World Autism Awareness Day 2013 Should Include Some Autism Reality

April 2, 2013 will feature another World Autism Awareness Day around the world.  Many blue lights will shine, politicians will pose and take credit for helping advance the cause of autistic persons and their families, countless media reports will talk about the gifts of autism and television series and movies alike will feature gifted individuals and autism, once again, will be portrayed for public consumption as the domain of brilliant if socially quirky personalities.  Little if anything will be said about the vast majority of those with autistic disorder who are limited by intellectual disability, or about  those who suffer from  obsessive behaviors, serious sensory issues, epilepsy and seizure activity, self injurious behavior, or spontaneous aggression in the form of property and furniture damage or even reactive, spontaneous aggression towards parents and caregivers. Of course nothing whatsoever will be said about the ultimate realities facing autistic children and their families.  We all age, our children become adults and the parents who care for their children grow old, feeble and .... deceased. When these events occur our severely affected autistic children will live out their time in various types of institutional arrangements including psychiatric hospitals ... if they are among the fortunate with any place to live.   

Feel free to keep shining your blue lights and repeating the words autism awareness until you are ... blue in the face. But please try to actually raise autism awareness by talking about the serious challenges facing those with autism symptoms and disorders from which they will suffer for the rest of their lives. 

Shine your blue lights but start being realistic. If you really care about some one with autism and want to help the and make positive changes start by telling the world the truth about autism.  Create some reality based autism awareness.

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World Autism Awareness Day Resolution

United Nations A/RES/62/139


Distr.: General

General Assembly

21 January 2008

Sixty-second session

Agenda item 66 (a)

Resolution adopted by the General Assembly

[on the report of the Third Committee (A/62/435)]

62/139. World Autism Awareness Day

The General Assembly,

Recalling the 2005 World Summit Outcome1 and the United Nations Millennium Declaration,2 as well as the outcomes of the major United Nations conferences and summits in the economic, social and related fields,

Recalling also the Convention on the Rights of the Child3 and the Convention on the Rights of Persons with Disabilities, 4 according to which children with disabilities should enjoy a full and decent life, in conditions which ensure dignity, promote self-reliance and facilitate the child’s active participation in the community, as well as the full enjoyment of all human rights and fundamental freedoms on an equal basis with other children,

Affirming that ensuring and promoting the full realization of all human rights and fundamental freedoms for all persons with disabilities is critical to achieving internationally agreed development goals,

Aware that autism is a lifelong developmental disability that manifests itself during the first three years of life and results from a neurological disorder that affects the functioning of the brain, mostly affecting children in many countries irrespective of gender, race or socio-economic status, and characterized by impairments in social interaction, problems with verbal and non -verbal communication and restricted, repetitive behaviour, interests and activities,5

Deeply concerned by the prevalence and high rate of autism in children in all regions of the world and the consequent development challenges to long -term health care, education, training and intervention programmes undertaken by Governments, non-governmental organizations and the private sector, as well as its tremendous impact on children, their families, communities and societies,

1 See resolution 60/1.
2 See resolution 55/2.
3 United Nations, Treaty Series, vol. 1577, No. 27531.
4 Resolution 61/106, annex I.
5 See International Statistical Classification of Diseases and Related Health Problems, tenth revision


(subcategories F84.0 and F84.1), endorsed by the forty-third World Health Assembly in May 1990.

Recalling that early diagnosis and appropriate research and interventions are
vital to the growth and development of the individual,

1. Decides to designate 2 April as World Autism Awareness Day, to be
observed every year beginning in 2008;

2. Invites all Member States, relevant organizations of the United Nations
system and other international organizations, as well as civil society, including
non-governmental organizations and the private sector, to observe World Autism
Awareness Day in an appropriate manner, in order to raise public awareness of autism;

3. Encourages Member States to take measures to raise awareness
throughout society, including at the family level, regarding children with autism;

4. Requests the Secretary-General to bring the present resolution to the
attention of all Member States and United Nations organizations.

76th plenary meeting

18 December 2007

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Sundance Channel Features Autism Every Day on April 2, World Autism Awareness Day

PR Newswire announces that The Sundance Channel will be airing the Autism Every Day video on World Autism Day, April 2. The neurodiversity movement, always angry at those who disagree with its "autism is beautiful" philosophy, has an irrational hostility toward the Autism Every Day video and its creator Lauren Thierry. But many parents of autistic children, including me, appreciate the video's honest portrayal of the challenges presented by autism disorders and the impact on the lives of the children with the disorder and the parents who love them and care for them. Lauren Thierry, Autism Speaks, Robert Redford and the Sundance organization deserve applause for presenting the hard realities of autism to the world.

NEW YORK, Feb. 13 /PRNewswire/ -- Sundance Channel will present the U.S. television premiere of Lauren Thierry's documentary Autism Every Day on April 2, 2008, which has been designated World Autism Awareness Day by the United Nations. The film, which debuted at the 2007 Sundance Film Festival, documents a typical 24-hour day in the lives of eight families struggling to raise children with autism. Autism Every Day premieres on April 2nd at 8:00pm et/pt.

Autism is a complex brain disorder that inhibits a person's ability to communicate and develop social relationships, and is often accompanied by extreme behavioral challenges. There is no cure for autism and the symptoms can range from quite mild to very severe. Autism rates are increasing throughout the world. In the United States, diagnoses have increased tenfold in the last decade, affecting 1 in 150 children according to the Centers for Disease Control. Autism's cause remains unknown, and there is currently no test to help prevent it. Addressing the disorder as a global health issue, the General Assembly of the United Nations has designated April 2nd as World Autism Awareness Day in perpetuity, starting in 2008. On April 2nd, U.N. member nations will seek to raise society's awareness of autism through education and celebration.

With Autism Every Day, director Lauren Thierry (who is herself the mother of a child with autism) illuminates the struggles parents of children with autism face every moment of the day. Thierry goes inside the homes of eight diverse families doing their best to cope with a perplexing disorder that completely dominates their lives. Autism Every Day shows how developmental skills that most parents take for granted -- a child's ability to brush his teeth or communicate a need -- can prove enormous hurdles for an autistic child. At the same, Thierry's film captures the unconditional, powerful love these parents feel for their children and their determination to provide them with the best care possible. Autism Every Day was produced by Autism Speaks, the nation's largest advocacy organization.

ABOUT AUTISM SPEAKS

Autism Speaks is dedicated to increasing awareness of autism spectrum disorders, to funding research into the causes, prevention and treatments for autism, and to advocating for the needs of individuals with autism and their families. It was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Bob Wright is Vice Chairman, General Electric, and served as chief executive officer of NBC for more than twenty years. To learn more about Autism Speaks, please visit http://www.autismspeaks.org/.

ABOUT SUNDANCE CHANNEL

Under the creative direction of Robert Redford, Sundance Channel is the television destination for independent-minded viewers seeking something different. Bold, uncompromising and irreverent, Sundance Channel offers audiences a diverse and engaging selection of films, documentaries, and original programs, all unedited and commercial free. Launched in 1996, Sundance Channel is a venture of NBC Universal, Showtime Networks Inc. and Robert Redford. Sundance Channel operates independently of the non-profit Sundance Institute and the Sundance Film Festival, but shares the overall Sundance mission of encouraging artistic freedom of expression. Sundance Channel's website address is http://www.sundancechannel.com/.

Sundance Channel
Press Contacts: Sarah Eaton Sundance Channel sarah.eaton@sundancechannel.com 212-708-8043 Katie Lanegran Sundance Channel katie.lanegran@sundancechannel.com 212-708-8044

autism

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World Autism Awareness Day, April 2, Designated by UN General Assembly

The Gulf Times reports that the UN General Assembly Third Committee has approved a draft resolution, which was introduced by Qatar and co-sponsored by 50 member states, on the designation of the World Autism Awareness Day to be observed annually on April 2 beginning in 2008.

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