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‏إظهار الرسائل ذات التسميات Dr. Sabrina Freeman. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات Dr. Sabrina Freeman. إظهار كافة الرسائل

Return of the Bad Parents Cause Autism Nightmare Monster



"DR. GABOR MATÉ: Well, the situation with fathers is, is that increasingly—there was a study recently that showed an increasing number of men are having postpartum depression, as well. And the main role of the father, of course, would be to support the mother. But when people are—emotionally, because the cause of postpartum depression in the mother it is not intrinsic to the mother—not intrinsic to the mother.

What we have to understand here is that human beings are not discrete, individual entities, contrary to the free enterprise myth that people are competitive, individualistic, private entities. What people actually are are social creatures, very much dependent on one another and very much programmed to cooperate with one another when the circumstances are right. When that’s not available, if the support is not available for women, that’s when they get depressed. When the fathers are stressed, they’re not supporting the women in that really important, crucial bonding role in the beginning. In fact, they get stressed and depressed themselves.

The child’s brain development depends on the presence of non-stressed, emotionally available parents. In this country, that’s less and less available. Hence, you’ve got burgeoning rates of autism in this country. It’s going up like 20- or 30-fold in the last 30 or 40 years.

AMY GOODMAN: Say what you mean by autism.

DR. GABOR MATÉ: Well, autism is a whole spectrum of disorders, but the essential quality of it is an emotional disconnect. These children are living in a mind of their own. They don’t respond appropriately to emotional cues. They withdraw. They act out in an aggressive and sometimes just unpredictable fashion. They don’t know how to—there’s no sense—there’s no clear sense of a emotional connection and just peace inside them.

And there’s many, many more kids in this country now, several-fold increase, 20-fold increase in the last 30 years."

Dr. Gabor Maté, interviewed by Amy Goodman, December 24, 2010

Once upon a time there was a monster born in the darker pits of human imagination, that haunted parents of autistic children in their nightmares,  and burst into the bold sunlight of world wide acceptance wreaking havoc on families, particularly mothers, of autistic children. The refrigerator mothers theory of autism, with no evidence in support, blamed mothers of autistic children for their children's autism disorders.  The monster was received with a warm embrace for many years by mainstream media,  academics and public health authorities alike and caused great harm to autism mothers, families and their children.

Remember too that this was in the days  when the vast majority who suffered from what was then called autism suffered from intellectual disabilities and serious deficits in daily functioning, the days before autism was transformed by the DSM-IV, Hollywood and the mainstream media into today's Autism Lite brand of shy quirky personalities. Try to imagine the guilt those mothers must have felt upon being told that their allegedly cold, uncaring personalities caused their children's serious, life limiting disorders.  Now the family wrecking monster of the refrigerator mothers theory has stuck its head out of the darkest sewers of academia and threatens once again to slander and malign those who are on the real front lines of the battle to defeat autism: parents of autistic children.

The Autism Pundit, Dr. Sabrina Freeman, in Refrigerator Moms Obsolete When Hell Freezes Over  has called out the new generation of Bettelheim autism monsters and pointed specifically at the Canadian physician,  Dr. Gabor Maté, who has a "theory" that parental stress is responsible for autism and a variety of other developmental disorders.  Dr. Mate even confesses, in a Times Union article, that he has no data to support his whack-a-do version of Bettelheim's Refrigerator mom's theory in which he substitutes stress for lack of emotional nurturing: "He can't prove it, but nothing else makes sense, Maté said."

Dr. Freeman pulls no punches in challenging Maté and other Bettelheim Heirs to back up their theories with data:

"Second, a theory is useless without any data supporting it. Put simply, show us the data, or put a sock in it! Since these big thinkers seem happy to posit theories that they have no plans to test and are, therefore, perennially without data to support them, let me have a go, and posit one of my own. Doctors and researchers with little talent and less integrity, tend to gravitate to fields where there is no known cause and no known cure – like autism. That way, B.S. can be purveyed with impunity, since few folks actually expect rigorous scientific standards of conduct (i.e., proper theory construction, hypothesis development, experimental design, testing, data collection, statistical analyses, presentation of results, and interpretation). In other words, where autism is concerned, it’s still the wild west of science. However, the good news is that as we learn more about the true neurobiology of autism, these ignorant pretenders will be relegated to the Flat Earth Society where they belong." (Bold, underlining added -HLD)

US and Canadian Autism Societies, Autism Speaks, the Association for Science in Autism Treatment  and public health authorities should join Dr. Freeman in calling out purveyors of this reincarnation of the Refrigerator Mothers Autism Nightmare and tell them to back up their theories with data or ... as Dr. Freeman said far too politely and with far more respect than they deserve ... put a  sock in it. 

Autism Pundit's Sound Advice for Autism Speaks


Autism Pundit is the new autism blog by Dr. Sabrina Freeman, a mother of an autistic daughter, who has been a powerful advocate for evidence based treatment for children with autism, and whose "about the blogger"  section states in more detail:

"Sabrina Freeman, Ph.D. (1958-) was born in Montreal, Quebec, and grew up in Vancouver, British Columbia. She graduated from Stanford University in 1995 with a Ph.D. in Sociology, specializing in small group research and the study of organizations. Upon her return to British Columbia, Freeman spent 14 years advocating for the rights of children with autism to be included in the government funded health care system for their core health need -- autism treatment. During this period, so many parents were desperate to access treatment programs that Freeman created a 35 minute VHS/DVD [Autism: Now What Do I Do?] to help guide parents through setting up science-based treatment programs for their children. In 2002, she was awarded Queen Elizabeth's 50th Golden Jubilee Medal for advocacy work done on behalf of children afflicted with autism. Freeman's advocacy culminated in the now famous Supreme Court of Canada ruling Auton (Guardian ad litem of) v. British Columbia in 2004.

During the last 15 years, Freeman wrote several books on autism, one of which [Teach Me Language] has been subsequently translated into French, Italian and Norwegian. The next book she wrote, [Science for Sale in the Autism Wars], chronicles the struggle children with autism face against a system that does not recognize their rights to treatment. Her most recent book [The Complete Guide to Autism Treatments (2011)] is an up-to-date evaluation on the various treatments offered for children with autism. Her hope is that through her scholarship, thousands of parents will not have to go through the uncertain journey of generations of parents of newly diagnosed children. Instead, she offers parents a way to quickly evaluate various treatments and make sure that their child receives science-based treatment rather than treatments based on testimonials and good wishes."

Dr. Freeman's blog promises to rapidly become one of the best autism blogs on the internet.  Her writing style is direct and does not cater to political correctness. A good example is a comment posted yesterday called "We're Aware Already!" in which she offers sound advice to Autism Speaks on two important points. 1. The need to educate ... sorry .... encourage ... many pediatricians to drop their opposition to routine early screening for autism. 2. Start publicizing the fact that ABA has been recognized as best autism practices since 1999 by the US Office of the Surgeon General and other key agencies:

"It is time for the Autism Speaks folk to publicize the fact that:
a) The U.S. Surgeon General has recognized Intensive Behavioral Treatment as best practices for autism treatment since 1999 (that was twelve years ago)!
b) New York State has also recognized Intensive Behavioral Treatment as 
best practices since 1999(that was twelve years ago)!
c) Over 50% of
 
states in the U.S.
 have passed autism mandates forcing insurance companies to pay for treatment!

Once the mover’s and shakers i.e. the well funded charities, in the autism community recognize the above facts, only then will we be able to move beyond awareness into early intensive behavioral treatment for all the children who desperately need it!
What are we waiting for?"

I have already listed Autism Pundit on my sidebar as one of my favorite blogs to visit. If you are interested in helpful autism commentary I recommend Autism Pundit a blog which is serious about helping autistic children and adults written by someone who is extremely well informed, experienced in real autism advocacy, and who is a top notch writer. I encourage you to take a look at Autism Pundit and make it one of your regular blogs to visit.

Medicare for Autism Now! Rally October 4th Surrey BC


Medicare for Autism Now! Rally

Saturday, October 4th, 2008
2:00 p.m. to 4:00 p.m.

Eaglequest Golf Club,
7778 – 152nd St.,
Surrey, BC, V3S 3M4

Why should I attend?

· Despite a decade of lobbying, collaborating and litigating – autism treatment is still excluded from our universal health care system. Canadian families from BC to Newfoundland and everywhere in between are still bankrupting themselves in order to provide treatment for their autistic children.

· The current and limited funding provided through the Ministry for Children and Families could evaporate tomorrow with the stroke of a bureaucrat’s pen. No legislation exists within this ministry to protect or enshrine our children’s medically necessary treatment.

· In 30 years of advocacy, the only two initiatives which have achieved ANY success for our children and families has been litigation, and more recently, focused political action. Both were brought by the members of FEAT of BC – a 100% volunteer organization.

Autism is an epidemic of staggering proportions, it now afflicts one in every 150 children in North America, one in every 94 boys.

· Autism is an election issue in the US…Both Senators Obama and McCain have publicly identified progressive autism policy which can be viewed on their websites….Obama-“Every nation has a special responsibility to look after those who can’t look after themselves…” McCain-“Their lives should matter to the people elected to office…they matter to me.” In 2006, both Obama and McCain supported the “Combating Autism Bill” which allocated $945 million to autism research and treatment. The US federal government recognizes their responsibility to intervene by acting to avoid a major health and social crisis.

It is now time for our federal government to recognize their responsibility to act!

· Today, all over Canada, parents of children with autism and growing numbers of other fair-minded, but outraged Canadian voters expect our federal government to show leadership and act. This is not a right or left issue – it’s a right or wrong issue!

· We intend to let those who govern and those who wish to govern know that they will be held accountable, regardless of party affiliation, at the ballot box on Oct. 14th.

Who should attend? You – and every fair-minded Canadian you know!

In Canada, children with autism and their families suffer from political indifference. It will take the sustained energy and dedication of EVERY CANADIAN who desires a just society to correct this injustice. For our children’s sake, and the sake of future generations, we urge you to attend this rally.

Please bring friends, family, kids, anyone and everyone you know who is appalled by the gross injustice done to our children every day by the governments of Canada and its provinces. Come and find out how you can make your vote actually count on October 14th!

Featured speakers will include:

Dr. Sabrina Freeman – parent, founder and Executive Director, FEAT of BC

Jean Lewis – parent, Director of FEAT of BC and The Medicare for Autism Now Society

Beverley Sharpe – parent and FEAT of BC member

Dr. Glen Davies – Clinical Director, ABLE Developmental Clinic

Louise Witt – parent, Director of FEAT of BC and The Autism Society of BC

Dubravka Skrijelj – parent, FEAT of BC member

Dr. Melvin deLevie – Pediatrician, Vancouver

David Marley – Political advisor to FEAT of BC and Director – The Medicare for Autism Now Society

David Chan – parent, Director- Autism Society of BC and FEAT of BC member

Dione Costanzo – parent, FEAT of BC member

Children are more than welcome! There will be a room for them to hang out, play, enjoy snacks and get their face painted!

Please RSVP to _______________

For more information or to find out how you can help, go to:

www.medicareforautismnow.org


Medicare for Autism Rally TODAY In Burnaby BC





Sunday, March 2nd, 2008
2:00 p.m. to 4:00 p.m.
Shadbolt Centre for the Arts
6450 Deer Lake Avenue
Burnaby

Why should you attend?

Despite a decade of lobbying, collaborating and litigating – autism treatment is still excluded from our universal health care system. Canadian families are still bankrupting themselves in order to provide treatment for their autistic children.

The current and limited funding provided through the provincial government’s social services ministries could evaporate tomorrow with the stroke of a bureaucrat’s pen. No legislation exists within these ministries to protect or enshrine our children’s medically necessary treatment.

In 30 years of "advocacy", the only two initiatives which have achieved ANY success for our children and families has been
litigation, and more recently, focused political action. Both were brought by the members of FEAT of BC – a 100% volunteer organization.

Autism is an epidemic of staggering proportions, it now afflicts one in every 150 children in North America, one in every 94 boys. It is time for the Federal Government to act! We need to let those who govern and those who wish to govern that they are going to be held accountable at the ballot box in the next federal election.

Who should attend?

You - and every fair-minded Canadian you know!

Children with autism suffer from political indifference. It will take the sustained energy and dedication of EVERY CANADIAN who desires a just society to correct this injustice. For our children’s sakes, and the sake of future generations, we urge you to attend this rally.

Please bring friends, family, anyone and everyone you know who is appalled by the gross injustice done to our children every day by the governments of Canada and its provinces.

Featured speakers will include:

Dr. Sabrina Freeman – Executive Director, FEAT of BC and parent

Jean Lewis – Director, FEAT of BC and parent

David Chan – Director, Autism Society of BC, FEAT of BC and parent

Dubravka Skrijelj – FEAT of BC member and parent

Dr. Glen Davies – Clinical Director - ABLE Developmental Clinic

Beverley Sharpe – FEAT of BC member and parent

Louise Witt – Director, Autism Society of BC, FEAT of BC and parent

David Marley – FEAT of BC member and Political Strategist

Please RSVP to www. featbc.org and forward this notice to anyone you think will be interested.

FEAT of BC: "To see justice is done"


Medicare for Autism Now Rally March 2 - Burnaby



"Medicare for Autism Now!" Rally

Sunday, March 2nd, 2008

2:00 p.m. to 4:00 p.m.

Shadbolt Centre for the Arts

6450 Deer Lake Avenue

Burnaby

Why should you attend?

Despite a decade of lobbying, collaborating and litigating – autism treatment is still excluded from our universal health care system. Canadian families are still bankrupting themselves in order to provide treatment for their autistic children.

The current and limited funding provided through the provincial government’s social services ministries could evaporate tomorrow with the stroke of a bureaucrat’s pen. No legislation exists within these ministries to protect or enshrine our children’s medically necessary treatment.

In 30 years of "advocacy", the only two initiatives which have achieved ANY success for our children and families has been litigation, and more recently, focused political action. Both were brought by the members of FEAT of BC – a 100% volunteer organization.

Autism is an epidemic of staggering proportions, it now afflicts one in every 150 children in North America, one in every 94 boys. It is time for the Federal Government to act! We need to let those who govern and those who wish to govern that they are going to be held accountable at the ballot box in the next federal election.

Who should attend?

You - and every fair-minded Canadian you know!

Children with autism suffer from political indifference. It will take the sustained energy and dedication of EVERY CANADIAN who desires a just society to correct this injustice. For our children’s sakes, and the sake of future generations, we urge you to attend this rally. Please bring friends, family, anyone and everyone you know who is appalled by the gross injustice done to our children every day by the governments of Canada and its provinces.

Featured speakers will include:

Dr. Sabrina Freeman – Executive Director, FEAT of BC and parent

Jean Lewis – Director, FEAT of BC and parent

David Chan – Director, Autism Society of BC, FEAT of BC and parent

Dubravka Skrijelj – FEAT of BC member and parent

Dr. Glen Davies – Clinical Director - ABLE Developmental Clinic

Beverley Sharpe – FEAT of BC member and parent

Louise Witt – Director, Autism Society of BC, FEAT of BC and parent

David Marley – FEAT of BC member and Political Strategist

Please RSVP to www. featbc.org and forward this notice to anyone you think will be interested.

FEAT of BC: " To see justice is done"

“Paralysis by Analysis” - FEAT BC Comment On Harper Government National Autism Symposium

In Canada FEAT of BC has been a leader in fighting for ABA intervention for autistic children. The fight has been waged in several forums legal, media and increasingly the political arena. In this press release concerning the invitation only National Autism Symposium FEAT BC calls the Symposium what it is - an otherwise meaningless tool to create a false impression of action by a Conservative government which is outrageously indifferent to the plight of autistic children in Canada and, by comparison to the autism efforts of national governments of the United States and Australia, an international embarrassment.

November 7, 2007

“Paralysis by Analysis”


Vancouver, BC – Canada’s no longer so new Conservative government has convened a so-called ‘National Autism Research Symposium’ in Toronto later this week. “For what purpose one wonders,” asks Jean Lewis, a founding director of FEAT-BC [Families for Early Autism Treatment of BC]. “Like the ‘Child Health Summit’ held in Ottawa last April, this is another invitation-only talk-fest. It is designed to produce photo-ops and sound-bites that assist the government in a cynical exercise aimed at manufacturing a societal consensus concerning an approach to autism treatment and its funding; one that suits its transparently manipulative agenda. The exercise is sure to fail.”

This month marks the third anniversary of the Auton decision by the Supreme Court of Canada, in which the jurists stated unequivocally that the question of funding for autism treatment was for parliament and the legislatures. “In three years, all that Canada’s myopic political class and their blinkered bureaucratic acolytes have produced has been delay, disingenuous news releases and, in the case of Ontario, outright mendacity,” states Dr. Sabrina Freeman, founder and executive director of FEAT-BC. “In three years, how many children have been diagnosed with this devastating condition? How many opportunities to provide substantive help, and to learn, have been lost? How many families have come asunder? How much needless suffering has been inflicted, all due to a lack of political will to do the right thing?” While the federal government and its apologists parrot the public relations mantra that ‘more research is necessary’, Canadian courts found, over three years ago, that science-based, proven effective, treatment for autism is available.

In 2006, the United States Congress voted unanimously to put $945 million into combating autism. Recently, the Australian national government has pledged $190 million to this cause. Why is our federal government out of step? Could it be because autistic children and their exhausted parents have to date been absent from the electoral battlefield?

If so, that’s about to change, according to Lewis. “The reckless disregard of this Conservative federal government with respect to these disabled children and their desperate, and often destitute, families verges on the criminal,” says Jean Lewis. “Their callousness is breath-taking and will, come the next federal election, be met with a perfect political storm. That’s not a threat, it’s a promise.”

For further information, contact: Jean Lewis at 604-925-4401 or 604-290-5737, and jean.lewis@telus.net .

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