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‏إظهار الرسائل ذات التسميات Fredericton. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات Fredericton. إظهار كافة الرسائل

Life in Conor's "Back Yard", Fredericton's North Riverfront Trail, in 2013

2013 was a challenging year for Conor and Dad health wise. I spent a week in acute care with some respiratory issues and Conor spent 2 weeks in hospital, including a six day stay in the ICU recovering from a life threatening adverse reaction to his seizure medication. Overall though life was good in 2013, including life in Conor's "back yard", Fredericton's North Riverfront Trail. We are just a couple minutes walk from the trail and the St. John River and we enjoyed the trail as often we could.




























You Can Help the Chalmers Hospital ICU Save Lives!



The Intensive Care Unit (ICU) at Fredericton's Chalmers hospital saves lives even with vitally important monitoring equipment that is more than 10 years old.  We found out first hand how important the ICU is when our son Conor spent 6 days at the ICU with a life threatening adverse medication reaction:


Conor during his 6 day stay in the ICU


Conor, in full recovery mode, 3 months after leaving the Chalmers ICU

I understand that the Chalmers Foundation hopes to meet their target for purchasing the new monitoring equipment by the end of August.  

If you are interested in helping the ICU save lives visit the Chalmers Foundation current project page - ICU Making a Difference and contribute towards purchasing new monitoring equipment for the ICU.  

Conor's Fredericton Adventures 2013 Part I


Conor & Dad, couple of hosers enjoying the snow, eh?


Conor's Saint John River view clear day, above, not so clear below



Conor helps Dad with a visit at the Chalmers Hospital Acute Care Unit


Conor and Mom head out for  a stroll on the North Riverfront Trail


Conor changes his mind about the strolling part


Conor enjoys a late March snowstorm eh?


Conor isn't the only one who gets to fly along our North Riverfront Trail


The Run Jump Fly Boy lets it all loose on the North Riverfront Trail, Fredericton


Just days after Conor was running, jumping and flying down the trail he was taken by ambulance to the Chalmers Hospital in Fredericton where he spent 6 days in the Intensive Care Unit, and a total of 2 weeks in hospital, as a result of a life threatening adverse reaction to his anti seizure medication. 


Many thanks to the incredible doctors, nurses and staff at the Chalmers Emergency and Intensive Care Units for saving our Conor.


Conor didn't take too long to fully recover and there was no better way to show it than heading out on the trail with Mom and Dad ... where he had to wait from time to time for us to catch up.

Looking forward to lots more fun with Conor on the trail and elsewhere in 2013.  I hope he continues to enjoy the wonderful outdoor environment that Fredericton and friends like the Ospreys shown below offer. 







Canada Loses an Autism Champion: Andy Scott Passed This Morning


Andy Scott With A Megaphone Supporting Autism Cause with Andrew Kavchak

Canada has lost an autism champion with the passing this morning of former Fredericton MP Andy Scott.  In a telephone conversation with a friend and fellow autism advocate elsewhere in Canada I once suggested the person contact their federal Member of Parliament.  I was informed that had already been done but there would be a wait before the MP could be seen.  There was some apparent disbelief when I mentioned that I could literally walk across the street to the office of our then MP Andy Scott and if he was in he  would probably see me or any other visitor.  

Andy met with representatives of the Autism Society NB on several occasions and actively pushed for a National Autism Strategy which he ultimately realized with the passage of Motion M-172.  The motion was essentially a commitment in principle with no obligations being undertaken by our federal government but it did help put autism on our national agenda and it was Andy Scott being Andy ... getting done what could get done ... with a view to moving forward further in future.  He continued to advocate for autism as demonstrated in his June 5, 2007 statement in House of Commons:

Autism 

[Table of Contents]

Hon. Andy Scott (Fredericton, Lib.):

Mr. Speaker, it is regrettable that we have seen little action by the government toward implementing a national autism strategy.

It has been more than a year since I introduced Motion No. 172. My private member's motion called for evidence based standards, innovative funding arrangements for diagnosis, treatment and research, and a national surveillance program.

The motion was adopted in good faith and supported by the government. However, it was very disappointing to see no reference to a national autism strategy in the recent budget or any discussion this spring.

Recently, I joined my colleagues from Charlottetown and Sackville—Eastern Shore and Senator Munson at a rally in Halifax that reinforced that there are families with autistic children across Canada who need the government's help.

The Conservatives should move off their default position of jurisdictional excuses, show creativity and compassion and start helping these Canadians.

On a previous blog commentary about Andy I had referenced the National Autism Strategy and quoted from Tali Folkins 2003 Telegraph Journal article:

"Fredericton MP Andy Scott said Saturday he has been lobbying prime- minister-to-be Paul Martin for a federal program to help young children with autism. "I desperately want a national autism strategy - and let me just assure you that Paul Martin knows it," Mr. Scott told supporters at a party celebrating his 10th anniversary as an MP in Fredericton Saturday evening.

Early work by therapists with young autistic children, Mr. Scott said, can make a big difference in their capacity to lead fulfilling lives as adults - and can save money in the long run. But the costs of starting such early intervention programs are high and should be borne directly by Ottawa rather than each individual province, he said. "We have responses and therapies and so on that I genuinely believe can work," he said. "You're going to save millions of dollars over the lifetime of an autistic adult. If you can get in at the front end, you can make enormous progress.

"But it's very expensive, and there's not a lot of stuff being added to Medicare, generally - that's why we have catastrophic drug problems and other things," he said. "In the province of New Brunswick, P.E.I., or even Quebec or Ontario it's very, very expensive. The feds are going to have to step up to the plate." "

Andy Scott fought on behalf of autistic persons in Canada.  He did not achieve all the goals he wanted by any means but he did what was possible in the time he had. Autistic Canadians have lost a champion today.  

Conor Recovery ... For Dad ... Means Walking On The Trail Again

We have been very happy with the excellent care Conor received after his adverse drug reaction. Everyone involved, from our family doctor who saw us very quickly after our concerns arose, immediately advised cutting back on Conor's meds and was at the ICU and pediatric wards as part of his treatment team to the doctors, nurses, technicians, physiotherapists and all staff at the emergency, ICU and pediatric ward teams. All were terrific in ensuring Conor's recovery. Everybody was top notch and we are grateful for their service to our son. 

Each day of progress brought fresh signs and while some work remains overall his progress has been great. This afternoon he and I walked the trail to the Superstore for an OJ treat and return home. The Run Jump Fly boy has not returned ... yet ... but Conor kept a brisk walking pace and Dad was very hard pressed to keep up ... another great sign of Conor's recovery progress.

In the top picture below the white building with yellow trim in the center of the photo is the hospital, the DECH, where Conor was treated a few weeks ago. 
 A long time ago in a universe far, far away.




Autism and the Natural Environment: Conor Celebrates Earth Day Every Day


Today is Earth Day! Conor celebrated yesterday with some Run, Jump, Fly fun on the North Riverfront Trail here in Fredericton, New Brunswick, Canada.  We try to get outdoors and celebrate our natural environment with Conor every day, every chance we get. 





Conor's Fredericton 2012 - Part II

The Autism Society New Brunswick met on several occasions with senior civil servants during the administration of successive provincial governments to advocate for a modern residential care facility and system. The concept was to have a  facility located in Fredericton because of its central location and proximity to the autism expertise of  UNB, UNB-CEL and the Stan Cassidy Centre. The centre would provide an alternative to the general psychiatric hospital facilities at Centracare in Saint John and at the Regional Hospital in Campbellton.  The professional advisers at the centre could then provide services on as needed basis to group homes situated in local communities around the province for those with more moderate impairment levels.  

I have personally suggested that an additional reason for locating the central residential care and treatment facility in Fredericton  is Fredericton's outstanding natural environment.  So far, no luck. So far, immobility of thought and action have prevailed.  The ideological rigidity of the current Alward government  further preclude any development as described above and on the CBC web site by Clinical Psychologist and UNB Professor Emeritus (Psychology) Paul McDonnell.  The years long frustration though will not prevent me from continuing to advocate and do not prevent our family from enjoying the natural wonder of Fredericton.



































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