Jaden Lake's Autism on the Hill Rally - Well Done Jaden!

Edmonton MP Mike Lake, whom I have met (at IMFAR 2012 in Toronto) and communicated with a few times about autism in Canada, have different perspectives on the proper role for Canada's national government in addressing Canada's autism crisis.  The government of Stephen Harper, of which Mike Lake is a member,  is not a strong supporter of Canada's national medicare system generally and has done nothing to advance in a meaningful way the National Autism Strategy advocated for by former and present opposition MP's Andy Scott,  Peter Stoffer, Shawn Murphy and Glenn Thibeault and by Senator Jim Munson.   I know though that Mike Lake is a dedicated father and a strong advocate for his 17 year old autistic son Jaden, who appears to have many similarities to my own son with autism of the same age.  I enjoy seeing Jaden in television and video appearances and was pleased to read the Ottawa Citizen article about the Autism on the Hill Rally and the pictures featuring Jaden Lake.

Thank you for advocating for autism awareness and services Jaden! Well Done!

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Glenn Thibeault's REAL National Autism Strategy

In the past 36 hours I have criticized CASDA's claims to be advocating for a National Autism Strategy and to be presenting a unified national autism voice.  Lawrie Mawlam of CASDA, a conscientious and courteous individual with whom I have had the privilege of talking in recent months,  has taken some objection to my criticism and I thank her for expressing her opinions so forthrightly.   I hope though that CASDA will consider the criticisms of their efforts before rejecting them defensively.  I also ask CASDA, and any one else purporting to advocate for a National Autism Strategy to consider and support the private members bills of Sudbury MP Glenn Thibeault. The two bills express a clear and coherent National Autism Strategy that would be great benefit to autistic Canadians and their families and that is consistent with the efforts by many Canadians seeking a REAL National Autism Strategy for many years before CASDA and its constituent elements began seeking a national approach to autism.

I recommend that CASDA, Conservative MP Mike Lake,  and all others seeking a real and meaningful national autism strategy support, and encourage their members of Parliament to support, Glenn Thibeault's private member autism bills as described on Mr. Thibeault's site:

"THIBEAULT RE-INTRODUCES AUTISM LEGISLATION


2011 06 15


OTTAWA – Today MP Glenn Thibeault (Sudbury) re-introduced two Private member`s Bills designed to assist individuals diagnosed with autism spectrum disorders.


The first Bill would amend the Canada Health Act to include Applied Behavioural Analysis (ABA) and Intensive Behavioural Intervention (IBI) as medically recognised treatments for individuals living with autism spectrum disorders.


The second would create a National Strategy for individuals living with autism spectrum disorders, therefore ensuring that these individuals would receive the highest level of care, regardless of which region of Canada they live in.


“Far too many Canadians and their families are coping with autism spectrum disorders without adequate support from any level of government” said Thibeault. “Together, these two Bills would ensure that all Canadians, irrespective of where they live, have access to the most appropriate forms of care and extended health services.”

“With negotiations between the provinces and federal governments on the Canada Health Accord starting in 2014, I am calling on the Government to implement the provisions of these bills to ensure that individuals suffering from autism spectrum disorders are properly covered by the Accord.”

Autism spectrum disorders are a spectrum of psychological conditions, including autism and Asperger’s syndrome, which are characterised by an impairment of social interaction, restrictive interests and repeated behaviours. Currently, around 1 in 200 Canadians – representing roughly 190,000 Canadians - are estimated to have autism spectrum disorders. Incidence rates have been on the rise over the past decade, with the prevalence rate in children estimated to be 1 in 165.

-30-

For further information, please contact:

Alex Bushell, Parliamentary Assistant (Glenn Thibeault): 613-996-8962 or glenn.thibeault.a2@parl.gc.ca"

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CASDA National Autism Strategy Is Not A REAL National Autism Strategy: It Does Not Help Canadian Autistic Children and Adults

In looking at the National Autism Strategy information from a CASDA (Canadian Autism Spectrum Disorders Alliance) conference held in Ottawa on June 8 2011, and which I have posted following this comment,  I see that there is the suggestion for expansion of tax relief for autism families. That is certainly a specific, concrete step that will help some families with autistic children. Beyond that though I don't, with all due respect, see anything being proposed to assist autistic children, regardless of where they live in Canada, to receive evidence based effective early intervention, yes that still means ABA, a real education and for the many who will require it, decent, autism specific residential care and treatment as adults.

Early autism intervention across Canada resulted from a wave of focused determined parents advocacy which began over a decade ago. It did not result from conferences of persons building careers in politics or charitable bureacracies or attending subsidized conferences in Banff or Ottawa. 

I recommend that this organization stop pretending and start getting serious about helping with early intervention, education, adult residential care and treatment for autistic Canadians. Sorry I if sound harsh but these types of conferences, with their timid agendas,  have accomplished nothing over the past 10 years. Pretending to help is worse than doing nothing at all. It creates the illusion that something is being done when that is not the case.

Conservative government MP Mike Lake, to his credit, did provide  links to parliamentary sites if you are interested in following autism bills introduced by Sudbury NDP MP Glenn Thibeault who has been a determined advocate for a real National Autism Strategy for several years.  My final comment is to recommend to Mr. Lake and other attendees at the CASDA conferences to fight for a real National Autism Stategy as Mr. Thibeault has done along with fellow NDP member Peter Stoffer and former Liberal MP Shawn Murphy.

"In 2007, Autism Canada spearheaded the Canadian Autism Spectrum Disorders Alliance (CASDA) and today sits on the Leadership Committee. On June 8, 2011, Laurie Mawlam, the Executive Director at Autism Canada, was in Ottawa with the others on the CASDA Leadership Committee advocating for a National Autism Strategy. Please find below the notes from that meeting, including the individuals the Leadership Committee met with and a synopsis of their conversations.

  

Connor Robinson, Canada Revenue Agency

• Broadening the interpretation of existing categories of eligible expenses under the Medical Expenses Tax Credit to include more expenses often faced by families with a child with an Autism Spectrum Disorder
• Adding Autism Spectrum Disorder-related expenses to the list if eligible expenses under the Medical Expenses Tax Credit
• Clarifying the rules and procedures of the audit process                    

Lisa Belzak, Epidemiologist, Public Health Agency of Canada 

• The development and design of a National Surveillance System for Developmental Disorders, including Autism Spectrum Disorders
• The creation of a nomination committee to create an advisory committee for the National Surveillance System
• The creation of an advisory committee for the National Surveillance System

Nathalie Gendron, Assistant Director, Institute of Neurosciences, Mental Health and Addiction, Canadian Institute of Health Research 

• The current levels of funding for research in Autism Spectrum Disorders
• New developments that are in the works that should be made public shortly

The Honourable Jim Munson, Senator, Ottawa-Rideau Canal 

• Raising awareness of Autism Spectrum Disorders among Senators and Members of Parliament
• The reintroduction of Senator Munson's bill honouring Autism Awareness Day 

The Honourable Mike Lake, Member of Parliament, Edmonton-Mill Woods-Beaumont 

• Reviewed outcome from meetings of the day
• Discussed Mike playing a role in reaching out to other MPs that have a family member with an ASD, to increase the base of support for a federal ASD agenda
• Reminder from Mike that the following website permits us to follow the progress of bills related to ASD -www.parl.gc.ca
• • There are presently two bills dealing with Autism Spectrum Disorder, which are being introduced by the Member of Parliament for Sudbury, Glenn Thibeault (NDP).
• • Bill C-218: http://www.parl.gc.ca/LegisInfo/BillDetails.aspx?Language=E&Mode=1&billId=5079448
•      Bill C-219: http://www.parl.gc.ca/LegisInfo/BillDetails.aspx?Language=E&Mode=1&billId=5080253
  
  
  These meetings were an opportunity for CASDA to reinforce the importance of action on the federal level in the area of Autism Spectrum Disorders and share our vision that all Canadians with an Autism Spectrum Disorder have full and equal access to the resources that they require to achieve their full potential.
  
  
  Thank-you for joining CASDA to ensure that our vision becomes a reality. Our strong, collective voice for the Autism Spectrum Disorder community at the federal level is making a difference!

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Liberal and NDP Autism Advocates in Election 2011

Glenn Thibeault            Peter Stoffer           Ruby Dhalla           Brian Murphy

Although our federal government has done very little to help autistic Canadians receive effective evidence based early behavioural intervention, autism specific education and accommodation or decent residential care for autistic adults it is not for lack of trying by several members of parliament who are running again in Election 2011.   Peter Stoffer,  a Nova Scotia (Sackville-Eastern Shore) NDP candidate,  has been involved in national autism advocacy for many years and co-sponsored, with former Fredericton MP Andy Scott, a motion seeking to implement a national autism strategy.  Glenn Thibeault an NDP candidate from Sudbury Ontario also brought a private members motion in support of autism.  During debates in the House of Commons  both New Brunswick (Moncton)  Liberal candidate Brian Murphy and Ontario (Brampton-Springdale) Liberal candidate Ruby Dhalla gave strong speeches on behalf of autistic Canadians. 

This autism dad and advocate hopes that all of these strong autism advocates are re-elected on May 2. 

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#elxn41 Autism Request

My #elxn41 autism request is  a request to the Canadian electorate.  Please listen to Senator, and long time autism advocate, Jim Munson  about the need for action on behalf of autistic Canadians who deserve better, who deserve national treatment standards. and who deserve effective treatment regardless of where they live in Canada.

Take action, during this election, to vote for a candidate who will support autistic children and adults in Canada by voting for a candidate who will support a bill to expressly and specifically include autism spectrum disorders, soon to be grouped together and  known, in the DSM5,  as Autistic Disorder, in the Canada Health Act or in a federal Act specifically dedicated toward dealing with Canada's national autism crisis.

As Senator Munson said in an Ottawa Citizen article, Autistic Canadians deserve better,  published on April 2, World Autism Awareness Day:

"In 2007, the Standing Senate Committee on Social Affairs, Science and Technology released a report titled "Pay Now or Pay Later -Autism Families in Crisis," a comprehensive study of autism issues. As a Senator who initiated the study and a member of that committee, I heard heartwrenching testimony from parents so desperate to get help for their autistic children.


Many had uprooted their lives and moved to places where care options were significantly better than what they could access in their own home province.


Two recommendations from the report that I consider most crucial are national standards for treatment and research, and a national strategy for equal treatment and services across the country. Courageous actions are now needed to deal with this emerging crisis.


It isn't much to ask that a federal minister sit down with provincial counterparts and representatives from autism organizations to devise a better way to operate. It is time for federal politicians to take a leadership role.


Such courage would rouse this nation and render much-needed comfort to the thousands of Canadians affected by autism.

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Renewed Calls for a Real National Autism Strategy

Canada does not have a real national autism strategy but it is not for lack of trying by some dedicated federal politicians  including  Liberal  Senator Jim Munson and  NDP MPs Glenn Thibeault and Peter Stoffer who     have renewed calls for a real National Autism Strategy for Canada.

The struggle for a National Autism Strategy began many years ago including here in New Brunswick where Andy Scott issued a public call for a National Autism Strategy on October 18 2003:

""Fredericton MP Andy Scott said Saturday he has been lobbying prime- minister-to-be Paul Martin for a federal program to help young children with autism. "I desperately want a national autism strategy - and let me just assure you that Paul Martin knows it," Mr. Scott told supporters at a party celebrating his 10th anniversary as an MP in Fredericton Saturday evening.

Early work by therapists with young autistic children, Mr. Scott said, can make a big difference in their capacity to lead fulfilling lives as adults - and can save money in the long run. But the costs of starting such early intervention programs are high and should be borne directly by Ottawa rather than each individual province, he said. "We have responses and therapies and so on that I genuinely believe can work," he said. "You're going to save millions of dollars over the lifetime of an autistic adult. If you can get in at the front end, you can make enormous progress.

"But it's very expensive, and there's not a lot of stuff being added to Medicare, generally - that's why we have catastrophic drug problems and other things," he said. "In the province of New Brunswick, P.E.I., or even Quebec or Ontario it's very, very expensive. The feds are going to have to step up to the plate." "

Tali Folkins, Telegraph Journal, October 20, 2003

Mr. Scott was successful in getting a commitment by the federal government to a National Autism Strategy recognized in principle but the strategy at that time did not commit to the hard action necessary to provide assistance to all parts of Canada in providing early autism intervention programs.  Even the National Autism Symposium which came out of that commitment was a sham, pure and simple, a sham.  Public autism advocates, including me were excluded from the Symposium.  Those in attendance were all screened by federal health agency involved with organizing the event to ensure that they would go along with the government's do nothing to help autistic children agenda.

Senator Munson has been literally crossing the country for several years fighting for a real national autism strategy  and he has not given up on his efforts.  He organized and  spoke in Ottawa yesterday at an event to mark World Autism Awareness Day this Friday, April 2, 2010:

“There’s no reason why we cannot treat autism within our own communities equitably across the nation,” said event organizer Senator Jim Munson. “There is a crisis and I know that we can come up with a plan to deal with the issue that is so important to all of us.”

MetroNews.ca, Ottawa, March 31, 2010

The event was also co-hosted by  NDP MP's Glenn Thibeault and Peter Stoffer who spoke at the event.  Mr. Thibeault also  introduced a private member's bill, seconded by tireless autism advocate Peter Stoffer,  to create a real national autism strategy, one that would actually help autistic children and their families by having the federal government work with the provinces:

"“Autism doesn’t discriminate based on geography.  It’s time for federal leadership to ensure that no matter where a child is born with autism, they receive equal treatment and services of the highest caliber.”

Glenn Thibeault,  March 30 2010

“I’m very pleased that my colleague has done this.  We’ve been asking for many years for the federal government to work with the provinces to develop a national autism strategy. I hope this will become a reality in the near future.”

Peter Stoffer, March 30 2010

Senator Munson and MP's Thibeault and Stoffer have been fighting for a National Autism Strategy for several years.  

As World Autism Awareness Day approaches this "autism dad" says thank you.

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Autism Action NOW! Contact Your MP to Support Bill C-360 An Act to amend the Canada Health Act (Autism Spectrum Disorder)

Contact your MP - TODAY - and urge him or her to support Bill c-360

An Act to amend the Canada Health Act (Autism Spectrum Disorder)

Canada, like the US and the UK, is experiencing a national autism crisis. In the UK the latest figures report that 1 in 60 children have, or will have, an autism spectrum diagnosis. In the US the figure is reported at 1 in 150. Both of these figures are shockingly higher than the 1 in 1000 figure that existed prior to the change in diagnostic criteria in the 1993-4 DSM revision period. Even since those revisions which do account for a significant increase the numbers have risen dramatically. It is long past time to stop pretending that we are not experiencing an autism epidemic.

Here in Canada it is long past time that we stopped pretending that we are not experiencing a national autism crisis with families relocating from province to province in search of funded effective ABA treatment for their children and ABA based education when they reach school age. This is not a partisan political issue. Both Liberal and Conservative governments have ignored the autism crisis in Canada. NOW is the time to do something about it. Andy Scott, Peter Stoffer, Shawn Murphy and Senator Jim Munson have been valiant advocates begging their political colleagues to take autism action. Now Glenn Thibeault, Sudbury NDP MP, has moved to introduce Bill C-360, an Act to amend the Canad Health Act (Autism Spectrum Disorder).

Canada's National Autism Crisis is a matter which ""goes beyond local or provincial concern or interests and must from its inherent nature be the concern of the Dominion as a whole" as the Privy Council said in upholding the POGG, Peace Order and Good Government, constitutional authority of the federal government to act to address national issues beyond the scope of the province's ability to address. The National Autism Crisis begs for a national solution. The Government of Canada has to stop ignoring this crisis.

Ask your MP to deal with Canada's National Autism Crisis and support Bill C-360. Your MP can be contacted via the link provided at this site:

http://webinfo.parl.gc.ca/MembersOfParliament/MainMPsCompleteList.aspx?TimePeriod=Current&Language=E

.......................................................................................................................................................................

40th PARLIAMENT, 2nd SESSION
EDITED HANSARD • NUMBER 040
Friday, April 3, 2009

Canada Health Act

Mr. Glenn Thibeault (Sudbury, NDP) moved for leave to introduce Bill C-360, An Act to amend the Canada Health Act (Autism Spectrum Disorder).

He said: Mr. Speaker, I would like to thank the seconder of this bill, the hon. member for Nickel Belt.

I am pleased today to introduce this private member's bill, an act to amend the Canada Health Act, and to look at how we can include autism spectrum disorder in it.

Yesterday was World Autism Awareness Day. I still wear my awareness pin proudly. We as parliamentarians need to work together to provide individuals with ASD and their families with the right supports. IBI training is a step in the right direction, but we need a national strategy.
I look forward to the day when all parties can stand together and show our support for individuals and families dealing with autism.

(Motions deemed adopted, bill read the first time and printed)


SUMMARY

The purpose of this enactment is to ensure that the cost of Applied Behavioural Analysis (ABA) and Intensive Behavioural Intervention (IBI) for autistic persons is covered by the health care insurance plan of every province.


BILL C-360
An Act to amend the Canada Health Act
(Autism Spectrum Disorder)

Her Majesty, by and with the advice and consent of the Senate and House of Commons of Canada, enacts as follows:

1. Section 2 of the Canada Health Act is renumbered as subsection 2(1) and is amended by adding the following:

(2) For the purposes of this Act, services that are medically necessary or required under this Act include Applied Behavioural Analysis (ABA) and Intensive Behavioural Intervention (IBI) for persons suffering from Autism Spectrum Disorder.


"Peace, Order and Good Government" (POGG)

In particular, the "national dimensions" (originally called "national concerns") doctrine was an alternate means of applying the POGG powers that found use in the mid 20th century. It allowed Parliament to legislate on matters that would normally fall to the provincial government when the issue became of such importance that it concerned the entire country.

The doctrine originated from a statement by Lord Watson in the Local Prohibition case, wherein he stated:

"Their Lordships do not doubt that some matters, in their origin local and provincial, might attain such dimensions as to affect the body politic of the Dominion, and to justify the Canadian Parliament in passing laws for their regulation or abolition in the interest of the Dominion".

After this case the doctrine was completely ignored until 1946 when Viscount Simons brought it back in the case of Ontario v. Canada Temperance Foundation, [1946] A.C. 193 (P.C.). The test as stated in Temperance Foundation was whether the matter "goes beyond local or provincial concern or interests and must from its inherent nature be the concern of the Dominion as a whole".

Find your M.P. at:

http://webinfo.parl.gc.ca/MembersOfParliament/MainMPsCompleteList.aspx?TimePeriod=Current&Language=E


autism

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