Best Autism Tweet of the New Brunswick Election From Liberal Kelly Lamrock

  " klamrock: Still more to do on #autism file. We'll work w/parents to address adult care incl community-based residential care #nbvotes

4 days ago via Mobile Web · Reply · View Tweet "

Over the last 4 years the Liberal government honored a commitment by Premier Graham to provide  4 years of UNB-CEL Autism Intervention Training to classes of approximately 100  teacher assistants and resource teachers a year over the objections of some senior Education officials, who actually knew little about autism. They also faced opposition from some union officials who opposed autism specfiic training for TA's. I was involved in many of the discussions and I can tell you from personal knowledge that it was a very tough fight to do the right thing for New Brunswick's autistic students. I can tell you from very direct, personal involvement that Kelly Lamrock and the Shawn Graham Liberal government honored their commitment and put the interests of NB's autistic students ahead of vested adult interests.

When Kelly Lamrock says that a Liberal government will work with the parents to address the address adult care including community based residential care this father of a severely autistic 14 year old son, who has been involved very intensely with the changes that have made New Brunswick a leader in pre-school intervention and education of autistic children says ... I believe Kelly Lamrock and a Liberal government will keep their word. I believe it because I have already seen them do it.  

 

Read more »

I Am Voting Autism in the New Brunswick Election, I Am Voting Liberal

Shawn Graham, TJ Burke, Mary Schryer, Kelly Lamrock

The New Brunswick election is well under way, as the CBCNews NB Votes 2010 election countdown ticker tells us, with 22 days left until Election Day.  At this stage it is my hunch that autism services  will not receive any specific commitments from the parties.   Unless something dramatic, in the nature of a strong autism specific commitment to a new, modern residential care system for autistic adults emerges from one of the parties though this father of a severely autistic 14 year old son intends to vote Liberal.

Long before the last election took place autism groups advocated for early intervention and autism specific training for teacher assistants and resource teachers working with autistic students in New Brunswick schools. Many discussions took place with government and opposition political leaders. The then Conservative government of Premier Bernard Lord took some initial steps and Premier Shawn Graham's Liberal government developed those services substantially; particularly in New Brunswick schools.  The fact that autism advocacy groups, in direct discussion with the political leadership, played such a significant role in helping shape autism services in the schools did not always sit well with the interests of some career people in the Department of Education who opposed the changes and fought them, in some cases tooth and nail.  The changes were implemented though, after further study by then Liberal Education Minister Kelly Lamrock, and the autism commitments made by Premier Shawn Graham were honored to the great advantage of many New Brunswick students with autism disorders, including my son Conor.

Although both Conservative and Liberal governments have helped New Brunswick's autistic children in the past   autism specific commitments are not being discussed by any political party.  None of the three other parties, the NDP, the Green nor the new People's Alliance of New Brunswick have any hope of forming the next New Brunswick government.  

It is the prospect of further progress on advancing autism services, particularly for New Brunswick's adult autism population, that has me leaning strongly towards voting Liberal on September 27 2010. I will vote Liberal in the next election, in the likely absence of any autism specific commitment from the parties, because I know that the Liberal government including Shawn Graham, Kelly Lamrock, Mary Schryer  and TJ Burke, has a proven track record of helping autistic children in New Brunswick and I know from direct discussions  that they are solidly committed to helping with those with autism.  

Although I never had the opportunity to talk directly with former Conservative Premier Bernard Lord and former minister Tony Huntjens they did demonstrate a commitment to helping New Brunswick's autistic children.  Neither, however, are running in this election and Conservative leader David Alward has shown no substantial  interest in autism issues specifically, or in education, social or health issues generally.  His comments about requiring "volunteer" community service before New Brunswick students can graduate from High School cause me concern. The concept of requiring voluntary service seems illogical and contradictory. To this father of two high school sons Mr. Alward's comments also  suggest a  lack of sophisticated understanding of education issues.

The next great autism challenge in New Brunswick is to reform and modernize the residential care and treatment system for our  autistic adults.  The current group home system is inadequate for those who live there on many fronts include diet, recreation and access to treatment. The group home system as it is currently set up does not work at all for the lowest functioning autistic adults in New Brunswick who have  ended up living out their lives in psychiatric hospital wards in Saint John and Campbellton.

Current Health Minister Kelly Lamrock has stated that his department is studying, and working on the residential care system for New Brunswick autistic adults.  I know that autism groups, in which I have been included at times, have made representation on this issue. I believe Kelly Lamrock, who I have met and talked with many times, to be a  knowledgeable and trustworthy individual.  I believe that Kelly Lamrock will oversee the development of an autism specific residential care system for autistic adults.

I have   also met Premier Shawn Graham and discussed autism issues with him.  He committed to the Autism Society that his government would  train four years of classes of teacher assistants and resource teachers at UNB-CEL's autism intervention training program. Shawn Graham  kept that promise. He did so despite at times intense opposition from  interests within the Department of Education.

Like many New Brunswickers I was surprised and disappointed with Premier Graham's  reversal of his campaign commitment concerning NB Power.  I expressed my disappointment publicly but I think that Premier Graham entered into the NB Power deal  because he genuinely believed it was in the best interests of New Brunswick and felt that his first commitment, his first obligation as Premier,  was to govern in the best interests of New Brunswickers.    I believe that as a Premier he learned much from, and grew from,  that experience. And at the end of the day autism issues really carry my attention and Premier Shawn Graham has done much to help autistic children and students.

When we make our marks on election day it is for a local candidate in each riding. In this riding TJ Burke is the Liberal candidate and his personal and professional qualities are well known.  I know him as an MLA who I believe has represented our riding well in the Legislature. I know him as a very capable lawyer.  TJ Burke has always been very supportive on autism issues and even while the Liberals were in opposition he went out of his way to stop and talk with me at autism rallies I was involved with in Fredericton. I have talked with TJ several times about, and  know that he has been genuinely interested in, adult autism issues, and would be, if the Liberals are re-elected,  a strong supporter of improvements to New Brunswick's autistic adult residential care system.

On September 27  I will not be casting a protest vote or voting in anger. My vote will not be shaped by cynicism.  I will be voting for the party that I believe is most likely to help New Brunswick's autistic adults with a modernized autism specific adult residential care system, hopefully one with an enhanced facility located centrally in Fredericton near the autism expertise at UNB and the Stan Cassidy centre. I will be voting for the party that I know to be committed to, and knowledgeable about, autism generally. 

I mean no  disrespect toward the other parties, leaders or candidates.  But on September 27 I will be voting Autism.  I will be voting Liberal. 

Read more »

Autism Residential Care in NB from 2005-2010: Nothing Has Changed

I have been publicly proud of this beautiful province of New Brunswick when it comes to helping autistic school children and pre-schoolers.  For those age groups I would stack New Brunswick's autism services and real accommodation up against any jurisdiction in North America, even better funded jurisdictions like oil rich Alberta and traditional Canadian economic hub Ontario.  When it comes to taking care of autistic youths living with the challenges of autism and Aspergers though New Brunswick is in very bad shape and has absolutely nothing to brag about.  

In New Brunswick we have an ad hoc system of residential care which has seen New Brunswick adults with autism shipped out of province far from families who love them. We have seen some NB adults with autism living on a hospital ward (information conveyed to me but unconfirmed). We have seen NB autistic youth and adults whose aggressive behaviour even with family members end up in jail facing assault charges.  On some occasions family members are urged by Social Development workers to press charges since the Criminal process will often result in a psychiatric assessment not otherwise available from public funds. The most severely affected by autism reside in a psychiatric hospital in the non central, Northwestern corner city of Campbellton again far from most family members living out their lives. I have visited that hospital and saw caring people in charge but people who have to deal with limited resources.

Things to day are not much different than they were 5 years ago for New Brunswick's autistic adults severely affected by autism who require residential care and treatment. 4 1/2 years ago New Brunswick was infamous for housing an autistic youth charged with no wrongdoing on the grounds of a youth correctional center in Miramichi pending his transfer to the Spurwink facility in the State of Maine.  As the Toronto media headlines faded away, so too did the apparent willingness of government to provide a decent residential care system for New Brunswick adults with autism. I have been part of a contingent of autism representatives that has surveyed the needs of our autistic population and presented our suggestions to government to consider on severeral occasions.  Still no action.  Still nothing to help our autistic  youths and adults in need of decent residential care and treatment.

Following is a Toronto Star article on the incident 5 years ago that saw the autistic youth residing on the grounds of a correctional facility because there was nowhere else for him to go in the Province of New Brunswick.

Autistic boy kept in New Brunswick jail

No other place for him to stay 13-year-old must go to U.S. hospitalNo other place for him to stay
13-year-old must go to U.S. hospital

The Toronto Star, KELLY TOUGHILL, ATLANTIC CANADA
BUREAU, Oct. 19, 2005

HALIFAX—A 13-year-old autistic boy now living in a New Brunswick jail compound will be sent out of Canada because there is no home, hospital or institution that can handle him in his own province Provincial officials confirmed yesterday the boy is living in a visitor's apartment at the Miramichi Youth Centre and will be moved to a treatment centre in Maine by November.

They stressed he is not under lock and key, has no contact with other inmates and is living outside the high wire fence that surrounds the youth detention centre.Nevertheless, the jailhouse placement and the transfer to Maine have outraged mental health advocates and opposition critics.

"They put this boy in a criminal facility because he is autistic," said Harold Doherty, a board member of the Autism Society of New Brunswick"Now we are exporting our children because we can't care for them. This is Canada, not a Third World country.``We are supposed to have a decent standard of care for the sick and the vulnerable, but we don't." 

Liberal MLA John Foran echoed his concern. "This boy has done nothing wrong, is not the subject of any court order, but is in a penal institution." Provincial officials yesterday insisted critics are misrepresenting the nature of the boy's situation and that in fact the province has done everything it can to help him. "This individual is not being held, and is not incarcerated," said Lori-Jean Johnson, spokeswoman for the family and community services department. "He has housekeeping, bath and a separate entrance. We are just utilizing existing resources."

Privacy laws prevent officials from discussing anything that would reveal the boy's identity, including details of his previous living situation and the whereabouts of his parents. This much is known: He suffers from a severe form of autism and is a ward of the state, under the guardianship of the minister of family and community services. He was living in a group home until recently, but became so violent that he was judged a danger to himself and others. At a psychologist's recommendation, he was moved to a three-bedroom apartment on the grounds of the Miramichi Youth Centre, a prison for about 50 young offenders. Two attendants from a private company watch the boy around the clock, at a cost to taxpayers of $700 a day. Johnson said she does not know any details of his care. 

Doherty said the jailhouse placement and move to Maine highlight the desperate need for better services for autistic children in New Brunswick and across Canada. He said staff at most group homes in New Brunswick aren't trained to deal with autism and don't understand the disorder. "If you don't understand autism, things can become very bad very quickly," said Doherty, who has a 9-year-old son with the disorder. "We have been pushing for (better facilities) in New Brunswick for several years. This is not a crisis that has popped up in the last two days. Residential care is a critical element for these people and it is not being provided."

Johnson said the provincial system of group homes and institutions that care for children and adults with psychiatric disorders and mental disabilities works for most people. "We do have existing resources, but once in a while, there will be an exception. Here, we are looking at a very extreme case." The boy will be moved to an Augusta, Me., treatment centre at the end of the month, said Johnson.

The centre, run by a non-profit group called Spurwink, specializes in dealing with autistic adolescents. A Spurwink representative did not return a phone call from the Toronto Star. Provincial officials could not detail the cost to keep the child at Spurwink, nor did they have information about why he's being sent to Maine, rather than a Canadian facility in another province.

The political standings have changed during the past 5 years in New Brunswick.  Mr. John Foran has been part of a Liberal government in power for almost 4 years now.  The Liberal government of Premier Shawn Graham,  especially  former Education Minister Kelly Lamrock, has done much to improve the lives of New Brunswick autistic students and pre schoolers.  But for New Brunswick's autistic youth and adults in need of decent residential care and treatment it is a different story.

5 years ago things were desperate. Little has changed since then for New Brunswick's autistic youth and adults who have been so badly in need, for so long,  of a modern comprehensive residential care and treatment system.

autism

Read more »

CBC Autism Overview and New Brunswick

(CBC Image)

CBC has provided a good general overview of Autism Disorders in Canada in Autism Making sense of a confusing world. The overview includes a description of autism disorders, some autism history (Kanner and Asperger) and treatment. There is a good review of the funding and age restrictions for ABA services for autism in each province in Canada.

There is one important omission and that is with respect to New Brunswick. Here we have a 5 year age cut-off as stated. But New Brunswick has begun to provide ABA intervention in our schools. This has been done by training Teacher Aides and Resource Teachers at the University of New Brunswick - College of Extended Learning Autism Intervention Training Program in Fredericton. A couple of classes of the UNB-CEL AIT have graduated, another is about to, and the government of Premier Shawn Graham and Education Minister Kelly Lamrock have committed to provide another 3 years of training for TA's and Resource Teachers through UNB-CEL.

The UNB-CEL Autism Intervention Training Program is a key part of this approach. The program was developed through the University of New Brunswick with input from the Autism Society New Brunswick. This program is critical to ensuring the quality and integrity of the ABA and other autism services provided in the schools. By training TA's and Resource Teachers the education system's existing human resource system is used to the maximum extent possible. Some Autism Support Workers and Clinical Supervisors have been recruited by the Education Department itself. These people have been trained through a parallel program offered by UNB-CEL so the transition into the Education system is relatively smooth.

There is with any such development resistance. Some senior Education Department careerists have preferred to struggle against the UNB-CEL training in favor of "in-house" training combined with a commercial internet training program but, to date, they have not prevailed. The CUPE local representing Teacher Aides have also filed grievances on behalf of its members since not all current TA's meet the UNB qualifications for admission to the Autism Intervention Training Program. As a labour lawyer I understand the role of the Union in protecting ALL of its members interests but the long term interests of the greatest number of their members is best protected by providing the autism training to those members who qualify for admission. And I would expect that any labour arbitrator hearing these grievances would give the greatest weight to the best interests of the child principle in arbitrating these grievances - in these cases the best interests of children with autism disorders.

Apart from the omission of autism services in New Brunswick's education system the CBC review is a balanced, comprehenseive and informative overview of autism disorders and autism services in Canada.

autism

Read more »