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‏إظهار الرسائل ذات التسميات adult autism care New Brunswick. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات adult autism care New Brunswick. إظهار كافة الرسائل

Autism Education in the Era of the NBACL Inclusion Government



The New Brunswick Association of Community Living now determines inclusion and disabilities policies in the New Brunswick government with immediate repercussions in the  Department of Education and Early Childhood Development ... to the detriment of many children with autism disorders.  While always very influential in NB government education decisions the NBACL is now effectively in charge of disability and inclusion policies in New Brunswick schools. The ramifications for children and students severely affected by autism disorders and intellectual disabilities are very serious.  Independent, quality, autism specific training has been abandoned in favor of in house training and more and more pressure will be brought to bear on district and school officials to require all children receive instruction in a mainstream classroom even those for whom the mainstream classroom causes physical harm and disrupts their learning and development.

In the decade preceding the election of the Alward government New Brunswick made many gains in providing providing evidence based autism interventions to New Brunswick preschoolers and students over the decade preceding the Alward government election.  Those gains were provided via UNB-CEL Autism Intervention Training, a program recognized by US autism experts David Celiberti and Eric Larsson as a model for other Canadian and some US jurisdictions.  Those of us who advocated for these autism specific services were opposed strenuously by the very well connected and influential New Brunswick Association for Community Living.  Now, under the Alward government the NBACL is even more influential. NBACL actually sets Alward government disability policy and ensures compliance by Education officials from the Deputy Minister level down to the teachers and aides that deliver the programs.  Along the way the UNB-CEL Autism training has been dropped in favor of in house "training" and a renewed push for dumping all children in the mainstream classroom without regard for whether the classroom is the appropriate learning environment for them.  There is no room for flexibility or accommodation of children and students with severe autism disorders with intellectual disabilities in the NBACL Department of Education and Early Childhood Development. 

New Brunswick Premier David Alward has publicly acknowledged the role of the New Brunswick Association of Community Living related organizations in setting inclusion and disability policy in New Brunswick as was made clear on the community living organizations' IRIS site. IRIS is the Institute for Research and Development and Inclusion in Society. It purports to be the "research" branch of Community Living Assocations across Canada. The IRIS board of directors consists of present and former Community Living Association officials from accross Canada including former NBACL official Lorraine Silliphant.  In February 2012 IRIS spent a week indoctrinating high ranking New Brunswick education officials including Deputy Ministers and Assistant Deputy Ministers in the Community Living Association philosophy based policies of full mainstream classroom inclusion as was bragged about on the IRIS web site:

"New Brunswick Premier David Alward issued a letter Friday February 4th to all participants in the ‘Policy Making for Inclusion – Leadership Development Program’ that will be delivered in Fredericton by IRIS February 6-10 to senior officials with the Government of New Brunswick. The program is designed to assist policy makers achieve the government’s platform commitment to “enable New Brunswickers with disabilities to actively participate in all aspects of society and take their rightful place as full citizens.” With Deputy Ministers, Assistant Deputy Ministers, Human Resources Directors and Policy/Program Directors from across government participating in the week-long series of leadership development workshops, major strides will be taken towards creating a public service in New Brunswick ready and able to deliver on the government commitment to people with disabilities. In his letter, Premier Alward thanked The Institute “for developing this program to inform our public servants on the latest research on disability and inclusion…” A core resource for the program is the guide to Disability and Inclusion Based Policy Analysis just published by The Institute."

Even without the indoctrination of high ranking government officials in a week long session of Community Living policies the NBACL exercised a dominant role in the NB government.  NBACL official Krista Carr is the wife of Early Education and Childhood Development Minister Jody Carr.  Minister Carr's brother Jack Carr, also a member of the governing Alward Conservatives, is a former NBACL employee. Gordon Porter, an icon of the NBACL and CACL organizations, was a member of the Alward transition team and is now conducting yet another inclusion review with the aid of NBACL friendly team members.  Only views consistent with the NBACL total inclusion beliefs are tolerated.  In the past high school principals have been trained by NBACL officials who handed out awards annually to teachers who exemplify best (as in NBACL compliant) inclusion policies.

Admittedly the cliches and buzz words sound good. Community Living Association spokespersons never tire of telling us how awful things were in the bad old days before they changed everything for the better.  The NBACL, the CACL, IRIS and other CLA groups never, ever, acknowledge the evidence of the harm they have caused to some people by their fanatical obsessions like total classroom inclusion for all.   My son with severe autistic disorder and intellectual disability suffered in a mainstream classroom.  Conscientious educators locally, who actually work with and know my son have accommodated him with a flexible inclusion model, a model which is now at risk in the NBACL Department of Education and Early Childhood Education era.  The NBACL aristocracy that sets and enforces inclusion policy does not mention evidence like my son's case, that contradicts their everyone in the classroom philosophy.

So too the total inclusion extremists pay no attention to severely impaired adults who can not live in an ad hoc, loosely monitored group home system make no mention of the adults with autism disorders and intellectual disabilities living in psychiatric facilities in NB.  Instead they pretend all is swell, give each other awards, pat each other on the back incessantly and fight efforts to establish or even discuss an intermediate level of residential care with professionally trained assistants and higher levels of security for those who need such interventions.

There is no evidence to support the policies of the NBACL which now sets inclusion policies for New Brunswick government departments including Education and Early Childhood development. The evidence based consideration of the  best interests of individual students is in serious, serious threat of extinction in the NBACL dominated Alward government era. Specialized training such as that provided by the UNB-CEL Autism training program is now gone.  Flexible inclusion policies such as that which have accommodated my son with autism specific instruction will be targeted.

The NBACL is in charge.

Millions for Woodstock Civic Center But No Time to Answer a Simple Adult Autism Care Question

Second from Left, NB Premier and Woodstock MLA David Alward 
PHOTO BY MICHAEL MACDONALD/NBCC WOODSTOCK

On January 4 2012 I emailed New Brunswick Premier David Alward and relevant cabinet ministers the following inquiry which asked simply whether his government was considering helping autistic adults and is working on a modern, reality based model. I also asked if such an undertaking was not being considered to please say so straight up. 
Health Minister Madeleine Dubé's office was the only one to acknowledge receipt of my email.  I have received no substantive response to my question or concerns to date from Premier Alward or any of the relevant Ministers. The question itself requires no research, no public consultations.  It is a simple information request.  The question of adult autism residential care has haunted parents of severely autistic children in New Brunswick for many years. It was probably expecting too much to receive a prompt answer to a direct question. 
In the meantime though 8 million dollars of federal and provincial dollars are being poured into upgrading a civic center in the Town of Woodstock in Premier Alward's riding.  No time to answer a simple question about adult autism care in New Brunswick but lots of time and money for a civic center in Woodstock.  I absolutely do not begrudge the good people of Woodstock an upgrade to their recreational and community center but a few minutes to answer a simple question about adult autism care does not seem unreasonable either. Maybe I should have used an old fashioned letter for my inquiry and mailed it with a Woodstock P.O. Box return address? 


January 4 2012


Dear Honourable Premier, Honourable Ministers
and Respected Recipients


Re: Adult Autism Care And Treatment - NB Continues To Fail Autistic Adults In Need


I am the father of a 16 year old son with severe Autistic Disorder and "profound developmental" delays. He is now 6'1" with the strong, solid physique his father once had in younger days. At some point in the future I will be too frail to provide the care he requires and ultimately will of course no longer be available at all to help him. I began my involvement in autism advocacy in New Brunswick approximately 13 years ago. Along with other determined parents I fought hard, very hard, for early evidence based intervention for autistic preschoolers and for the means to deliver those interventions. I advocated strenuously for autism specific trained education assistants, teachers and resource teachers. Some success has been enjoyed because of the efforts of parents of autism in the area of preschool and school services. New Brunswick has even been cited as a model from which American authorities could learn by the Association for Science in Autism Treatment. The same can not be said, at all, when it comes to adult residential care and treatment


I also advocated for adjustments to the total inclusion education model in our schools. My son's self inflicted bite marks on his hands and wrists declined and disappeared entirely once removed from the mainstream classroom where he was overstimulated, overwhelmed, frustrated and learning nothing because of his serious autism deficits. I have been a determined opponent of the excessive dominance in our schools and facilities of rigid, ideologically based inclusion and community models. This mindset discriminates against severely autistic persons by failing to accommodate their real needs. Our children have, at times, been sacrificed to the vanity of a community movement which can not adjust to differing needs, experiences and expertise. I participated in regular disability committee meetings held by the Department of Education until they were disbanded, the MacKay review and the Ministerial Committe on Inclusive Education. Believe me or not but many teachers and teacher representatives have told me in confidence that they shared my aversion to the rigid inclusion model which has caused considerable suffering to some children and has disrupted the education of others unnecessarily. My son has been accommodated because of my advocacy and because educators who dealt directly with my son were conscientious, could see what he needed and acted in good faith to help him. I know that not all severely autistic children have been as fortunate.


Nowhere has the insistence on an inflexible and non evidence based inclusion model hurt autistic children and adults more though than in the area of residential care and treatment as they move from childhood to adolescence and ultimately adulthood. What awaits is a model which includes a belief in "community" backed up by group homes with untrained, underpaid staffers at one end of a spectrum of care. At the other end of that spectrum is the regional psychiatric care hospital in Campbellton. In between the two ends is a huge gap. What is need is at least one centrally located permanent residential care and treatment facility for severely autistic adults. Such a facility could be modernized and based on existing models in the world. It could include the professional assistance needed to provide care for severely autistic adults in a setting designed to provide them with a decent life, with continuing education and recreation opportunities. The facility should be based in Fredericton, not because I live here but because Fredericton is where our evidence based autism interventions and facilities began and grew. It is centrally located and it has a naturalistic environment with many woodlands, trails, parks and outdoor areas together with indoor recreational and entertainment facilities.


I realize the current economic realities in NB, in Canada and the world work against any consideration of the type of facility that is needed. But economic realities always weigh in and have done so over the last decade that I have been involved with trying to advocate for a reality based, evidence based residential facility for autistic adults in need of a permanent home when their parents age and pass on. Ever present too, and just as big an obstacle, is the belief that citing "community" cliches will actually help those who are most in need of help.


I have visited Centracare years ago with the father of a adult autistic son who resided there at the time. He told me of seeing his son dressed in a hospital "johnny shirt" in a room with a cement room and a liquid substance on the floor. I did not know whether to believe him or not until we arrived and again found him in the same room in the same condition. At least one autistic youth and one adult have been sent to a facility in Maine at considerable financial expense and considerable emotional stress for families living on the other side of an international border. I have had parents email me to tell me of their young adult autistic children hitting their head and having to wear self protective head gear at home while parents struggled to provide care. I was told of an autistic adult living on a general hospital ward for a time in Saint John. I am aware, as are we all, of the autistic youth who lived for a time on the grounds of the Miramichi youth correctional facility before being sent to the a Spurwink facility in Maine.


In early intervention and in school services both Liberal and Conservative governments have been of some assistance, have helped to provide needed, evidence based services to some extent. I ask that the same spirit be applied to developing a modern, decent residential and treatment facility for severely challenged autistic adults in New Brunswick. Nothing has been done for years. We have failed New Brunswick's severely challenged autistic adults. Community rhetoric has not helped. Autistic adults need a place to live. My son will need a place to live with access to professional autism care and autism trained staff, a place with educational and recreational dimensions to provide a decent life for him and others like him.


Please advise whether your government is considering helping autistic adults and is working on a modern, reality based model. If that is not in the works, please say so straight up.


Respectfully,


Harold L Doherty,
Conor's Dad


1. A Place for Conor What resources are available when you’re growing up with autism?
2. Autism services needed for N.B. adults
3. N.B. can be a leader in autism services
4. Autistic boy kept in New Brunswick jail, Toronto Star, October 19, 2005

NB Ombudsman's Centre of Excellence is a Fantasy That Will Not Fill Residential Care and Treatment Needs of Severely Autistic Adults



The Bricks and Mortar Office of the Ombudsman 548 York Street,
Fredericton,New Brunswick, at the Staying Connected consultations,
in which I participated, Ombudsman Bernard Richard and NBACL
President Clarence Box both dismissed Long Term Residential
Care and Treatment Facilities for Autistic Youth and Adults as "Bricks and
Mortar Solutions" The Centre of Excellence which the Ombudsman's
office has promoted so heavily is not an actual center, it is a
bureaucratic fantasy which will not provide a place to live and receive 
treatment for severely autistic youth and adults.


As a former Autism Society New Brunswick representative I  met with government officials on several occasions to stress the need for evidence based, secure, autism specific residential care and treatment facilities for New Brunswick adults with severe autism disorders.  Invariably government officials in both Liberal and Conservative administrations have declared that they were studying the issue but they have never taken concrete action to establish a modern, decent, facility with autism trained staff or with access to ongoing autism treatment.  I have on this site  posted several times over the past 6 years about the lack of adult residential care and treatment facilities for autistic adults.  

Still nothing happens. Part of the problem lies with government and part of the problem lies with the community living ideology which governs education, health and social development departments and institutions like the NB Human Rights Commission and the NB Ombudsman's Office under its various names.  All of these institutions talk about providing care in the community and talk about temporary care for the more severely autistic in more institutional settings. But they have no grasp of the realities facing severely autistic adults, none whatsoever, and NB youth and adults with autism pay the price for their autism ignorance.

Since my last post and email on this subject CBC New Brunswick reported the situation of an 18 year old New Brunswick autistic man who checked himself out of Centracare in Saint John in winter weather wearing only a hospital johnny shirt:

"The family of an 18-year-old with autism, who's currently being housed at the Salvation Army hostel in Saint John, is calling on the province to do more to help people in his situation.
The young man, whom CBC News has chosen not to name, has mood swings and behavioural issues, including violent outbursts.
He has been unable to remain in a group home and last Sunday, he checked himself out of the long-term mental health facility Centracare, wearing only a Johnny shirt in the subzero temperatures."
This 18 year old autistic man unfortunately falls squarely in the middle of the gap that exists in New Brunswick between group homes and psychiatric hospital care. CBC News deserves some credit for reporting this story but in their report they asked for feedback from former Ombudsman Bernard Richard. Mr. Richard is a very courteous and gentlemanly career politician and bureaucrat but he is also a person who lacks any obvious understanding of the realities faced by youth and adults with severe autism disorders.  In his comments on this Saint John "johnny shirt" incident Mr. Richard talked about the alleged "centre" recommended by the Complex Needs process which he oversaw:
""I've been generally encouraged," he told CBC on Wednesday."They are feeling that they need to do something and I am hopeful that they will."

In 2008, in his report called Connecting the Dots, Richard recommended a centre of excellence be dedicated to research and the provision of services to children with very complex needs, including the establishment of community-based residential capacity for them.
The centre was one of 48 recommendations in the report, which was a two-year undertaking and included a review of seven individual complaint files relating to youth with very complex needs.
Richard called for a centre of excellence again last year in report called Staying Connected, which he co-authored as co-chair of a task force on a centre of excellence for children and youth for complex needs.
"When a placement outside of the home is required for assessment or step-up intervention purposes, the centre of excellence will help ensure that clinicians, educators, social workers and all interveners work together and from the same page in meeting the child’s needs," the report said.
"The millions expended to date for step-up interventions abroad could benefit many more children if they were spent here in New Brunswick; those expenditures could develop expertise, services and employment in communities around our province."
The first point to note is that Mr. Richard is talking about children not older youths and adults.  The second is that he is talking about community based residential capacity for these children.  Mr. Richard's comments, to the extent that they are referring to autism disorders, do not demonstrate any understanding of the very serious, long term, and in some cases, permanent challenges facing many adults living with severe autism disorders.  For such adults assessment is not an issue. Nor is a hospital in patient out patient model the answer. Many severely autistic adults need facilities in which to live permanently with autism trained staff and access to expert autism therapeutic and medical care on an ongoing basis.  
I was involved with the Staying Connected review process and I spoke about the need for permanent residential care and treatment placement facilities with autism trained expert staff. My comments carried no weight with the Staying Connected process panel which was ideologically opposed to any attempt to establish centres. The Ombudsman's office has never been a strong advocate for autistic children and adults in New Brunswick.  Positive improvement in early intervention and school services were obtained by committed parents fighting on behalf of their children. The Staying Connected consultations actively discouraged discussion of actual facilities, or "bricks and mortar" solutions for the serious challenges facing New Brunswick adults with complex needs including the very complex needs of severely autistic NB youth and adults.
Unfortunately, when it comes to adult autism care, the Ombudsman's office is not just  an irrelevant bystander as it was for preschool and school autism services.  It has become part of the opposition to providing decent modern and adequate residential care and treatment facilities.
The Ombudsman's office is not part of the solution when it comes to adult autism residential care and treatment in New Brunswick. As a bureaucracy closely tied to  the community living leadership which has such great influence with New Brunswick governments, and which vigorously opposes residential care and treatment facilities for autistic adults, it is part of the problem, a very big part of the problem. 

A Place for Conor? New Brunswick and Its Community Cliché Addicted Bureaucracy Have Failed Severely Autistic Adults

The Ombudsman and the community living bureaucracy in New Brunswick can Connect all The Dots and hold as many cheer leading sessions as they want but none of them have done anything to address the need for decent residential care and treatment facilities for severely autistic adults in New Brunswick. 


When it comes to the need for modern properly staffed residential care and treatment for New Brunswick adults with severe autism disorders our community living cliché addicted government institutions have prevented all progress.

In 2011 Karissa Donkin, a journalism student at St. Thomas University met with me and Conor before addressing these issues head on in a well written piece of journalism: A Place for Conor.  For me, and for my son Conor, this was the autism story of 2011.  It asks a question I asked at a meeting of the Autism Society New Brunswick last year. It asks a question I have raised, with other parents of autistic children, in several meetings with New Brunswick government officials over the past 10 years. It is a question I have asked of the community living bureaucracy that has dominated the New Brunswick Human Rights Commission, the Ombudsman's Office and the Departments of Education, Health and Social Development.  Last year I raised the issue of adult residential care and treatment during the Ombudsman's public consultations. I might as well have been singing to my self in the shower. 

I participated in the center of excellence consultations organized by the Ombudsman's Office  in connection with the  Connect the Dots campaign. It was an orchestrated charade with the same cliches about "community" and "inclusion" and expressed hostility towards "bricks and mortar" centers that have prevented progress on evidence based autism issues for decades in New Brunswick. It was clear from the comments of those at the head table as well as NBACL head Clarence Box who moved to the table I was seated at that there would be no real centers considered during the consultations.

As we move forward in 2012, the need for a decent residential care and treatment system for NB adults with autism disorders remains as it has over the past decades.  The past several decades have been dominated by a community living  bureaucracy  whose ideas were framed decades ago and which has not moved on to address the need for modern evidence based residential care and treatment needed by some people, including my 16 year old severely autistic son.  

With no disrespect intended the fact remains that the community living bureaucracy, including the current occupant of the Ombudsman's office, doesn't have a clue about what is required to move severely autistic adults out of psychiatric hospital and general hospital ward care and into modern residential care and treatment facilities.  They refuse to consider meaningfully any ideas which conflict with their tired community living ideology, an ideology which began around the time my childhood heroes Neil Armstrong and Buzz Aldrin walked on the moon. It is an ideology whose adherents have remained inflexible and dogmatic in their thinking. It is an ideology whose adherents have failed, despite years of the highest level of influence in our government institutions, to help the most severely disabled autistic adults.

New Brunswick has a need for autism specific residential care and treatment facility. Our province has answered the call in early intervention and to some extent in providing autism specific education services in our schools. It has been accomplished despite the determined opposition of those with a near religious belief in community living cliches.  UNB-CEL Autism Intervention and the Stan Cassidy Centre in Fredericton have developed some excellent early and school years intervention services. We have natural living environments in the capital area. There is no excuse for not beginning a serious effort to construct a professional modern living centre for autistic adults in our capital region. None at all.

Karissa Donkin's article, A Place for Conor:

"A Place for Conor



What resources are available when you’re growing up with autism?




Fredericton’s Second Cup is loud and busy on a Tuesday afternoon and Conor doesn’t like it.


Conor is 15 years old and looks the part of a boy becoming a man. He’s nearly six-feet tall and growing sideburns. His blue eyes are staring out of the coffee shop’s window, where he’s watching a raging snowstorm blanket the downtown streets.


Every few minutes, when the noise gets to be too much to handle, Conor lets out a small scream and bats his ears with his hands.


The only person who can hold Conor’s attention is the man sitting across from him with the same blue eyes.


Since Conor was diagnosed as severely autistic and intellectually disabled 13 years ago, Harold Doherty has worked tirelessly to lobby the government to better support autistic children like his son. For the past five years, he’s operated a blog called Facing Autism in New Brunswick.


“There were no services here in New Brunswick … People had to stay active. There was a group of parents who did and I was one of them.”


But Doherty, a lawyer, is now in the fight of his life. As Conor nears adulthood, Doherty’s greatest worry is that the province doesn’t have the proper services for someone like Conor to maintain a high quality of life when they leave the public school system. He’s afraid Conor will fall through the cracks.



“My big fear is that he will simply be put into a room in Campbellton in the psychiatric hospital without any real life to live once I’m too old or deceased.
“On the other hand, I don’t want him dumped into one of the group homes they have.
“They don’t have staff trained to help him and they don’t have enough programs to really work with someone like my son.”
***
Autism is a developmental disorder that affects a person’s communication and social skills. The severity of the disorder ranges from the severe form that Conor has to Asperger’s, a more mild form depicted in movies like Rainman. The Centre for Disease Control and Prevention says one in 110 children have autism.
New Brunswick provides care both in a patient’s home and in residential facilities for more than 6,250 adults under 65 with disabilities, including autism, says Department of Social Development spokesman Mark Barbour.
But Barbour admits the province needs to do more to help autistic adults.
“There is a need for more specialized services for autistic youth and adults, whose behaviours or conditions are severely impaired.
“These individuals require services and supports designed to specifically meet their high care needs.”
The province wants to build an autism residential facility, which would provide permanent care for severely autistic adults who can’t live on their own, Barbour said.
Not only is the current system not comprehensive enough for adults with varying degrees of autism, but it’s also expensive, says child psychologist and autism expert Dr. Paul McDonnell.

Autistic adults are often sent to privately run group homes or in extreme cases, sent to psychiatric care in Campbellton or out of province.
“It’s fairly expensive to put people in group homes and if you have to send people out of the province then it’s much, much more expensive,” McDonnell said.
“If they’re placed far away from their families, that creates a lot of hardship as well. A lot of people aren’t functioning at the level they could. They’re simply not having the quality of life they should be having.”
McDonnell thinks the province needs to train people to be prepared to deal with adults with severe behavioural challenges.
“They should have stimulating recreational, educational programs. That is absolutely essential.
“That’s what we need to aim towards is setting up a system where we have some really well-trained people.”
***
Every school night before Conor goes to bed, he packs his lunch and puts it by the door.
Conor is in Grade 9 at Leo Hayes High School and loves getting up and going to school every day.
In elementary school, Conor used to come home with bite marks, a sign of frustration from being placed in a regular classroom. Now, Conor studies in a resource room at the high school.
A severely autistic teenager like Conor thrives on the structure of the school day and he struggles when he doesn’t have that structure.
“When school days are missed for different reasons, it’s challenging for him,” Doherty said.
Doherty worries about how to manage Conor’s behaviour when he’s finished with the public school system.
“It’s difficult as parents to give him the structure that he gets at school.”
Many members of the Autism Society of New Brunswick are parents who share similar worries. Doherty organized the society’s first meeting in two years in January.

The parents have been lobbying the government to reform autism services for years. They started out lobbying for services for the youngest kids and saw an autism intervention training program developed at the University of New Brunswick’s College of Extended Learning in 2004.
“We know that wasn’t going to help our children. My son never got the benefit of those (pre-school) services. But it was the right thing to do,” Doherty said.
The parents moved on to advocating for better services at the grade school level and have spent the last couple of years focusing on adult services.
“It’s tougher to get that same emotional response when you’re talking about adults.”
Many of those same parents got burnt out trying to manage careers, autism advocacy work and their families, Doherty said, and the society was disbanded for two years.
But with the clock ticking and Conor approaching adulthood, Doherty knew it would be necessary to have a society to communicate with government.
“Because we don’t look for compensation, we’re not in a conflict of interest. We can’t be pressured into representing our children to the fullest of our ability.
“That’s why we were able to keep pushing ahead when other people pulled back. We know how important it is.”
McDonnell, who has worked with parents to help them understand autism, knows how important it is for parents to be advocates.
“If you don’t (advocate), you simply won’t get the services.”
***
Six weeks ago, Conor had a meltdown in the middle of the night.
Around 2:30 a.m., Doherty woke up to find his son harming himself. Clearly frustrated, Conor was slapping himself in the face and head.
“I tried to talk him out of it and manage his behaviour and it didn’t work this time.
“I tried to grab his arms to restrain him from hurting himself … he lunged forward and gave a good bite on my bicep.”
This is a rare example of a time when communication broke down between Doherty and his son, making it hard for him to manage his son’s behaviour.
Doherty suspects Conor’s frustration that night came from not understanding the teenage changes going on in his body.
The incident serves as a reminder of Doherty’s race against the clock to ensure his son will be able to live his adult life with dignity.
While Doherty is worried about the future, he maintains he isn’t going anywhere soon. Spending time outdoors and running around with Conor, who has a lot of energy, is keeping him healthy and young in body and spirit.
“(Conor) has his frustrated moments but those are far outweighed by the moments he’s just happy and smiling a lot.”"

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