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‏إظهار الرسائل ذات التسميات anecdotal evidence. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات anecdotal evidence. إظهار كافة الرسائل

Chicago Tribune Says Autism Treatment Uneccessary, Just Let It Be

Apparently the Chicago Tribune is of the view that the only real concern facing autistic children and their families is the risks faced by treatments, and DAN doctors in particular. In two very superficial articles, yesterday's Autism treatments: Risky alternative therapies have little basis in science and an article today titled Autism treatment: Success stories more persuasive to some than hard data the Tribune continues its war against Defeat Autism Now and DAN doctors by ridiculing anecdotal evidence of successful autism treatment.


Although the Tribune has now published articles on two consecutive days on the subject of autism treatments it makes no mention of the most evidence based autism intervention ... ABA. While the Tribune is concerned about telling parents of autistic children what it feels is wrong in the world of autism treatments it doesn't consider it important enough to mention the widespread public health support for the evidence based effectiveness of ABA as an autism intervention.

And once again the Tribune makes no mention of the failure by public health authorities and researchers to seek all causes of autism or to attempt to find actual cures. Instead the Tribune simply ignores the real issues presented by autism disorders and sings "let them be, Lord them be" providing anecdotal evidence from Doctors that autistic children as they age will progress without intervention:

"But in evaluating a therapy, the challenge is determining how much, if any, of the progress can be credited to the treatment.

That is because, over time, children with autism do develop, said Dr. Max Wiznitzer, a pediatric neurologist and an autism expert at Rainbow Babies and Children's Hospital in Cleveland. They make leaps; some may plateau or regress, but they show improvement.

"Kids are at their worst in the second and third year of life," Wiznitzer said. "That is when they are not talking. That is when they are most into themselves."

But around age 3 the children often begin to talk, he said. "Over 3 to 5 years, you see an improvement in communication skills. ... By school age, they have language to get needs and requests met," Wiznitzer said.

Between 10 percent and 20 percent of children with autism who were diagnosed early may make so much progress that they are indistinguishable from their peers and may "lose" the diagnosis.

This happens regardless of whether the child is undergoing alternative therapies, said Dr. Susan Levy, director of the Regional Autism Center at the Children's Hospital of Philadelphia. But parents may credit treatments for the gains."

And there we have it. In Chicago Tribune Autism World autism disorders do not require treatment. The solution to the challenges facing autistic children and their families can be found in the lyrics of John Lennon and Paul McCartney:
And when the broken hearted people
Living in the world agree,
There will be an answer, let it be.
For though they may be parted there is
Still a chance that they will see
There will be an answer, let it be.
Let it be, let it be. Yeah
There will be an answer, let it be.
No autism treatment, no ABA, no "alternative" treatment, no autism research into environmental causes or possible cures. the Chicago Tribune has "an answer" for parents concerned about their autistic children .... let it be.



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Topsy Turvy Irish Times Article Demeans Autism Parents, Promotes Reality Challenged Professor

Corrrection: This comment initially, and incorrectly, identified Professor Michael Fitzgerald as being the author of Defining Autism – a damaging delusion, instead of Dr. Mike Fitzpatrick. Thank you to Mike Stanton for the correction. This comment has now been corrected and modified accordingly.


It is Topsy Turvy Day in an Irish Times article Darwin is the origin of new thesis on Asperger's. In "Darwin" Dr. Muiris Houston promotes the latest effort by Professor Michael Fitzgerald to assign yet another historical genius, this time Charles Darwin, to his speculative list of persons with Aspergers. Dr. Houston glosses over entirely the fact that Professor Fitgerald's opinion is pure speculation, having never met Darwin who died before Asperger's was even defined as a medical condition. Nor does Dr. Houston mention Professor Fitzgerald's career of assigning many historical geniuses to his speculative Asperger's list. Parents once again are the villains in Dr. Houston's and Professor Fitzgerald's Topsy Turvy fantasy production.

Wikipedia, in People speculated to have been autistic, has a summary of Professor Fitgerald's career in historical genius autism speculation:

Michael Fitzgerald, of the Department of Child Psychiatry at Trinity College, Dublin, has speculated about historical figures with autism in numerous journal papers and at least three books: The Genesis of Artistic Creativity: Asperger's Syndrome and the Arts,[4] Unstoppable Brilliance: Irish Geniuses and Asperger's Syndrome[5] and Autism and Creativity, Is there a link between autism in men and exceptional ability?[6]

Fitzgerald speculated the following were autistic in The Genesis of Artistic Creativity:

Unstoppable Brilliance discusses Daisy Bates, Samuel Beckett, Robert Boyle, Eamon de Valera, Robert Emmet, William Rowan Hamilton, James Joyce, Padraig Pearse and W.B. Yeats.

Autism and Creativity says the following may have been autistic: Lewis Carroll, Eamon de Valera, Sir Keith Joseph, Ramanujan, Ludwig Wittgenstein and W.B. Yeats.

While Professor Fitzgerald visits history, and his imagination, to speculate about historical figures he never met, most of whom lived and died before autism and Asperger's were known to the world, parents in the real world today struggle with the real challenges of caring for, raising and preparing their autistic children for a future without them.

Dr. Houston, clearly enamored with Professor Fitzgerald's historical speculation, also shares Dr. Mike Fitzpatrick's demeaning characterization of parents facing autism reality who take a biomedical approach to their children's autism. He promotes Fitzpatrick's book Defining Autism – a damaging delusion:

“Parents who share the unorthodox biomedical outlook project a negative view of autism, as a destructive disease process which is sometimes described as ‘worse than cancer’.”

And he says that some parents implicitly dehumanise people with autism by describing “their own predicament in terms of grief and loss and as one of unremitting battle against the corrosive impact of autism on their child, their marital relationship and their wider family”.

Dr. Houston then goes on to point out that there is no scientific evidence, only anecdotal evidence, in support of biomedical treatments. And therein lies the rub. Dr. Houston and the Irish Times reject anecdotal evidence, direct observation by parents of their children, of real situations and people, as being unscientific. Yet, he embraces, without question, the historical speculation of Professor Fitzgerald that Darwin, and other historical geniuses, people that Professor Fitzgerald never met, most of whom died before autism or Aspergers were recognized conditions, had one of these disorders.

Parents who actually care for and raise their children, who can see the realities of their children's autism spectrum disorders, and who try to help them live the fullest life possible are increasingly under attack today. Medical authorities fiercely intent on protecting vaccine programs from ANY criticism or question dismiss as hysterical parents who see their children regress after receiving vaccines. Parents who provide ABA or biomedical treatments to help their children are accused of oppressing them by some neurodiversity advocates.

Professor Fitzgerald has built a career writing articles and books and making presentations to learned societies speculating about the possibility that people he has never met might have had either autism or Aspergers. Dr. Mike Fitzpatrick, himself the parent of an autistic child, has the incredible arrogance to to demean and dismiss parents who fight for their children, who struggle to care for them every day. He speculates, with no solid evidence, that parents efforts to help their own children has a corrosive impact on autistic people. Describing our children's realities as we see them every day is actually harmful? Meanwhile Professor Fitzgerald sits in the library imagining that Darwin had Aspergers. Dr. Muiris and the Irish Times embrace both of their evidence bare theories while dismissing the daily observations of parents from around around the world.

If you are the parent of a child recently diagnosed with an autism disorder welcome to the Topsy Turvy world of autism parenting. Parents know nothing and hurt their autistic children while purporting to help them. Professors who prowl the library speculating that historical figures were autistic are taken seriously while parents who observe and deal with their children's autism challenges every day know nothing. In the world of autism parenting every day is Topsy Turvy Day as described in Disney's Hunchback of Notre Dame:

Once a year we throw a party here in town
Once a year we turn all Paris upside down
Ev'ry man's a king and ev'ry king's a clown
Once again it's Topsy Turvy Day
It's the day the devil in us gets released
It's the day we mock the prig and shock the priest
Ev'rything is topsy turvy at the Feast of Fools!

Crowd:
Topsy turvy!

Clopin:
Ev'rything is upsy daysy!

Crowd:
Topsy turvy!

Clopin:
Ev'ryone is acting crazy
Dross is gold and weeds are a bouquet
That's the way on Topsy Turvy Day




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Kaufman To Sell Son-Rise In Scotland

Scotland on Sunday reports that Raun Kaufman is off to Scotland to sell parents of autistic children on his Son-Rise program. The article quotes several voices urging caution with respect to Son-Rise and Mr. Kaufman's claim including Dr Richard Mills, director of independent charity Research Autism:

"Anecdotal reports of recovery are not evidence. There have been no independently conducted, peer-reviewed scientific trials of the Son-Rise method so we cannot recommend it to parents."


The MADSEC Autism Task Force Report (2000 Rev.) described Son-Rise as:


page 6:


• Without scientific evaluation of any kind:
Greenspan’s DIR/”Floor Time,” Son-Rise.

page 54:

Discussion

There have been no peer-reviewed, published studies of The Son-Rise Program’s effectiveness
or outcome statistics. Son Rise: The Miracle Continues chronicles the experiences of Barry and Samahria Lyte Kaufman as they created a program to meet the needs of their young son, diagnosed with autism and an IQ under 30. According the Kaufman (1997), their son currently has a near genius IQ, and no traces of his original condition.

Conclusions


There have been no studies of the Son-Rise Program’s effectiveness. Researchers should consider investigation using research protocols. Professionals considering Son-Rise should portray the method as without scientific evaluation of any kind, and should disclose this status to key decision makers influencing the child’s intervention.

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