underlining added for emphasis):

"Inclusive Education

I. Vision

An evolving and systemic model of inclusive education where all children reach their full learning potential and decisions are based on the individual needs of the student and founded on evidence 

III. Overarching Principles

The provision of inclusive public education is based on three complementary principles:

(1) public education is universal - the provincial curriculum is provided equitably to all students and this is done in an inclusive, common learning environment shared among age-appropriate, neighbourhood peers;

(2) public education is individualized - the success of each student depends on the degree to which education is based on the student’s best interests and responds to his or her strengths and needs; and 

(3) public education is flexible and responsive to change.

Recognizing that every student can learn, the personnel of the New Brunswick public education system will provide a quality inclusive education to each student ensuring that: 

Student-centered 

1. all actions pertaining to a student are guided by the best interest of the student as determined through competent examination of the available evidence;

2. all students are respected as individuals. Their strengths, abilities and diverse learning needs are recognized as their foundation for learning and their learning challenges are identified, understood and accommodated; 

3. all students have the right to learn in a positive learning environment;


IV. Accommodation 

Accommodation means changing learning conditions to meet student needs rather than requiring students to fit system needs. Based on analysis, student needs may be met through individual accommodation or, in some cases, through universal responses that meet the individual student’s 
needs as well as those of other students.


The NBACL  now determines education policy and indoctrinates NB teachers and educators but it ignores the principles of evidence based accommodation of individual students and insists on regular classroom placement for all students regardless of needs.  Some may dispute these  points but they are  derived from repeated public statements:

2012 - David Alward's Admission That Community Living Association Sets Policy and Indoctrinates Senior Government Officials

New Brunswick Premier David Alward has publicly acknowledged the role of the New Brunswick Association for Community Living related organizations in setting inclusion and disability policy in New Brunswick as was made clear on the community living organizations' IRIS site. IRIS is the Institute for Research and Development and Inclusion in Society. It purports to be the "research" branch of Community Living Assocations across Canada. The IRIS board of directors consists of present and former Community Living Association officials from accross Canada including former NBACL official Lorraine Silliphant.  

In February 2012 IRIS spent a week indoctrinating high ranking New Brunswick education officials including Deputy Ministers and Assistant Deputy Ministers in the Community Living Association philosophy based policies of full mainstream classroom inclusion as was bragged about on the IRIS web site:

"
Premier Alward of New Brunswick acknowledges IRIS’ ‘Policy Making for Inclusion – Leadership Development Program’

New Brunswick Premier David Alward issued a letter Friday February 4th to all participants in the ‘Policy Making for Inclusion – Leadership Development Program’ that will be delivered in Fredericton by IRIS February 6-10 to senior officials with the Government of New Brunswick. The program is designed to assist policy makers achieve the government’s platform commitment to “enable New Brunswickers with disabilities to actively participate in all aspects of society and take their rightful place as full citizens.” With Deputy Ministers, Assistant Deputy Ministers, Human Resources Directors and Policy/Program Directors from across government participating in the week-long series of leadership development workshops, major strides will be taken towards creating a public service in New Brunswick ready and able to deliver on the government commitment to people with disabilities. In his letter, Premier Alward thanked The Institute “for developing this program to inform our public servants on the latest research on disability and inclusion…” A core resource for the program is the guide to Disability and Inclusion Based Policy Analysis just published by The Institute.

2013 - NBACL  Trains Principals and Teachers

"25 FEB 2013 11:00PM

SCHOOLS AND COMMUNITY LIVING ASSOCIATION PARTNER UP


SAINT JOHN – Schools in southern New Brunswick are seeking support from the New Brunswick Association for Community Living in training principals and teachers on inclusive education approaches.



Shana Soucy, manager of inclusive education for the association, said research has shown that without leaders who champion inclusive education, schools have a more difficult time implementing policies to make learning accessible to all students.
“I think we are doing a lot better with having the kids in the classroom, but are they really included in the lessons or are they just sitting there. We don’t want the segregation in the classroom, we want them to be included in the lesson,” she said."

NBACL Manager of Inclusive Education Shana Soucy identified problems, with inclusive education in New Brunswick, on the NBACL Blog site:


Even though Bill 85 was introduced in 1986 stating the full participation of all students in all aspects of school and community life, without regard to their disability or difficulty, we are still coming across many issues regarding exclusion:
  • Segregated classrooms and segregated programs across schools in New Brunswick
  • Modifications and accommodations are not being properly done to students’ lessons as noted in their Special Education Plans in order for them to have success in school
  • Some students are being excluded from school activities (ie: field trips)
  • Students are not only excluded from the regular classroom, they are not able to have lunch in the school cafeteria, instead, having their lunch with other students with a disability and Educational Assistants in the Resource room of the school
Some of what Ms Soucy describes as "segregated" classrooms  and "segregated" programs" are actually evidence based accommodations of the needs of some students with autism disorders like my son Conor who was overwhelmed in the regular classroom and who receives individualized ABA based instruction which is not assisted by being in a regular classroom with other students.  In other words the NBACL officials who now set education policies and train senior government officials, educators and teachers describe evidence based accommodation of the individual needs of some autistic students, including my son, as segregation, as inclusion "issues".   Ms Soucy insults and attacks accommodations specifically made to help children like my son with severe autism and intellectual disability challenges. 

NBACL Inclusve Education Manager Soucy's comments about the Resource room are an insult to students like my son who starts his day and has lunch in the resource room and enjoys tremendously his  time at the Resource Centre at Leo Hayes HS.  Ms. Soucy's issues with Resource Centres are not my son's issues.  Following is a picture of my son on St. Patrick's Day, March 17  2011 as he prepared to leave for school to start his day at the LHHS resource center.  He does not feel like he is being excluded or segregated at all.  He is fact being accommodated and enjoys his learning experience:



My happy, smiling son Conor can't wait to get to LHHS with a 
resource  center for some  purposes and individual environments 
for his  ABA based learning.  He also uses resources such as the
 gym, library, and swimming  pool in common with all students. 

For Conor these arrangements represent accommodation not segregation

Contrary to Ms Soucy's  non evidence, philosophy based, beliefs Conor loves his time at the resource centre and his so called "segregated" individualized, evidence based, ABA instruction.  Each evening he packs his lunch bag, places it in his school bag and when he gets up places it in front of the door to make sure it accompanies him to school.  These resources have been vital accommodations of his needs as a student with severe autistic disorder and profound developmental delays.  NBACL has clearly targeted for closure resource centers and individual areas of instruction in NB schools. I am very concerned that the fundamental ignorance of the NBACL adherents will deprive my son, and others whose needs are accommodated outside the regular classroom of these very valuable accommodations of their individual needs.
Imposition of NBACL Icon Gordon Porter's Simplistic, Extreme Inclusion Philosophy on Department of Education and Early Childhood Development 

Even without the indoctrination of high ranking government officials in a week long inclusion training/indoctrination session based on  Community Living policies, and even without government contracting out "disablity" training of teachers to the NBACL on an ongoing basis, NBACL has exercised a dominant role in the current NB government. Gordon Porter, an icon of the NBACL and federal CACL organizations, was a member of the Alward transition advisory team and subsequently conducted, together with NBCLA director Angela Aucoin,  yet another inclusion review which was not conducted objectively or transparently and simply reflects Mr. Porter's philosophy as stated by him during a Newfoundland appearance and reported in a Western Star article by Diane Crocker:

"Inclusion in the classroom ‘simple,’ says educator: 




CORNER BROOK — Gordon Porter believes inclusion is the most natural thing in the world. The educator and director of Inclusive Education Initiatives presented a session on inclusive education at the Greenwood Inn and Suites on Thursday. Porter, who is also the editor of the Inclusive Education Canada website inclusiveeducation.ca, spoke to parents, educators and agency professionals who deal with children with special needs at the pre-conference for the Newfoundland and Labrador Association for Community Living Conference taking place in the city today and Saturday. The session was sponsored by the Community Inclusion Initiative. 

 Porter’s session revolved around the theme of parents and teachers working together to make inclusion work.“It means kids go to their neighbourhood schools with kids their own age in regular classes,” said Porter.“If you’re seven years, old you go to the school just down the street. You go in a class with other seven-year-olds, and you’re supported if you have extra needs. “It’s so simple, it’s that simple,” said Porter."

Mr. Porter will forever cling to his belief that inclusion is simple if you just dump everyone in the regular classroom regardless of their needs.  There is nothing simple about autism though and I defy anyone to point to an informed source that would say there is. As the parent of a severely autistic child with profound developmental delays, sensory issues and, like many autistic children, capable of engaging in serious self-injury when overwhelmed I can not allow myself to wallow in such ignorance.  

The new DSM5 autism spectrum disorder criterion B expressly recognizes highly restricted, fixated interests, excessive resistance to change, abnormal in intensity or focus, hyper-or-hypo-reactivity to sensory aspects of environment, factors which, for some students with autism make the regular classroom an obstacle to learning and a risk to the child's safety:


Movie theater chains have recognized autism challenges and realities by trying to present sensory friendly showings of some movies.  Self-injurious behavior, (such as head banging and .. hand biting), and responsive (not planned) aggression to others, are recognized as a common problem for many with autism disorders.  The appropriate, evidence based approach to dealing with such issues is to provide a continuum of alternative learning arrangements, meaningful learning and functioning with the environment selected and individualized assessments of students skills and abilities to function within the setting selected,   as described on the web site of the University of North Carolina TEACCH program which has substantial influence in academic and professional autism circles:


  1. The TEACCH program recognizes the important value of preparing all persons with autism for successful functioning within society. Each person with autism should be taught with the goal of successful functioning with as few restrictions as is possible.
  2. Decisions about including children with autism into fully integrated settings must be made consistent with the principle of the "least restrictive environment" as a guiding principle. No person with autism should be unnecessarily or inappropriately denied access to meaningful educational activities. However, it should be noted that the concept of least restrictive environment requires that appropriate learning take place. Placement decisions also require that students be capable of meaningful learning and functioning within the setting selected.
  3. Activities which are inclusive for children with autism should be offered based on an individual assessment of the child's skills and abilities to function and participate in the setting. Inclusion activities are appropriate only when preceded by adequate assessment and pre-placement preparations including appropriate training. Inclusion activities typically need to be supported by professionals trained in autism who can provide assistance and objective evaluation of the appropriateness of the activity.
  4. Inclusion should never replace a full continuum of service delivery, with different students with autism falling across the full spectrum. Full inclusion should be offered to all persons with autism who are capable of success in fully integrated settings. Partial inclusion is expected to be appropriate for other clients with autism. And special classes and schools should be retained as an option for those students with autism for whom these settings are the most meaningful and appropriate.

Extreme inclusion is not simple, those who truly believe it is do not have actual first hand knowledge of an overwhelmed autistic child who bites his hand in one of Mr. Porter's inclusive classrooms, or one who reacts to the stresses of school and is sent home under police escort; in some instances to face criminal charges.  Inclusion may be simple for Mr. Porter but the simple truth is that he just ignores the evidence, all the evidence, any evidence which contradicts his cherished, fairy tale belief that the regular classroom solves all problems, even evidence of physical and mental harm that results from imposition of extreme inclusion policies on all students regardless of their needs.

At a Fredericton session during the Porter-Aucoin review discussion focused on integrating early autism intervention services into a smooth transition into the school system. ASNB was not invited to the Porter-Aucoin inclusion review session even though it was our advocacy that resulted in the establishment in NB of evidence based early autism intervention AND in the training of 4-500 education assistants and resource teachers at the UNB-CEL Autism Training program (also established in response to our ASNB parent advocacy) a program recognized by the Association for Science in Autism Treatment as a Canadian leader in provision of evidence based intervention for autistic children.

I became aware of the meeting and asked to be able to attend.  The discussion went around the table and when it came to me and I tried to speak for the first time I was told by the person conducting the session that they wanted someone else to be given a chance to speak.  I did not understand her statement since I had not addressed the group but I did not object.  The discussion went around the table again and when I tried again to speak I was again told that  they wanted others to be given a chance to speak. I had said nothing during the discussion.  I asked if they wished me to leave and was told no and given a chance to speak although nothing I said was reflected in the report that was issued by Porter-Aucoin.

As an ASNB rep I advocated persistently for evidence based accommodation of autistic students including those who required learning outside the regular classroom.  During the MacKay review Mr. Porter grew visibly annoyed with me and another ASNB rep Dawn Bowie because of our position.  Mr. Porter informed us that "you people should be thankful for what you have".  I have never doubted since that day that Mr. Porter's attitude toward educating children with disabilities, even children with autism, a subject with which I and Mrs. Bowie were much more learned and experienced, must conform to his everybody in the classroom beliefs.  Neither Mr. Porter, nor NBACL paid officers or representatives have ever deviated one iota from his fanatical obsession with the regular classroom.

NBACL Dominance in the Alward-Carr Government

NBACL domination of the Department of Education and Early Childhood Development is clear and indisputable.  Apart from Alward transition adviser Gordon Porter, NBACL Official Krista Carr is the wife of Early Education and Childhood Development Minister Jody Carr. Minister Carr's brother Jack Carr, also a member of the governing Alward Conservatives, is a former NBACL employee.   Danny Soucy is the Minister of Post-Secondary Education, Training and Labour and worked for both the New Brunswick Association for Community Living Inc. and the Canadian Association for Community Living from  1988 to his election in 2010.  Teachers who are most compliant with NBACL inclusion beliefs receive awards handed out by NBACL officials.

No one openly questions the philosophically based, non evidence based, policies of the NBACL which sets the Alward government's education policies.  Teachers, teacher aides/education assistants and other school personnel have told me off the record for many years, including during the MacKay and Ministerial Committee reviews that they sympathize with my concerns about accommodation of some children with autism, and other students who need an alternative place of learning, but they are unable to speak out.   The message is clear, those who conform to NBACL extreme inclusion doctrine will receive  awards handed out periodically by NBACL, those who don't ... well they have no choice but to conform.

Conclusion:

As a lawyer I have represented some students on the autism spectrum who have not been accommodated in the everybody in the classroom fantasy of the current Department of Education/NBACL administration. Some have suffered meltdowns for which they were blamed notwithstanding their known autism challenges.  Some   have been sent home under police escort and some have faced criminal charges.

The Autism Society of New Brunswick advocated during the MacKay and Ministerial Committee inclusion reviews for an evidence based approach to inclusive education which would see alternative learning arrangements for those who needed them.

In the current administration  philosophy trumps evidence based accommodation of individual needs.  Some students with autism disorders and other severe learning challenges are paying the price. 

No Meaningful Inclusion, No Community Living for NB Youth and Adults With Severe Autism Challenges

                                              Resigchouche Regional Hospital Centre


As an Autism Society New Brunswick representative I attended a meeting held at the Restigouche Regional Hospital Centre a few years ago to participate in a meeting to review the operations of the RRHC and to vote on its future, specifically whether to continue to operate or to close. I voted to continue to operate the RRHC. There were autistic adults who had been living there for many years.  No alternative in New Brunswick then existed for these adults with severe autism challenges.  The vote was conducted and reluctantly agreed to by me, and all other stakeholders present, because no alternative accommodations existed in NB for the residents of the facility.  Today  no alternative has been developed despite representations made to government over and over and over again.


As the title to the above comment I made on this blog on January 25, 2012 indicates money is not necessarily an obstacle to construction of a modern, humane adult autism care network.  Money despite challenging economic times has been available for projects such as the Civic Centre for residents of Premier Alward's riding. Money has also been spent on sending autistic youth and adults out of New Brunswick to receive the care we could provide in New Brunswick if outdated, non evidence based models of community and inclusion did not dominate the thinking of our government leaders, educators and service providers. As former Conservative cabinet minister Tony Huntjens indicates in his comment on the above post between $300,000-$600,000 annually has been spent on just 1 or 2 persons living at Spurwink, money that could be used to build a network of adult autism facilities here in NB:

I totally agree with you Harold. When I was minister of FCS we had to use facilities in the State of Maine at an annual cost of $300,000 per person. I had planned on pursuing the initiative you speak of using the State of Maine model...this would keep the autistic person closer to home in familiar surroundings, it would create employment so that the $600,000 now spent in Maine could be used to pay for these services at home. As you know, my efforts were derailed and I had to resign as minister. These financial facts I speak of need to be brought to the attention of the present government...perhaps they will see the light.

Keep up the fight and I personally wish you the very best of luck.

Tony Huntjens, January 2012

Tony Huntjens was a cabinet minister during the Lord government years and showed himself to be  a true friend of New Brunswick's autism community as he remains to this day.  Although not a member of the legislature, or the current  government he has continued to be a supporter of children and adults with autism. I attended a meeting with a minister of the current administration on adult care over a year ago in which Mr. Huntjen advocated forcefully  for autistic adults in New Brunswick. His efforts, and those of everyone who attended the meeting were not met with any results by this current government which believes that all needs of autistic children and adults can be addressed by feel good cliches about community and inclusion.  His comments 13 months ago on this site are an accurate reflection of what took place almost a decade ago.  The adult autism care he described then remains largely unchanged today.  

Things were so bad then that an autistic boy was housed on the grounds of a youth correctional centre, a jail, before being sent out of the country to the Spurwink facility in Maine where the $600,000.00 annually that Mr. Huntjens spoke of was being spent.   Matters have not improved under the current Alward-NBACL government.    Things were bad then and ... they are not one bit better today.  

Social policies including  early intervention, education and adult residential care policies are now set largely by the New Brunswick Association for Community Living  which has extremely close ties to the current government.  Despite the wonderful sounding name NBACL turns its head the other way when autistic children are excluded from New Brunswick schools and autistic adults are sent to live on general and psychiatric hospital wards ... if they have anywhere to live at all. 

The Autism Society New Brunswick made representations annually to the Lord, Graham, and  the Alward government,  to develop a modern, humane autism residential care network as described by autism expert Paul McDonnell a Psychology Professor Emeritus and practicing clinical psychologist who was instrumental in the autism progress New Brunswick made in the pre-Alward era.  

Unfortunately the Alward government has not seen the light as Mr. Huntjens had hoped.  New Brunswick adults with autism and their families have no reasonable basis on which to believe that their needs will be met, or that their voices will even be heard (1a,b),  during the reign of the current administration.

For New Brunswick youth and adults with severe autism challenges inclusion and community living are simply cliches uttered incessantly by those who pretend to care about their well being. 

-------------------------------------------------------------------------------------------

(1) (a) 

January 4 2012


Dear Honourable Premier, Honourable Ministers 
and Respected Recipients

Re: Adult Autism Care And Treatment - NB Continues To Fail Autistic Adults In Need  

I am the father of a 16 year old son with severe Autistic Disorder and "profound developmental" delays. He is now 6'1" with the strong, solid physique his father once had in younger days.  At some point in the future I will be too frail to provide the care he requires and ultimately will of course no longer be available at all to help him. I began my involvement in autism advocacy in New Brunswick approximately 13 years ago.  Along with other determined parents I fought hard, very hard, for early evidence based intervention for autistic preschoolers and for the means to deliver those interventions. I advocated strenuously for autism specific trained education assistants, teachers and resource teachers. Some success has been enjoyed because of the efforts of parents of autism in the area of preschool and school services. New Brunswick has even been cited as a model from which American authorities could learn by the Association for Science in Autism Treatment. The same can not be said, at all, when it comes to adult residential care and treatment 

I also advocated for  adjustments to the total inclusion education model in our schools.  My son's self inflicted bite marks on his hands and wrists declined and disappeared entirely once removed from the mainstream classroom where he was overstimulated, overwhelmed, frustrated and learning nothing because of his serious autism deficits. I have been a determined opponent of the excessive dominance in our schools and facilities of rigid, ideologically based inclusion and community models. This mindset discriminates against severely autistic persons by failing to accommodate their real needs.  Our children have, at times, been sacrifices to the vanity of a community movement which can not adjust to differing needs, experiences and expertise. I participated in regular disability committee meetings held by the Department of Education until they were disbanded, the MacKay review and the Ministerial Committe on Inclusive Education. Believe me or not but many teachers and teacher representatives have told me in confidence that they shared my aversion to the rigid inclusion model which has caused considerable suffering to some children and has disrupted the education of others unnecessarily. My son has been accommodated because of my advocacy and because educators who dealt directly with my son were conscientious, could see what he needed and acted in good faith to help him. I know that not all severely autistic children have been as fortunate.

Nowhere has the insistence on an inflexible and non evidence based inclusion model hurt autistic children and adults more though than in the area of  residential care and treatment as they move from childhood to adolescence and ultimately adulthood. What awaits is a model which includes a belief in "community" backed up by group homes with untrained, underpaid staffers at one end of a spectrum of care.  At the other end of that spectrum is the regional psychiatric care hospital in Campbellton. In between the two ends is a huge gap. What is need is at least one centrally located permanent residential care and treatment facility for severely autistic adults.  Such a facility could be modernized and based on existing models in the world. It could include the professional assistance needed to provide care for severely autistic adults in a setting designed to provide them with a decent life, with continuing education and recreation opportunities.  The facility should be based in Fredericton, not because I live here but because Fredericton is where our evidence based autism interventions and facilities began and grew.  It is centrally located and it has a naturalistic environment with many woodlands, trails, parks and outdoor areas together with indoor recreational and entertainment facilities. 

I realize the current economic realities in NB, in Canada and the world work against any consideration of the type of facility that is needed. But economic realities always weigh in and have done so over the last decade that I have been involved with trying to advocate for a reality based, evidence based residential facility for autistic adults in need of a permanent home when their parents age and pass on.  Ever present too, and just as big an obstacle, is the belief that citing "community" cliches will actually help those who are most in need of help. 

I have visited Centracare years ago with the father of a adult autistic son who resided there at the time. He told me of seeing his son dressed in a hospital "johnny shirt" in a room with a cement room and a liquid substance on the floor. I did not know whether to believe  him or not until we arrived and again found him in the same room in the same condition. At least one autistic youth and one adult have been sent to a facility in Maine at considerable financial expense and considerable emotional stress for families living on the other side of an international border.  I have had parents email me to tell me of their young adult autistic children hitting their head and having to wear self protective head gear at home while parents struggled to provide care. I was told of an autistic adult living on a general hospital ward for a time in Saint John. I am aware, as are we all, of the autistic youth who lived for a time on the grounds of the Miramichi youth correctional facility before being sent to the a Spurwink facility in Maine. 

In early intervention and in school services both Liberal and Conservative governments have been of some assistance, have helped to provide needed, evidence based services to some extent. I ask that the same spirit be applied to developing a modern, decent residential and treatment facility for severely challenged autistic adults in New Brunswick. Nothing has been done for years.  We have failed New Brunswick's severely challenged autistic adults. Community rhetoric has not helped.  Autistic adults need a place to live.  My son will need a place to live with access to professional autism care and autism trained staff, a place with educational and recreational dimensions to provide a decent life for him and others like him.

Please advise whether your government is considering helping autistic adults and is working on a modern, reality based model.  If that is not in the works, please say so straight up.

Respectfully,

Harold L Doherty, 
Conor's Dad
Fredericton (Nashwaaksis)

(1)(b)
Dubé, Hon. Madeleine (DH/MS) 
1/5/12
https://mail.google.com/mail/u/0/images/cleardot.gif
to me

On behalf of Minister Dubé, I acknowledge receipt of your email.  Please be assured that it will be brought to her attention. 

Thank you for taking the time to write to the Minister. 

Yours, 

Lynda Godbout
Executive Secretary/Secrétaire exécutive
Minister's Cabinet/Cabinet de la ministre
Minister of Health/Ministre de santé
Tel: (506) 457-4800
Fax: (506)453-5442

Facing Autism Flexible Inclusion Versus NBACL Extreme Inclusion on CBC Maritime Noon Thursday September 20


This Thursday, September 20, 2012 at 12 pm AT (1 ET) I will be a guest on the CBC Radio show Maritime Noon.  I will be discussing and advocating for a flexible model of inclusive education. Marlene Munn will also be interviewed on behalf of the NBACL which promotes a full, and in my opinion, extreme model of regular classroom inclusion for all students.  I am not sure if persons outside Canada can access the show on the CBC web site but this is the link for Maritime Noon if you want to try and listen to the discussion at the  CBC Maritime stations listed on the right side bar under "Air Times".

I have commented previously on the NBACL's inflexible, extreme model of inclusive education which requires all students, regardless of their abilities or disabilities, regardless of the challenges they face, regardless of the evidence and regardless of whether it is in a specific child's best interests to receive instruction in the regular classroom. I have written and spoken often of the fact that we had to ask for our 16 year old son with severe autistic disorder to be removed from the regular classroom which overwhelmed him and resulted in serious self injurious behavior. 

Autism, as the cliche goes, is a spectrum disorder and some autistic children thrive in the regular classroom. Some do not. For some, like my son, the regular classroom causes harm. Yet, the philosophically obsessed NBACL which acts as an unofficial division of the New Brunswick Department of Education and Early Childhood Development, as I described in Autism Education in the Era of the NBACL Inclusion Government, opposes a flexible model of education which would provide alternative learning environments for those children, like my son, whose challenges, based on the evidence, require learning in a quieter environment using different instruction methods suitable for them. 

Some people find it difficult to believe that the NBACL, in this day and age, contrary to evidence, contrary to common sense, and contrary to the experience and wishes of parents, who best know their own children, would still insist that every child should be educated in the regular classroom.  But that is exactly what the NBACL insists upon.  As the NBACL likes to say  its philosophy based full Inclusive Education policy "is that simple".

NBACL Web Site: Inclusive Education

What is inclusive education? It is simple: children go to their community or neighbourhood school and receive instruction in a regular class setting with non-disabled peers who are the same age.


NBACL Icon Gordon Porter in  the Western Star (Newfoundland) article "Inclusion in the classroom simple, says educator"  


CORNER BROOK — Gordon Porter believes inclusion is the most natural thing in the world. The educator and director of Inclusive Education Initiatives presented a session on inclusive education at the Greenwood Inn and Suites on Thursday. Porter, who is also the editor of the Inclusive Education Canada website inclusiveeducation.ca, spoke to parents, educators and agency professionals who deal with children with special needs at the pre-conference for the Newfoundland and Labrador Association for Community Living Conference taking place in the city today and Saturday. The session was sponsored by the Community Inclusion Initiative. 

Porter’s session revolved around the theme of parents and teachers working together to make inclusion work.It means kids go to their neighbourhood schools with kids their own age in regular classes,” said Porter.“If you’re seven years, old you go to the school just down the street. You go in a class with other seven-year-olds, and you’re supported if you have extra needs. “It’s so simple, it’s that simple,” said Porter."

    Great Autism News in New Brunswick!

    Great autism news in New Brunswick as the UNB-CEL Autism Intervention Training Program is being made available for the public.  (Applications available online.) The college program has previously been recommended by US autism experts Dr. Eric Larsson and Dr. David Celiberti. Dr. Celiberti in particular is very familiar with the program and had recommended the New Brunswick autism service delivery model which was based on the program  for consideration by other Canadian provinces.  Unfortunately for New Brunswick's autistic children, students and adults the successful UNB-CEL Autism Training Program, first utilized by the Premier Bernard Lord's Conservative government, and then by Liberal Premier Shawn Graham's government, has been abandoned by the David Alward government and its non evidence based, philosophically driven partners at the NBACL. 

    The UNB-CEL Autism Intervention Training program was born in response to requests for tenders for autism training put out by the Lord government. That request resulted from intense and effective advocacy by many New Brunswick parents of autistic children led by the Autism Society of New Brunswick.  The actual program itself was first conceived at a meeting of a committee which was  meeting to establish an autism centre of excellence at UNB in Fredericton.  During a committee meeting a parent advocate member of the committee suggested that UNB should provide training in response to the government tenders. Dr. Paul McDonnell who was at the meeting confirmed that UNB had the professional resources to provide the training.  Anne Higgins, then with UNB-CEL, laid out a step by step process, including necessary time lines, that could be followed to meet the tender requirements. A pilot program was run and the UNB-CEL Autism Intervention Training was born!

    Parent advocates, including yours truly, lobbied strenuously for the extension of the UNB training to our schools.  We met fierce opposition from some in the Department of Education who had their own agendas to pursue.  I was even subjected to threats from Department of Justice legal counsel, at the request of the then Director of Student Services, Robert Gerard, to keep me from participating in meetings between the Autism Society and Education department officials to discuss implementation of a commitment by Premier Shawn Graham to increase the numbers of UNB-CEL autism trained education assistants working with autistic students. 

    We also met with fierce opposition from the New Brunswick Association for Community Living which included direct opposition from NBACL icon, then NB Human Rights chair, and now Alward transition team member Gordon Porter.  The current Education Minister's wife Krista Carr is an executive officer with NBACL and at the time she also opposed the Autism Society's position that alternative learning environments were necessary for some autistic students and in particular for those receiving ABA based instruction, provided by UNB-CEL autism trained aides, in quieter settings outside the regular classroom.  Danny Soucy is a current member of the Alward government, also affiliated with NBACL, and was also a  public opponent of Autism Society efforts to achieve the flexible inclusion necessary for many autistic children to be educated at all and in particular to receive ABA instruction from UNB-CEL Autism trained aides.

    A third force opposing parents advocating for UNB-CEL training for our children was, and is, the union representing education aides, CUPE Local 2745 and its leader Sandy Harding. During the time I was ASNB President I had requested a meeting with Ms. Harding's predecessor to seek the CUPE Local 2745 support for autism trained education aides (TA's).  Ms Harding's predecessor was not interested and she herself upon taking office as Local 2745 president has been openly hostile to any serious training requirement for aides working with autistic students.  

    CUPE Local 2745 has used its considerable clout to resist any training requirement and pushed hard for seniority as the only requirement for aides working with children with autistic disorders. As a labour lawyer with a quarter of a century experience, in New Brunswick and federally, I can say that such a lop sided approach to any job posting requirement is almost unheard of and, as the Alward government currently genuflects before CUPE Local 2745, constitutes an abandonment of management rights. Removal of the UNB autism training requirement in favor of pure seniority considerations and refusal to permit learning outside the classroom when necessary also constitute failure to accommodate the autistic disorders, the neurological based disabilities of children with autism contrary to Human Rights Act requirements.   Both the Alward government and CUPE Local 2745 are now discriminating against children with autism disorders by refusing to acknowledge the need for autism training for aides working with children with autism disorders which are in fact serious neurological disorders.

    With these three major institutional forces aligned in lock step opposition to the accommodation of New Brunswick's autistic students comes a fourth factor - the current shaky state of the world economy. Economic factors currently provide perfect cover for the Alward government to abandon the quality and integrity of the UNB-CEL autism training for the sloppy in house training that was opposed by the Autism Society New Brunswick and for a surrender of our children's best interests in the face of the adult interests of untrained senior members of CUPE Local 2745.

    In this perfect storm the revival for the public of the UNB-CEL Autism Intervention training program, and the quality and integrity it provides, is one bright light in the darkness.  It  is a beacon to guide us and provide hope that better days are ahead.

    What Do NB Teachers Really Think About The Porter-NBACL Full Inclusion Model?


    What do New Brunswick teachers really think about the full inclusion model  which has been pushed relentlessly in NB schools by Gordon Porter and the New Brunswick Association for Community Living since the mid-1980's? The truth is many teachers recognize that extreme, everyone in the regular classroom inclusion does not work.  Teachers know this but they are afraid, for good reason, to speak up while they remain employed in New Brunswick schools. Speaking up and openly criticizing  the Inclusion Illusion would be detrimental to their careers and livelihoods and they know it.

    Full inclusion, as defined by Gordon Porter, means "everyone in the mainstream classroom" as Mr. Porter preached to a Newfoundland audience a few weeks ago:


    "Porter’s session revolved around the theme of parents and teachers working together to make inclusion work.“It means kids go to their neighbourhood schools with kids their own age in regular classes,” said Porter.“If you’re seven years old you go to the school just down the street. You go in a class with other seven-year-olds, and you’re supported if you have extra needs. “It’s so simple, it’s that simple,” said Porter."


    I am a supporter of flexible inclusion and I am a critic and opponent of the full inclusion, everyone in the mainstream classroom inclusion, of Gordon Porter and his followers with the NBACL.  This father of a son with Autistic Disorder, and profound developmental delays learned long ago that Mr. Porter's  regular classroom is not appropriate for my son's learning requirements. It caused him harm and resulted in self injurious behavior repeated, severe biting of his hands and wrists. Today he is very well accommodated by a flexible inclusion which sees him receive his instruction in a quiet area outside the regular classroom.  He starts his day, has lunch, and has friends in a resource center in his high school with other students with challenges, challenges which Gordon Porter's full inclusion model would not accommodate.  He attends many events with his group from the resource centre and he loves, he absolutely loves going to school.

    On my son's behalf and as a representative of the Autism Society New Brunswick I participated in the MacKay and Ministerial Inclusion reviews.  During these proceedings I was approached by teachers who thanked me for speaking out for a flexible model of inclusion.  Some children with an Autism Spectrum Disorder can function in the regular classroom, some can not.  Teachers can see that in their daily work, in respect of autistic students and others with severe challenges. Teachers though,  like most employees, know which way the wind blows where they work.  They know that if they preach the full inclusion gospel according to Gordon Porter they will be viewed favorably by the higher ups in the education department and the de facto education department ... the New Brunswick Association of Community Living. They know that if they publicly criticize full inclusion their careers could suffer. 


    My experience during the inclusion review proceedings has been replicated after I have spoken publicly on television and radio.  I have been approached by many teachers who told me that they and their colleagues support my efforts in speaking up about the shortcomings of full (extreme)  inclusion. I have been encouraged by many teachers to continue critiquing the full inclusion model which governs the mindset of those who determine how our children will be educated.


    I don't expect anyone in the office of the Minister of Education and Early Childhood Development or at the "bricks and mortar" building of his colleagues at the NBACL to believe what I have stated.  They do not accept actual direct evidence that conflicts with their full inclusion model and they will certainly not accept my hearsay evidence based on undisclosed witnesses to what actually happens in our regular "inclusive" classrooms. The full inclusion true believers simply ignore such evidence and blame problems on the students themselves or argue that more resources are needed in the classroom under the guidance of classroom teachers.  Then everything will work smoothly.  


    The full inclusion model of Porter and the NBACL is not an evidence based approach to education.  It is at best a  feel good philosophy.  At worst it is an illusion.  The full inclusion illusion.  One that can literally cause harm, mental, emotional, even physical harm, to some children for whom it is not an appropriate learning environment. This father of a son with severe challenges knows it.  The teachers who work on the front lines educating our children also know it.


    The attached document is the 2005 report of an executive committee of the New Brunswick Teachers' Association which describes New Brunswick schools as being in a state of crisis.  The NBTA's report talks about the classroom composition concerns expressed by the teachers they represent but denies that the issue is classroom composition; the issue for the Association is the need for more support in the classroom.   If you look under the politically correct tap dancing of the NBTA's report though there is an honest recognition in many of the statements of its' members that classroom composition is in fact the issue.  I have posted the 5 page summary of the committee's recommendations following my comments in case the document is removed from the NBTA web site in future.





    Labels

    أحدث المواضيع

     
    Support : Creating Website | Johny Template | Mas Template
    Copyright © 2013. Entries General - All Rights Reserved
    Template Created by Creating Website Published by Mas Template
    Proudly powered by Blogger