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‏إظهار الرسائل ذات التسميات Bob Rae. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات Bob Rae. إظهار كافة الرسائل

A REAL National Autism Strategy Request for Mr Ignatieff and Mr Layton

Dear Honourable Leaders, MP's and Senator Munson

I am the father of a 13 year old boy with Autistic Disorder, assessed with profound developmental delays living in Fredericton, New Brunswick. I have addressed this email correspondence to Mr Ignatieff and Mr Layton as the leaders of the two parties, Liberal and NDP, that have recognized the need for a real National Autism Strategy. I have also copied some of the members of both parties in the House, and Senator Munson, who have made outstanding individual efforts on behalf of autistic children and adults in Canada and who have fought for a real National Autism Strategy.

The motion by Mr. Stoffer and our former Fredericton MP Andy Scott achieved recognition by the House of Commons of the need for a National Autism Strategy. Unfortunately the private members bill brought by Mr. Shawn Murphy from PEI which would have done so much to ensure that autistic children across Canada have real access to evidence based autism interventions was defeated notwithstanding the solid support demonstrated by both of your parties. I humbly ask that both the Liberal and NDP parties not give up on autistic children and adults and continue the fight for a real National Autism Strategy one that would see a federal government commitment to funding evidence based autism interventions and decent residential care for all Canadians with Autism Spectrum Disorders regardless of their province of residence.

Canadians have moved from province to province seeking appropriate help, particularly Applied Behavior Analysis (ABA), for their children. Gains have been made by provincial action across Canada but there are huge gaps in the services available. As a New Brunswicker I am proud of what our province has done with relatively limited resources to help autistic children but much more needs to be done here, particularly for autistic youths and adults in need of decent residential care. Even a family with two medical professionals left Nova Scotia to seek ABA help for their autistic child in Manitoba. In Ontario, where I visited in the spring of 2008 as part of a national autism advocacy tour organized by our good friends from FEAT BC, more autistic children are languishing on waiting lists than are actually receiving treatment.

I remind you of the well informed comments of Ms Dhalla when she spoke on behalf of the Liberal Party in the House of Commons, on October 27, 2006, in support of the Scott-Stoffer motion calling for a National Autism Strategy:

"We must make sure that regardless of where one lives in Canada, whether it is on the west coast, the east coast or in the Northwest Territories, all children who are affected by autism actually have the opportunity to receive the treatment they need throughout their lives until the age of 18.

I am sure this national strategy is going to ensure that we have the proper investment to do further research into whether there are other treatment options available and into how this type of condition can be prevented. We must invest in a comprehensive strategy to address this very complex disorder. (1420)

As I have mentioned, we know the cost is upwards of $70,000 per year, but we have to ensure we give the opportunity to these families so their children can obtain treatment and provide them with the quality of life they need. These families should be able to do this without having to mortgage their homes, or sell their cars, or go through those financial hardships. Many families that have been affected by autism simply cannot afford this treatment.?"

I ask that both the Liberal and NDP parties keep the need for a real National Autism Strategy in mind as you go forward and work toward a strategy which sees Canada invest in autistic children and adults regardless of their province or territory of residence. Canada is more than a place where one's health, one's quality of life depends entirely on jurisdictional boundaries. Our national health care scheme generally, which results in longer life expectancy and greater infant survival rates than that of our good neighbours to the south, is a testament to that fact.

Please do your best to ensure the enactment of a REAL National Autism Strategy for all autistic Canadians.

Respectfully,

Harold L Doherty
Fredericton, New Brunswick



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An Open Autism Letter To Bob Rae and Michael Ignatieff

Dear Mr. Rae and Mr. Ignatieff

I am the father of a 12 year old boy diagnosed with autistic disorder and assessed with profound developmental delays living in Fredericton, New Brunswick. I know you both are busy challenging for the leadership of the Liberal Party. I hope you both have time though to consider the importance of health and education issues to Canada's future and, if one of you becomes Liberal leader and Prime Minister, do not simply use the Constitution as a shield to avoid development of national policies in these two areas vital to the lives of Canadians as Stephen Harper has done.

In particular I ask that each of you, should you ultimately become Prime Minister, introduce a real National Autism Strategy for Canada. Not the existing "slap in the face" strategy of the Harper government but a real National Autism Strategy that helps all regions of the country deliver evidence based effective autism interventions during the pre-school and school years and permits adult autistic persons to live in decent residential accommodations and participate to the fullest extent of their abilities in Canadian society.

The beginning of such a strategy was outlined in Bill C-304, the private member's bill introduced by Charlottetown MP, and steadfast autism advocate, Shawn Murphy. That bill included amendment of the Canada Health Act to provide financing for autism treatment wherever autistic children reside in Canada:


BILL C-304

An Act to provide for the development of a
national strategy for the treatment of
autism and to amend the Canada Health
Act

Her Majesty, by and with the advice and
consent of the Senate and House of Commons
of Canada, enacts as follows:

SHORT TITLE

1. This Act may be cited as the National
Strategy for the Treatment of Autism Act.


NATIONAL CONFERENCE

2. The Minister of Health shall, before
December 31, 2006, convene a conference of
all provincial and territorial ministers responsible
for health for the purpose of working
together to develop a national strategy for the
treatment of autism. The Minister shall, before
December 31, 2007, table a report in both
Houses of Parliament specifying a plan of action
developed in collaboration with the provincial
and territorial ministers for the purpose of
implementing that strategy.

AMENDMENTS TO THE CANADA
HEALTH ACT

3. Section 2 of the Canada Health Act is
renumbered as subsection 2(1) and is
amended by adding the following:

(2) For the purposes of this Act, services
that are medically necessary or required under
this Act include Applied Behavioural Analysis
(ABA) and Intensive Behavioural Intervention
(IBI) for persons suffering from Autism Spectrum
Disorder.

Mr. Ignatieff, you voted in support of Bill C-304. I hope, should you accede to the Prime Minister's office that you will act on that expression of support for a badly needed national autism strategy.

Mr. Rae, you were not a sitting member of the Commons at that time but, having twice had the privilege of meeting you and discussing autism issues with you I know you have taken the time to inform yourself about, and shown interest in, the challenges facing autistic Canadians and their families. I hope that should you become Liberal leader and perhaps Prime Minister that you
would introduce as a government bill Shawn Murphy's private member's bill C-304.

I realize that you both have great issues on your minds. I hope you both have room in your hearts, and considerable intellects, for autistic Canadians.

Respectfully,


Harold L Doherty
Fredericton New Brunswick




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