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‏إظهار الرسائل ذات التسميات Tony Clement. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات Tony Clement. إظهار كافة الرسائل

Stephen Harper Fails to Honor National Autism Strategy Commitment

On Friday long time autism champion and Charlottetown MP Shawn Murphy questioned federal Conservative Health Minister, Leona Aglukkaq, below left, on the Harper government's failure to honor its commitment to convene a meeting of the provincial health ministers with the objective of developing a national strategy on the treatment and support of Canadians with autism.






Instead of directly answering the question Health Minister Aglukkaq dissembled and did not acknowledge either the commitment to convene a meeting of Canada's health ministers to develop a national autism strategy or the Harper government's failure to honor that commitment.


It is time that politicians like Stephen Harper and Leona Aglukkaq started earning the designation "Honourable" that comes with their positions and start honoring their commitment to autistic Canadians and their families to convene a meeting of provincial health ministers and develop a real national autism strategy to provide for treatment and support for autistic Canadian children and adults.

Please Prime Minister Harper, and Health Minister Aglukkaq, honor your commitment to autistic Canadians and their families.

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Health

40th PARLIAMENT, 2nd SESSION

EDITED HANSARD • NUMBER 020

Friday, February 27, 2009

Health


Hon. Shawn Murphy (Charlottetown, Lib.):
Mr. Speaker, on December 5, 2006, every member of the House, including the Prime Minister, supported Motion No. 172. The motion directed the minister of health to convene a meeting of the provincial health ministers with the objective of developing a national strategy on the treatment and support of Canadians with autism. Unfortunately, the previous minister of health and the present Minister of Health have totally ignored this motion.

My question is for the present Minister of Health. This is a very important question and Canadians are looking for an answer. How long does the government intend to ignore Canadian families dealing with autism?

Hon. Leona Aglukkaq (Minister of Health, CPC):

Mr. Speaker, I recognize that autism is an important health and social issue that represents challenges to many Canadian families. I can assure the House that the government is showing leadership by focusing attention on building the autism evidence base that future actions by our partners will be well informed.

We are delivering results. In 2007 we announced the funding for a chair of autism research and innovation at Simon Fraser University and, over the last seven years, more than $27 million have been spent on related research by CIHR.




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Nova Scotia Refuses To Help All Autistic Children

Despite calls for expansion of its successful autism early intervention program the government of Nova Scotia is refusing to expand the program to help those autistic children who are excluded from treatment under Nova Scotia's immoral lottery system for assigning spaces in the program. When asked by Liberal MLA Greg Gavine "Why isn’t the government committing this money to help families like Jim Young and their children coping with autism?" Health Minister Chris d’Entremont responded that that there’s lots of competition for money.

Apparently NS Health Minister d'Entremeont subscribes to the "Do Nothing For Autistic Children" principles of former federal Health Minister Tony Clement.




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Canada's Autism Wastelands - Saskatchewan, Ontario, Nova Scotia

On September 02, 2007 I described Saskatchewan as Canada's Autism Wasteland. In fact Canada has at least three autism wastelands although Saskatchewan still ranks as the worst province in Canada for provision, or more accurately, non-provision, of autism services.

1. Saskatchewan

As stated in Canada's Autism Wasteland To Take First Step Forward on September 02 2007, Saskatchewan, at that time, was the only province in Canada without a program for provision of autism services. 14 months later nothing has changed according to Theresa Savaria, the executive director of Regina's Autism Resource Centre. In Man running to raise awareness about autism spectrum disorder , Leader Post, October `17, 2008, Savaria states:

"Parents can go on the Internet and see that everyone is recommending intensive intervention, but Saskatchewan is the only province that doesn't have that"


2. Ontario

Ontario is notorious for its lengthy waiting lists for provision of autism services. As reported on April 29, 2008 in the Toronto Star:

The wait list of autistic children who are eligible to receive intensive behavioural intervention therapy, or IBI, reached 1,148 on March 31, up from 985 last year.

More than 1,400 children were receiving IBI services as of March 31, according to newly released government figures.

But the long waits have forced many parents to drain their savings and go into debt to pay for the therapy the province has promised to provide, said NDP critic Andrea Horwath.

3. Nova Scotia

Nova Scotia does provide some autism treatment services but not for everyone. In Nova Scotia a lottery system is used to determine which autistic children receive autism treatment. Nova Scotia lost two medical professionals, a husband and wife, who moved to Manitoba to seek ABA treatment for their autistic child.

In Helping kids with autism shouldn't be a lottery Bobby-Lynn Hall reported that:

In Nova Scotia, there are children receiving Early Intensive Behaviour Intervention, a treatment proven to improve vocabulary and social skills and reduce behaviour issues in most children with ASD, but it's based on a lottery system.

We all talk about how great it would be to win the lottery and what we'd spend the money on. But what if your child's future was dependent on winning a lottery and what if you didn't win? Would you be thinking maybe if you had picked a different number, or maybe if you had bought your ticket last week instead of this week, that maybe things would have been different and maybe your child would be the one receiving the treatments that could help him experience things that otherwise may not have been possible?

I agree with Ms Hall. To me Nova Scotia's lottery system is an immoral attempt to avoid the responsibility for providing autism treatment to all those who need it without accepting responsibility for excluding those unfortunate enough to draw the lottery number. It is both immoral and cowardly.

Canada's Autism Wastelands are evidence of the need for a National Autism Strategy in Canada, a real National Autism Strategy, not the phony PR efforts of the Harper government and its alleged Health Minister Tony Clement.

Medicare for Autism Now-BC Campaign Rally and Ontario Tour

Medicare for Autism Now Society



Medicare for Autism Now-BC Campaign Rally and Ontario Tour

Vancouver, BC:- The Medicare for Autism Now Society today announced it will be holding a campaign rally on Saturday, October 4, 2008 beginning at 2:00 p.m. at the Eaglequest Golf and Country Club, 7778 - 152nd St. in Surrey. This rally is part of the society’s “Two Percent Solution” campaign aimed at influencing the electoral outcome in 14 targeted federal constituencies across the country.

“In its Auton decision, the Supreme Court of Canada told parents of autistic children to “get political” if they wanted to see their children no longer be orphans of the Medicare system,” states Jean Lewis, a founding director of the Medicare for Autism Now Society. “We’ve taken the judiciary at their word and have launched a nation-wide campaign to elect MPs, regardless of which political party holds office following this election, who will vote for legislation that enshrines the treatment of autism under Medicare because it is the morally right and economically sensible thing to do.”

The rally is intended to attract parents of autistic children and their supporters from across Metro Vancouver. Its aim is to promote a grassroots campaign that will help elect candidates to Parliament who support Medicare for Autism Now!

“As a Canadian who does not have an autistic child, but who believes strongly in the fundamental values of this country, I am disgusted by the federal government’s willful indifference to the plight of these children and their families,” says Scott Hean, who will be master of ceremonies at the rally.


Representatives of Medicare for Autism Now will be traveling to Ontario the next day for a week of campaigning in target constituencies, including Parry Sound-Muskoka, political home to Canada’s Health Minister, Tony Clement.


For further information, contact:

Jean Lewis at 604-925-4401 or 604-290-5737, and jean.lewis@telus.net


Deborah Meredith, Conservative Candidate Vancouver Quadra, Has No Time For Autism


Deborah Meredith, Conservative Candidate, Vancouver Quadra has no time to discuss issues affecting autistic children and adults. She is too busy trying to get elected to waste her time talking to an autism advocacy group in BC until AFTER the election as shown in this response to a group who had sought an interview with Ms Meredith:




"If elected I would be happy to meet with you to talk about autism and the Canada Health Act. I am awfully busy right now trying to win this election as I'm sure you can understand."


Elections are generally the period when citizens seek answers from the candidates before deciding who to vote for. Ms. Meredith's contempt for autistic issues is matched by her party leader, the sweater guy, Stephen Harper, alleged health minister Tony Clement and Alberta Conservative Mike Lake, father of an autistic child receiving ABA in oil rich Alberta who doesn't think the federal government should ensure that autistic children across Canada receive the benefit of ABA therapy.

FEAT Nova Scotia Rep Details Nova Scotia's Autism Failure

FEAT Nova Scotia representative Jim Young has published a detailed indictment of Nova Scotia's autism failure. In Autism treatment still lags despite claims of progress Mr. Young describes, first hand, the realities faced by Nova Scotia families with autistic children who lack the ability to move to another province in search of treatment for their children.

It is "sad" that our province provides basically half of the hours of treatment universally recognized as best practice for children.

It is repugnant that children are in and out of the program in the blink of an eye, receiving a year or two of treatment in what should be a lifelong service; it is discriminatory and essentially a human rights violation to pick and choose a scant few of the thousands of persons with autism.

...

In the previously mentioned article, Health Minister Chris d’Entremont states that services for autism have grown in "leaps and bounds." Who told him that? None of the parents that I know.



Tony Clement's Autism Whopper

"Canada's Government has already begun to address the issues that individuals with ASD and their families are facing."

- Alleged Health Minister Tony Clement, The Tyee, September 1, 2008

Alleged Health Minister Tony Clement has given us quite a whopper with that one. To the extent that individuals with autism spectrum disorders have had their issues addressed in Canada it has been provincial governments, acting in response to parent advocates, that have been responsible. The federal government has done absolutely nothing of substance to help autistic individuals in Canada and Tony Clement should be ashamed of himself for pretending otherwise.

In fact the Canadian government has been counter productive, staging a sham autism conference, in an attempt to marginalize parent autism advocates, and to obscure the clear and compelling autism treatment information provided by responsible, credible American agencies like the American Academy of Pediatrics, the New York State Department of Health, the MADSEC (Maine) Autism Task Force and the US Surgeon General. And to add insult to injury the Canadian government has provided a mediocre autism web page.

Contrary to Tony Clement's claim, the truth, the honest truth, is that the Canadian government has done nothing to address the issues that individuals with autism spectrum disorders and their families are facing.

Health Minister Clement Hides In Denver But Autism Follows

Alleged federal Health Minister Tony Clement is not known for facing tough issues head on. Although he is the federal Health Minister he refuses to use the federal spending power to send dollars to the provinces to ensure that ALL autistic children receive effective evidence based treatment for their autism disorders regardless of where their parents live. Mr Clement hides behind provincial authority but does not credibly explain why federal money can't be sent to the provinces to be used for autism treatment. There is no dispute that treatment is needed and I find it hard to believe the provinces would refuse federal money to treat autistic children.

Now "Health" Minister Clement is at the Democratic Convention in Denver and avoiding difficult questions over the tragic listeriosis outbreak as reported in the Globe and Mail:

Clement's arrival in Denver on Monday drew fire from the Liberals.

"While Mr. Clement is enjoying himself at cocktail receptions at the Democratic National Convention in Denver, people back home are dying," said Liberal health critic Carolyn Bennett.

Clement fired back, saying that Agriculture Minister Gerry Ritz was the lead minister on the massive food recall that followed the listeriosis outbreak.

"Health" Minister Clement may be able to void questions about Canadians dying from listeriosis while wining and dining at the Democratic Convention in Denver but he has been unable while there to hide from autism which he routinely ignores in Canada. Both Senator Hillary Rodham Clinton and former President Bill Clinton mentioned autism in their prime time speeches Tuesday and Wednesday.

Senator Hillary Clinton, as reported on ABC news, stated:

I will always remember the single mom who had adopted two kids with autism, didn't have health insurance and discovered she had cancer. But she greeted me with her bald head painted with my name on it and asked me to fight for health care.

Former President Bill Clinton, as reported on the Wall Street Journal, stated:

I will never forget the parents of children with autism and other severe conditions who told me on the campaign trail that they couldn’t afford health care and couldn’t qualify their kids for Medicaid unless they quit work or got a divorce.

Although "Health" Minister Tony Clement is oblivious to the challenges confronting families with autistic children in Canada the same can not be said of the Senator and President Clinton. They get it. It is probably too much to hope that some of their autism awareness might rub off on our Minister Clement. But hopefully when he is not enjoying cocktails he can reflect on their words and start taking autism seriously in Canada where he is, in name anyway, our federal Health Minister.

Tony Clement's Empty Autism Rhetoric

At a stop in Big River Saskatchewan alleged federal Health Minister Tony Clement took questions on federal health care initiatives including some from Carolyn Forsey the mother of an autistic child. Ms Forsey had previously written to Health Minister Clement urging the federal government to create a strategy for autism.

Minister Clement responded, as reported on Meadow Lake Progress:

Minister Clement said that there’s some initiatives the federal government have been working on, but the partnership must be created with provincial health care entities first.

“We do have national focuses, but it’s not as if we can take over what the provincial responsibility is,” he said.

“We create a table where we can share best practices, we can work on surveillance together, on human resources together. We still focus on research end of things and the provinces focus on the treatment. That’s how our tables work. It’s the way our national cancer strategy is working and our national diabetes strategy is working.”

The fact is the current federal government of Prime Minister Stephen Harper and Health Minister Tony Clement has done little to help autistic children and adults in Canada. Constitutional authority for health care is primarily provincial. But the federal government has substantial spending power which it is not prohibited from using in health care areas. That is how we have a Canada Health Act.

Canadians do not need the federal government to "share best practices". That is pure nonsense. Best practice information is readily available on the internet and from world sources. The "national autism symposium", rescheduled from an earlier date to avoid participation from autism parent advocates, was a sham, a "facilitated" discussion with strong parent advocates excluded, the results of which do not resemble the internationally known and respected sources such as the American Academy of Pediatrics, the New York State Department of Health, the MADSEC (Maine) Autism Task Force Report and the US Surgeon General's Office.

What the federal government could do to be helpful in addressing Canada's autism crisis is exactly what is needed. It could use the federal spending power. It could loosen federal purse strings and use its spending authority to make funding available to the provinces for evidence based interventions for autism. That would be a huge step forward in ensuring that autistic Canadian children across Canada would receive the help they need - regardless of where their parents live at any given moment.

Instead of the funding help that is needed to ensure that autism interventions can be offered across Canada the alleged Health Minister, Tony Clement, prefers to do nothing. While autistic children grow older, without the help they need, federal Health Minister Tony Clement offers nothing but empty rhetoric.


St. Amant and the Need for a REAL National Autism Strategy

In Autism treatment attracts family CTV reports the story of two doctors, Dr. Leif Sigurdson, a reconstructive surgeon, and his wife Dr. Leanne van Amstel, a radiologist. who are moving their family from Nova Scotia to Winnipeg so that their autistic son can access Applied Behavioral Analysis treatment at the Winnipeg's St. Amant program. As described on its web site:

St. Amant is a comprehensive resource for Manitobans with a developmental disability, acquired brain injury and autism. A non-profit corporation, St. Amant offers a wide range of programming, services and care to support individuals with a developmental disability, acquired brain injury or autism and their families.

Services include a large main residence, more than 50 community sites and homes, a research centre, a school and a daycare. Among other services, St. Amant offers an effective program for children with autism and for families who care for an individual with a developmental disability at home.

The Harper Conservatives, instead of dealing with Canada's Autism Crisis, have simply staged a national "Autism Symposium". It was a bad joke, postponed initially to avoid participation by parents advocating for funded ABA treatment for their children. The Symposium was nothing more than an effort to downplay ABA through carefully selected participants and a "facilitated" (directed) discussion. The American Academy of Pediatrics Management of Children with Autism Disorders report released the week before the Symposium, exhaustively researched and professionally written, highlighted the overwhelming body of evidence in support of the effectiveness of ABA in treating autism and put to shame the bogus National Autism Symposium staged by the Harper Conservatives.

The Sigurdson/van Amstel family is not the first to move across Canada seeking effective, ABA treatment, for an autistic child. While Stephen Harper, Tony Clement and Mike Lake run away from Canada's autism crisis, many families who are informed, and able to relocate, are going where effective evidence based treatment is available for their autistic children. In the case of the Sigurdson/van Amstel family Nova Scotia loses two medical professionals they can sorely afford to lose.

Canada's National Autism Crisis is directly affecting the autistic children being deprived of effective treatment solely because of where there families live. In some cases it is also resulting in the loss of essential medical resources for local communities.

Autism Hero Stefan Marinoiu's Hunger Strike For Autism Now

There are many ways parents and other concerned citizens can advocate for health, treatment, education and residential services for autistic children and adults. Some join organizations, hold awareness meetings with government, business and the public, write letters to the editor and so on. Stefan Marinoiu of Toronto, who I met a couple of weeks ago during the recent Medicare for Autism Campaign NOW! visit to Toronto and Oakville, goes much further. Stefan has put it all on the line advocating for autism. And he is doing it again, right now. Stefan began a hunger strike for autism on May 5 outside Queen's Park in Toronto.

This winter Stefan walked for 11 days, over more than 200 miles, from Toronto to Ottawa, in the middle of a tough Canadian winter, blizzards and all, in an effort to meet Alleged Health Minister Tony Clement to ask the Canadian government to do something to help autistic people in Canada. He was traveling on foot with no warm trailer to retire to at the end of the day or if things got rough. With his winter autism trek Stefan literally put his life on the line advocating for autism change. Stefan got a 15 minute meeting with Minister Clement who said very little of substance. While the alleged federal Health Minister was not moved by Stefan's efforts parents of autistic loved ones across Canada were very moved. It was a privilege for me to meet Stefan in Toronto and Oakville. He is a genuine and compassionate person and has a great family.

Stefan's daughter Lia has started a Facebook group HUNGERSTRIKE for AUTISM NOW on which you will find updates and information about Stefan's Hunger Strike for Autism Now. As Lia points out her father is a type-2 diabetic. His hunger strike again poses serious risks to Stefan's health. Stefan's willingness to put it on the line for autism is a reflection of his tremendous personal courage and his strong convictions. It also reflects his frustration with the lack of help for autistic people like his son, 15 year old Simon, as shown in this Toronto Sun video:




I hope that Stefan takes care of himself as he tries again to impress upon government and public decision makers the impact that autism is having on autistic persons and their families and the need to take serious action to address Canada's autism crisis.

Wales Takes National Autism Action While Canada (Harper) Ignores National Autism Crisis


New, wide-ranging efforts to tackle autism and improve services for those who are affected by the condition were announced today by the Welsh Assembly Government. The Autistic Spectrum Disorder (ASD) Strategic Action Plan is to be launched today at the 3rd Wales International Autism Conference organised by Autism Cymru in Cardiff. Funding for the next three years has been identified with the first years funding of £1.8m being announced to drive forward key actions for the first years. Wales is the first country in the world to have established a cross-cutting national strategic action plan for ASD that will help the estimated 30,000 people that are either directly or indirectly affected by Autism in Wales.

.....

The Action Plan will drive improvements across both children, young people’s and adult services in health, social services and education services – and also expand into areas of housing, leisure and society in general.

- Published by Jon Land for 24dash.com in Communities , Health on Tuesday 22nd April 2008 - 12:13pm

It is encouraging to see a national government tackling its autism issues head on, without hiding behind any contrived excuse they can find to avoid helping the many citizens with autism disorders. Canadians, on the other hand, have a national government led by Prime Minister who is oblivious to autism and the autism crisis in our country. The nicest thing that can be said about Alleged Health Minister Tony Clement is that he doesn't really appear to know much about autism. MP Mike Lake of the governing Conservative party, and father of an autistic child, is an occasional autism "spokesman" for the governing Conservatives; usually helping Harper pass the buck. Of course Mr. Lake has more pressing matters on his agenda .... like presenting a petition to the House of Commons to protect the mythological Bigfoot creature. As for autistic children in need of treatment in Saskatchewan or Manitoba or the Yukon? Well Mike Lake needn't worry he lives in oil rich Alberta his child can receive government funded intervention until age 18.

Congratulations to the Welsh Assembly Government for doing what the Canadian government of Stephen Harper has not done; launch a national autism strategy to provide autism help to all its autistic citizens.

Medicare for Autism NOW! in Oakville, Organizing and Sending A Message

It was a warm sunny day in Oakville yesterday as the Medicare for Autism NOW! team gathered at the Iroquois Ridge Community Centre to meet families in the communities west of Toronto, to organize and to send a message to ALL federal politicians: Canadians are suffering from a NATIONAL autism crisis. Some autistic children, depending on where they live, receive NO treatment for autism. The lack of treatment prevents some autistic children from living a full life and imposes emotional and financial hardship on family members.

Many of us have talked about a National Autism Strategy to address Canada's national autism crisis for years. Some politicians of character and conscience, people like Senator Jim Munson and MPs Andy Scott, Peter Stoffer and Shawn Murphy have actively campaigned for a National Autism Strategy. Stephen Harper, alleged Health Minister Tony Clement and Conservative MP and autism father Mike Lake on the other hand have largely mocked the efforts for a national autism strategy. Aided and abetted by Dr. Rémi Quirion and the CIHR the national autism strategy has been reduced to a less than mediocre web site and a secretive, politicized and staged National Autism Symposium that resulted in absolutely NO autism information being disseminated to Canadians.

Yesterday I had the privilege of speaking at the Oakville rally along with Jean Lewis who has led litigation and political autism battles in British Columbia and experienced political organizer David Marley. We were joined by Jennifer O'Brien from Oakville, autism winter trek hero Stefan Marinoiu from Toronto, Barry Hudson from Toronto and constitutional lawyer Deborah Coyne from Toronto. Medicare for Autism NOW! is national in scope. We are organizing coast to coast and we have a message for federal politicians of all stripes. Something must be done NOW. We need Medicare for Autism NOW. David Marley, show in the bottom picture below has prepared a strategy. A number of ridings that were decided by 2% or less in the last election will be targeted for election action by the Medicare for Autism NOW team. We will be making an impact in those ridings on behalf of the candidates, whatever their political stripe, who support Medicare for Autism NOW. David Marley is also organizing of team of people with political organizing skills and experience to help get our message across effectively.

One of the key ridings will be the Parry Sound Muskoka riding of Alleged Health Minister Tony Clement. Mr. Clement won by one of the smallest margins of any MP in Canada in the last election. Stefan Marinoiu, David Marley and Jean Lewis toured the riding this week and apparently there is already, for various reasons. substantial dissatisfaction with Mr Clement amongst his riding constituents who were also very supportive of the Medicare for Autism effort. Medicare for Autism NOW! will be active in the riding of alleged Health Minister Clement to remind constituents of Mr Clements refusal to help autistic Canadians and their families.





Iroquois Ridge Community Centre in Oakville


Jennifer O'Brien

Jean Lewis

Stefan Marinoiu


Deborah Coyne


Barry Hudson


David Marley

Spring WILL Come and So Will A National Autism Strategy










































This has been a tough winter but these flowers won't back down. They are fighting for spring and it will arrive. Those of us who are fighting for a National Autism Strategy can not back done either. We must continue to fight. If we do we will have a National Autism Strategy as surely as spring follows winter, even a tough winter. Even Stephen Harper and Tony Clement can not stop the arrival of a REAL National Autism Strategy.

Email, write, fax or call your Member of Parliament and let him/her know that you want a National Autism Strategy. Let them know that if they want your vote and family members who support a National Autism Strategy they will do what it takes to give Canadians a REAL National Autism Strategy.

Canada's Sham Autism Symposium Failure and the Need for a REAL National Autism Strategy

The National Autism Symposium was supposed to be a key plank in the Harper government's otherwise pathetically weak National Autism Strategy. The symposium was initially postponed when the Harper government and the directors of the CIHR got word that actual, honest to goodness, parent autism advocates were being put forward as autism society representatives. Scared at the prospect that parents would voice the need for federal funding of Applied Behavior Analysis for autistic children in Canada the Harper government and the politically sensitive directors of the Canadian Institutes for Health Research postponed the symposium and rescheduled it for November 7 - 9 in Toronto. This time the CIHR took no chances and determined for themselves and without the names of persons who would allegedly "represent" the provincial autism community. Apparently the CIHR is as weak on democratic principles as it is in its understanding of autism and autism treatments.

In New Brunswick the Autism Society New Brunswick was not asked for the name of a representative to send to the symposium. In fact the ASNB was not even consulted about the names of persons they might wish to have represent New Brunswick's autism community. Some persons in New Brunswick were consulted and I know for a fact that my name was put forward but rejected by the CIHR political leadership. It seems clear that the CIHR wanted to avoid any outspoken advocates of evidence based interventions for autistic children.

There was no list of guest speakers or specific subjects published in advance of the "National" Autism Symposium. Unfortunately, even after the symposium there has been very little in the way of actual substantive information about the symposium made available to the Canadian public. Here is the only summary of the National Autism Symposium that I have been able to find as published on the CIHR web site by Dr. Rémi Quirion, OC, PhD, FRSC, CQ, Scientific Director of the CIHR's Institute of Neurosciences, Mental Health and Addiction (INMHA):

National Autism Research Symposium

Toronto, November 8-9, 2007

CIHR had been tasked by the Hon. Tony Clement, Minister of Health, with organizing this event and CIHR-INMHA, with assistance from CIHR-IHDCYH, took the lead. The symposium was part of a series of initiatives on autism announced by Minister Clement in November 2006. The other commitments included exploring the establishment of a research chair focusing on effective treatment and intervention for autism spectrum disorders (ASDs); launching a consultation process on the feasibility of developing an ASD surveillance program through the Public Health Agency of Canada; creating a dedicated page on the Health Canada web site focused on ASD; and designating the Health Policy Branch of Health Canada as the ASD lead for actions related to ASD at the federal government level.

The symposium brought together 95 attendees including researchers, health professionals, educators, service providers, family members and persons with autism, as well as community organizations and government representatives. All the provinces and two territories (Northwest Territories and the Yukon) were represented. The goals of the symposium were to inform participants about the current state of knowledge on autism, to further the dissemination of ideas and to assist the research community in planning for research.

The opening evening session featured presentations from a person with autism (Daniel Share-Strom), a parent (Jennifer Overton) and a prominent researcher in the field (Dr. Susan Bryson, Dalhousie). On the second day, after introductory comments from the Health Minister, twelve leading Canadian researchers in the field of autism discussed the latest findings, with brief question and answer periods. Symposium participants then broke into six groups to discuss specific issues relevant to autism research. Each group suggested three key ideas to help inform research and presented these to the symposium as a whole. Every participant then had an opportunity to provide written feedback on these ideas and the symposium closed with some general comments from the floor.

Feedback from the symposium was very positive, with many participants appreciative of the opportunity to meet with individuals from different sectors and many expressing a wish to make this kind of meeting a regular event. For further information on this meeting, please contact Barb Beckett at {bbeckett@cihr-irsc.gc.ca}[mailto:bbeckett@cihr-irsc.gc.ca]

After bragging about Health Minister Tony Clements weak National Autism Strategy Dr. Quirion then stated in the summary that the goals of the symposium included "to inform participants about the current state of knowledge on autism, to further the dissemination of ideas and to assist the research community in planning for research." The summary itself sets out no description of the current state of knowledge on autism and, to my knowledge, no ideas have been disseminated. Judging by Dr. Quirion's objectives it appears that the National Autism Symposium was a failure.

In all fairness to the timid, politically sensitive, bureaucrats at the CIHR the American Academy of Pediatrics stole their thunder by releasing on October 29, 2007, just eight days before the CIHR "facilitated" autism symposium, two landmark reports on autism. In one of those reports, Management of Children With Autism Spectrum Disorders the AAP stated that:

The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and
community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have
been significantly better than those of children in control groups.31–40

The significance of this report on the effectiveness of ABA and its impact on the Tony Clement/CIHR sham autism symposium can not be overstated. Released just eight days prior to the sham symposium put on by Minister Clement and the CIHR bureaucrats the report undermined one of the real goals of the symposium - to present ABA as merely one treatment option amongst a host of such options. The AAP review updated previous credible American reviews of the Autism treatment research literature including the New York state and California reviews, the US Surgeon General review and the MADSEC Autism Task Force Report 1999-2000 all of which endorsed ABA as, to date, the only autism intervention with a solid evidentiary bases in support of its effectiveness in helping autistic children. This result ran directly contrary to the hopes of Minister Clement and his staged autism symposium; a symposium so obviously contrived to suit the political agenda of the Harper-Clement government that no substantive report of the "ideas to be disseminated" about autism has yet been "disseminated". The CIHR people are apparently too ashamed of their sham symposium to issue a detailed report of its proceedings, which would undoubtedly stand in direct contradiction to the much more credible AAP report.

It is long past time that the Canadian autism community stopped putting up with such contrived nonsense and demanded a real National Autism Strategy; one which would see our federal government help autistic children wherever they live in Canada.

An Autism Message From BC for Alleged Federal Health Minister Tony Clement

The Medicare for Autism NOW rally held in Burnaby was a huge success. The message is being heard across Canada. Autism is a medical disorder. A well studied treatment is available and it should be covered under Canada's medicare system. The Global News video which follows includes some commentary from dedicated autism advocates Jean Lewis and David Marley.The video also includes some nice footage of parents and the children they love; the children they are doing everything they can to help.

Nothing will be done, though, unless our federal politicians, people like Prime Minister Harper and Alleged Health Minister Tony Clement can be convinced that it is in their political best interests to take action. "Health" Minister Clement prove you really are a Health Minister, take steps now to include medicare coverage for ABA, a proven effective treatment for autism.





Senator Jim Munson Continues National Autism Strategy Efforts

Senator Jim Munson is continuing his campaign for a National Autism Strategy. Senator Munson has been unrelenting in his efforts to help a constituency that Prime Minister Harper and Alleged Health Minister Tony Clement ignore - Canadians with autism. Speaking recently on Prince Edward Island Senator Munson stated that he would like to see the federal government take the lead in developing a National Autism Strategy to end the current patchwork of provincial programs"

“It’s expensive but buying tanks is expensive too. “What we have now is a
patchwork, scattergun approach to dealing with autism in individual provinces.”

Senator Jim Munson, The Guardian, February 23, 2008

Autism in Ireland - Fianna Fail Uses Old, Failed Logic, Tired Clichés, In Denying ABA Help To Autistic Children

It is sad to see that in Ireland today that old, failed logic and tired clichés like "one size does not fit all" are being trotted out by the governing Fianna Fail party to deny Applied Behavior Analysis (ABA) services to autistic children in Ireland:


Fianna Fáil's Peter Power appealed to the Opposition not to assume that those opposing the motion were 'anti-children', saying nobody was absolutely right, or absolutely wrong.

There was derisive laughter from the gallery when Fianna Fáil's Margaret Conlon, a former teacher, referred to children with special needs demonstrating their abilities 'when they play their tin whistles as a group'.

Concluding the debate for the Government, Minister Micheál Martin said the Government did not believe 'one size fits all', because autism is a continuum, and said the idea of a wide range of teaching methods was not a ridiculous suggestion.



These rationalizations were trotted out a decade ago in New Brunswick and other jurisdictions in Canada and the United States in an effort to deny proven effective ABA services for autistic children desperately in need of such help. These rationalizations are used to provide cover for a refusal to provide effective help for autistic children, not because of genuine concern that other methods might be more appropriate, but because of the cost implications of providing effective ABA intervention.

The reality is that stubborn insistence on refusing the only widely endorsed, evidence based, effective intervention for autistic children is motivated by nothing more than miserliness. The concern of those who resort to such obviously weak excuses has nothing to do with ensuring that each autistic child receives the best intervention possible for that child. If it were they would provide ABA for each child for whom, in their wisdom, they consider it appropriate and other interventions, whatever they might be, for the others. But they won't do that either; governing parties are often just too cheap to spend money to provide evidence based, effective ABA treatment and education for autistic children.

In New Brunswick the government of the day tried the old "one size does not fit all" approach . The debate over whether ABA should be provided by government was intense and at times very personal. But today, although improvements are badly needed, government funded ABA intervention is provided for pre schoolers and some methods and resource teachers and teacher aides are being trained to provide ABA in the school setting. My son with Autism Disorder , and in grade 6, receives ABA instruction every day at Nashwaaksis Middle School. ABA services are also provided to one extent or another in jurisdictions across Canada.

The debate in New Brunswick, and elsewhere, was moved forward by focusing on the principle that interventions should have a solid evidence basis to support their effectiveness. Without an evidence basis parents and officials are essentially gambling with the development of autistic children by wasting time on unproven and unreliable interventions. Here in New Brunswick it was the insistence on evidence based interventions that emerged from an Inter Departmental Committee review of autism specific services in 2001, which at that time were virtually non existent. It is that commitment to evidence based practices which has led to substantial improvements, and to the provision of ABA services for autistic children in New Brunswick.

One of the most helpful and influential reviews of the studies of autism intervention effectiveness was the MADSEC ( Maine Administrators of Services for Children with Disabilities) Autism Task Force Report 1999, 2000 (rev.ed.) The MADSEC Autism Task Force was commissioned to:

perform a detailed analysis of methodologies with which to educate children
with autism. This analysis will focus upon the scope and quality of scientific
research which objectively substantiates, or fails to substantiate, each method’s
effectiveness. Based upon the research analysis, the MADSEC Autism Task Force
will make recommendations for the consideration of decision makers who are key
to the intervention of children with autism. (Mission Statement, p. 2 )


The MADSEC team reviewed the scientific literature, literally hundreds of studies, in support of various autism interventions. It concluded, as summarize in its Executive Summary at pages 5-6:

• Substantiated as effective based upon the scope and quality of research:

Applied behavior analysis. In addition, applied behavior analysis’ evaluative procedures are effective not only with behaviorally-based interventions, but also for the systematic evaluation of the efficacy of any intervention intended to affect individual learning and behavior. ABA’s emphasis on functional assessment and positive behavioral support will help meet heightened standards of IDEA ‘97. Its emphasis on measurable goals and reliable data collection will substantiate the child’s progress in the event of due process.


Shows promise, but is not yet objectively substantiated as effective for individuals with autism using controlled studies and subject to the rigors of good science:

Auditory Integration Training, The Miller Method, Sensory Integration, and TEACCH.

Repeatedly subjected to the rigors of science, which leads numerous researchers to conclude the intervention is not effective, may be harmful, or may lead to unintended consequences:

Facilitated Communication.

• Without scientific evaluation of any kind:

Greenspan’s DIR/”Floor Time,” Son-Rise.

The MADSEC depiction of ABA as the only autism intervention substantiated as effective, based on the scope and quality of research in support, was not the only review of the research literature to reach such a conclusion. State agencies in New York and California and the office of the US Surgeon General had reached similar conclusions. Nor was it the last.

In Management of Children With Autism Spectrum Disorders, October 29, 2007 the American Academy of Pediatrics stated:

Applied Behavior Analysis

Applied behavior analysis (ABA) is the process of applying interventions that are based on the principles of learning derived from experimental psychology research to systematically change behavior and to demonstrate that the interventions used are responsible for the observable improvement in behavior. ABA methods are used to increase and maintain desirable adaptive behaviors, reduce interfering maladaptive behaviors or narrow the conditions under which they occur, teach new skills, and generalize behaviors to new environments or situations. ABA focuses on the reliable measurement and objective evaluation of observable behavior within relevant settings including the home, school, and community. The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology 21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have been significantly better than those of children in control groups.31–40

Other interventions were evaluated by the AAP but no other intervention received a comparative positive assessment, not even close.

Fianna Fail is using the old beaten argument that one size does not fit all to justify refusal to provide ABA services to autistic children. In doing so they are denying those children the opportunity to realize, in the words of the AAP, "substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior".

Fianna Fail has its counterpart here in Canada. Although most provincial jurisdictions try to provide ABA services, the level of funding, and extent of service provided, varies from province to province. Our federal government has huge surpluses but will not provide funding to the provinces to pay for more ABA intervention. The Conservative government of Prime Minister Stephen Harper and Alleged Health Minister Tony Clement refuse, on a variety of flimsy grounds, including the old "one size does not fit all cliché", to spend money to help autistic children.

For Ireland's Fianna Fail, and for Canada's Conservative Party, it appears that money means more than children .... more than autistic children anyway.

Let no child be left behind. National Autism Strategy?

Autism Trek Update - Federal Health Minister Clement Passes the Autism Buck (but not the bucks) to the Provinces

The Belleville Intelligencer continued its excellent coverage of dedicated Autism Dad Stephan Marinoiu's winter Autism Trek to Ottawa reporting on his greeting in Ottawa by long time autism advocate Senator Jim Munson and his meeting with federal "Health" Minister Tony Clement. Mr. Marinoiu described the challenges faced in Ontario where ABA service did not become available for his son. Unfortunately, as reported by Mr Marinoiu and the Intelligencer, alleged Health Minister Clement merely passed the buck for autism services, but not the bucks, to the provinces.

High School political science students in this country are aware that the primary constitutional responsibility for health care rests with the provinces. But our history also shows that the provinces and the federal government have cooperated to provide a national health care system. There is nothing to stop the federal government from spending some of those surplus dollars taken from all Canadians to help provincial governments fund needed autism services across Canada. So that all Canadians with autism receive the services they need.

It is long past time that alleged "Health" Minister Clement put the Health back in his title and started acting like a Health Minister.

To put it politely Minister Clement - do your job or step aside please.

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