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‏إظهار الرسائل ذات التسميات ransom notes. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات ransom notes. إظهار كافة الرسائل

Autism Horror As Son Attacks Caregiver

It is fashionable these days to talk about autism disorders as though they are joyful, beautiful blessings bestowed upon our children. Some internet bloggers prattle about the joy of autism. They also try to suppress any negative description of autism whether it was the "Ransom Notes" campaign of NYU Child Study Center's Dr. Harold Koplewicz or the courageous parents who participated in the Autism Every Day video. These feel good censors paint an inaccurate picture of autism, one which ignores completely, and misleads the public about, some of the harsher realities of autism disorders. In the process they do a huge disfavor to some severely autistic people, their families and caregivers.

In Desperate plea for help Susan Sherring of the Ottawa Sun reports the horror that confronted Brenda Reisch when her 15 year old autistic son, weighing more than 200 pounds attacked his caregiver, breaking his nose, leaving blood splattered on the walls and bruises on the caregivers back. Residential services have not yet been made available because her son's case is not considered a "crisis" level situation. Yet her son has become more violent, uncontrollable and aggressive in recent months.

"I can't describe the horror of looking at what my child had done, the amount of blood, it was all over the walls, all over the carpet, from one end of the house to the other," she told the Sun.
...

" He could potentially hurt someone else. We need help," Brenda says.

...

" We need a life. He needs a life, too. He needs help. I know this might mean he can't live with us and that devastates me. I can't tell you how many times I've been in tears.

"I love my son. He's the most precious thing to me in the world. If this is what we have to do, it's going to tear me apart, but I know he could potentially kill someone and I can't put him in that situation."

I have provided legal services to families whose children with autism spectrum disorders hurt family members and parents. And I have met others in the course of my autism advocacy. This situation is not that unusual. The truth should be told not hidden behind feel good stories and wishful thinking. To do so is to do a disservice to all involved.

Autism and Censorship


I do not subscribe to the vaccine/thimerosal causes autism theory. It is necessary to state that at the outset because of the often heated, sometimes irrational nature of internet discussions of autism issues.

There exists a group of people, often called "neurodiversity" comprised of some high functioning autistic persons, some parents and professionals who share their view, who tend to promote a view of autism as a non-medical disability, a socially created disability which, from their perspective is simply different wiring of the brain. In the neurodiversity belief system autism is just a different way of thinking which, by their self identification with historical geniuses, can even be seen as superior to neurotypical thought. Positive views of autism are promoted. Negative realities of autism are suppressed. And now, in the American Academy of Pediatrics, the neurodiversity movement has a powerful new ally as it seeks to censor a work of fiction - the Eli Stone television series episode which apparently suggests a link between vaccines and autism.

The neurodiversity group is so rigid in its perspective that its adherents react with intense hostility to any negative portrayal of autism disorders such as that shown in the Autism Every Day video or the Ransom Notes campaign. The AED video presented the realities of autism from the perspective of caring parents. The Ransom Notes campaign was an attempt to create public awareness of some of the harsher realities of disabilities includig autism. While they have not been able to silence Autism Speaks, or the parents who created the Autism Every Day video, it is not for want of trying. And the "autism is beautiful" movement was a prime player in the successful effort to censor the Ransom Notes campaign, a campaign which was designed to focus attention on the harsher realities of various disabilities including autism disorders. Even Ph.D's, academics, presumably committed to the free exchange of ideas, bragged on the internet that they were doing "happy dances" over their success in shutting down the Ransom Notes campaign.

The Eli Stone episode is, on the surface, objectionable to the neurodiversity autism censors because it portrays a link between vaccines and autism. The episode features a family attorney who wins a court decision in which he successfully argues that a mercury-containing flu vaccine caused autism in a child. This alleged causal link enjoys little support in the medical and scientific communities and the AAP is presumably acting with good intentions when it seeks to censor the episode in question. But the same can not be said of the neurodiversity censors.

To be sure their criticisms of the vaccine autism link are consistent with accepted medical and scientific opinion but they want the episode and such discussion censored for another reason. They are offended by a medical model of autism disability. To them autism is a disability only because society imposes conditions on autistic persons which make it a disability. Even discussion of potential environmental bases for autism, anything other than a purely genetic model, is met with intense hostility by neurodiversity bloggers.

I have never been a fan of David Kirby, or his promotion of the vaccine causes autism theories. But I would not want to silence his voice, his opinion on this or any other subject. And I believe he has a point when he expresses alarm about the attempt to censor a television series episode in Scarier Than Fiction: Pediatricians Try To Censor ABC.

Autism Disorder is a medical disorder. Censorship is a severe social disorder which poses a threat to the health of a democratic society.


Offensive Autism Language at "Aspies for Freedom"

On December 29 I commented on the offensive language and hypocrisy demonstrated by neurodiversity blogger Do'C at Autism Street in Offensive Language On Autism Street where he referred to Donald Trump and Jenny McCarthy as "celebrity idiots". Now another neurodiversity blogger fresh off the suppression of the Ransom Notes campaign is insulting Autism Speaks with the following caption: autism speaks are retarded.

The blogger MATTHE was quick to receive chuckles from his fellow "Aspies for Freedom":


autism speaks are retarded Author Message matthe


Posts: 37
Group: Registered
Joined: Dec 2007
Status: Offline
Post: #1 autism speaks are retarded
any comments? Today 01:14 PM Lestat


Posts: 502
Group: Registered
Joined: Apr 2006
Status: Online
Post: #2 RE: autism speaks are retarded
No need for comment, you are preaching to the choir here mate The light blinds
So behold darkness as our new light
In our darkness we can see
So with others blindness
We take flight. Today 03:28 PM flardox


Posts: 767
Group: Registered
Joined: Sep 2007
Status: Offline
Post: #3 RE: autism speaks are retarded
Lestat Wrote:No need for comment, you are preaching to the choir here mate


I like the comment!


short and simple yet profound
I'm watching always watching..... Today 08:03 PM shamshir1218

Posts: 233
Group: Registered
Joined: Aug 2007
Status: Online
Post: #4 RE: autism speaks are retarded
*chuckles at the thread*

It is funny because it is true!!! This person's views are not representative (Gareth)
Please do not remove this notice
The way of the warrior is my path.

Apparently mocking those with intellectual disabilities, by using terms used to describe them in the past as insults, is OK with the neurodiversity blogging crowd. Don't hold your breath waiting for Ari Ne'eman , Estee Klar-Wolfond, and Kristina Chew, all of whom condemned the Ransom Notes language, to express their outrage at their fellow neurodiversity bloggers derogatory mocking of the intellectually impaired. Pomposity they can do. Sincerity, genuine concern for the intellectually disabled; even those who are autistic? Not so good.

Offensive Autism Language - "Autie" and "Curebie"

In the new post Ransom Notes world of autism discussions it seems that freedom of speech, and truth telling, must give way to the sensitivities of various persons and organizations. That being the dynamic of this new autism world order then I would like to offer my list of terms that I find offensive. I ask that the sensitive souls who petitioned NYU into submission over the Ransom Notes campaign, and others, cease and desist their use of these offensive and demeaning terms. I will start my list with two that I find particularly offensive: "autie" and "curebie".

1. Autie - is an expression used by some persons with Aspergers, and some parents and professionals who have surrendered to the ideology of the anti-cure movement, to describe persons with autism. I have a son who is diagnosed with Autism Disorder with profound developmental delays. The use of the term trivializes the very serious challenges he faces now and for the rest of his life. It is demeaning and stereotypical. Autism Disorder is a serious neurological disorder and can involve serious and dangerous intellectual, communication and behavior deficits. Please do not use the term "autie" to describe my son or other persons with Autism Disorder.

2. Curebie - is a derogatory term which is intended to be derogatory. It is a term coined by some anti-cure high functioning persons with Aspergers, and those who support their ideology, and it is primarily directed at parents trying to help their children; parents trying to treat and cure their autistic children. It is also directed at organizations promoting research aimed at curing autism. Please cease and desist the use of this hateful, offensive term.

An Autism Dad Thanks Dr. Harold Koplewicz

Dr. Harold Koplewicz
New York University Child Study Center

Dear Dr. Koplewicz

I am writing as the father of a severely autistic boy nearing 12 years of age in New Brunswick, Canada. I started an autism blog site called Facing Autism in New Brunswick 16 months ago as a means of lobbying local and national government, educators and autism service providers. I also started it, in part, because of the lack of internet sites focusing on the real needs of autistic children and adults and their families. Much of the internet "autism" fare really reflects a subgroup of SOME high functioning autistic persons and a handful of parents who all have one element in common: they all glorify autism as something other than what it is, a serious neurological disorder which impairs the lives of autistic children and adults.

For this group, as alluded to in the New York Times article, "harsh-upsetting" language describing autism is more upsetting than the harsh-upsetting realities of autism. It is this highly organized internet community which reacted with hysterical outrage to the "Ransom Notes" campaign just as they did to the Autism Every Day video and all other efforts to portray the negative realities that restrict the lives of many people with autism. They do not, however, speak for parents like myself, with an autistic son who does not understand language on such a level that he would be offended by the imagery of the Ransom Notes campaign, imagery which I personally find provocative but not unduly harsh or upsetting.

I do not find honest accurate description of autism realities to be harsh or upsetting. Not when compared to the real challenges faced by autistic children who injure themselves, walk into dangerous daily life situations unaware of the risks, appear in news stories as having wandered away, often, but not always, to be found safe, or who live their lives as adults in the care of strangers. As such a parent I thank you for the Ransom Notes campaign which was a courageous effort to break through the persistently trivializing autism awareness campaign of those who organized the petition and drive to silence the voices of those who inspired the Ransom Notes campaign.

I recently received a message on this blog site from an "anonymous" poster. The message appears to have been sent to me by mistake as part of a spam style mail out of anyone who posted on the Ransom Notes topic at one of the internet sites organized to quash the campaign. I posted there in opposition to that effort. The message I received is part of a continuing effort to harass you and NYU for your effort to raise public awareness of the seriousness of autism disorders. It states:


"NEXT STEPS -
they are not hearing us

They have not responded to our requests to pull the campaign and it sounds like we are really emboldening Harold Koplewicz and his boss, Robert Grossman, appears to be letting Koplewicz see the campaign through. I found some contacts that are over both of their heads and we need to promote a major emailing, writing and phone calling campaign to Medical Center Board Chairman Kenneth Langone, NYU President John Sexton, and NYU Trustee Chairman Martin Lipton. Here is their contact info; PLEASE help get the word out."

I do not subscribe to the views of the organizers of the "shut down Ransom Notes" campaign and I am not alone. As the host of a site where I try to discuss the WHOLE autism picture, positive and negative, I occasionally receive emails from parents appreciative of the honest portrayal of autism that I try to present here. As a father I appreciated the courage of the parents featured in the Autism Evey Day video who addressed the harsh-upsetting realities confronting their autistic children. And I appreciate your courage in addressing these realities. Many parents are busy trying to help their autistic children, go to work, and care for other family members and not everyone is willing to risk the public condemnation that you have endured at the keyboard busy hands that have opposed the Ransom Notes campaign.

I sincerely thank you for your efforts to portray the realities of autism and to create true autism awareness.

Harold Doherty
Fredericton, NB, Canada

2007 Autism Blog of the Year - About.com Autism

My personal pick as Autism Blog of the Year 2007 [excluding Facing Autism in New Brunswick ] is the About.com Autism Blog hosted by Lisa Jo Rudy. Ms Rudy's views often reflect the "neurodiversity" perspective; an autism perspective which I do not share. The neurodiversity emphasis can be quickly seen in the links on the related sites portion of the blog where links are provided to the neurodiversity network of alleged "autism" bloggers. Yet, Ms Rudy has clearly been trying to present all views on controversial autism subjects including the recent battle by the neurodiversity community which successfully bullied the NYU Ransom Notes campaign into submission. The parents whose concerns inspired the Ransom Notes campaign lost a voice with that defeat but the blame for that does not lie with Ms Rudy who tried to present all sides of the issue.

Another example of Ms Rudy's attempt to present all autism perspectives is the recently posted series on autism treatments. Most of the treatments presented are not evidence based as effective autism treatments. For that reason I would not endorse them personally but I think it is worthwhile to review and discuss these matters publicly.

For trying to fairly present all sides of the many controversial autism debates my personal choice for Autism Blog of 2007 is About.com Autism. Sorry, I don't have a fancy Web 2.0 badge to offer Ms Rudy for this "award" but I do offer my appreciation.

Autism Vox Tells The NYT PART Of the Autism Story

In reaction to a provocative public service advertising campaign which highlighted some of the negative realities of autism and other mental disorders, Kristina Chew of Autism Vox did what she does day in and day out, she told part of the story of autism. In Campaign on Childhood Mental Illness Succeeds at Being Provocative Ms Chew gave the New York Times the "let's all feel good, say nice things, and sing Koombaya" part of the story of autism and she expressed indignation and outrage on behalf of parents of special-needs children, autistic adults, teachers, disability rights advocates and mental health professionals about the negative picture of autism presented by the campaign.

At Autism Vox Ms Chew rarely mentions any of the negative realities that actually result in autism diagnoses or that impair the lives of so many autistic children and adults and the family members and caregivers who love and care for them. Any expression of those negative realities whether it be the Autism Every Day video or the campaigns by people such as Jenny McCarthy to cure autism are met with hostility, scorn and ridicule at Autism Vox.

The campaign that Ms Chew attacks with her efforts is a campaign to help children with psychiatric disorders. In the Autism Vox Universe it is people trying to help children by telling the truth who are the enemy. In fact it is the truth that is the enemy at Autism Vox. And WHO are the real people behind the campaign? It is not NYU. It is those people who speak the truth about their children's conditions - honest, caring parents. It is they who inspired the campaign attacked by Ms Chew:

"According to Dr. Koplewicz, the campaign was inspired by filmed conversations of parents and children talking about life with a psychiatric disorder. “These families felt their children were trapped by their disorders,” he said.

John Osborn, the president and chief executive of BBDO New York, said the effort was intended to increase the sense of urgency about the diseases and encourage conversation. “It’s tricky because there are a lot of messages in the air, particularly at holiday time. That makes it a challenge to cut through the clutter.”

BBDO’s earlier ads for the Child Study Center — which included images of a child running happily through a sprinkler and a drawing of a child caught in a maze — “were wonderful, but they didn’t get this kind of attention from anyone,” Dr. Koplewicz said. “They were too pleasant and innocuous. That’s the reason we decided to go along with BBDO.”

He was further emboldened, he said, by the reaction of focus groups of women whose children have the disorders mentioned in the ads. “Everyone who participated felt the ads were informative,” he said. “While we knew the campaign was edgy and we knew it would be harsh and upsetting, the facts of mental illness are even more upsetting.

Thankfully the New York Times told both sides of the story. My son has Autism Disorder. He is severely autistic. I have a duty to speak the truth about his disorder, a sense of duty not on display at Autism Vox where parents speaking the truth are treated with contempt and outrage. It was encouraging to see the NYT present an explanation for the campaign.

Some day it might dawn on Ms Chew that parents speaking the truth about their children's autism disorders actually love their children every bit as much as she does, that we find joy in our children every single day of our time together with them. But unlike Ms Autism Vox we also understand that time IS in fact the enemy for most of our autistic children, that many WILL live their lives dependent on the cares of others, especially after we are gone. We live with the realities of self aggression and aggression to others. We live with the realities of ever present danger to our children presented by every day life. And we try to do something about it, for our children and for other autistic children and adults. And we do something rarely done at Autism Vox we speak the whole truth about autism

Ms Chew bragged to the New York Times about the 3,000 to 4,000 daily visitors to Autism Vox. What she failed to mention were the hundreds of thousands of parents across the United States and Canada fighting to treat and cure their autistic children, parents who, on behalf of the children they love, speak the truth, the whole truth, about autism. And like the campaign organizers at NYU we know that the facts of autism are more upsetting than the provocative imagery used in the awareness raising ransom notes campaign - for most of us anyway.

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