Great Autism News in New Brunswick!

Great autism news in New Brunswick as the UNB-CEL Autism Intervention Training Program is being made available for the public.  (Applications available online.) The college program has previously been recommended by US autism experts Dr. Eric Larsson and Dr. David Celiberti. Dr. Celiberti in particular is very familiar with the program and had recommended the New Brunswick autism service delivery model which was based on the program  for consideration by other Canadian provinces.  Unfortunately for New Brunswick's autistic children, students and adults the successful UNB-CEL Autism Training Program, first utilized by the Premier Bernard Lord's Conservative government, and then by Liberal Premier Shawn Graham's government, has been abandoned by the David Alward government and its non evidence based, philosophically driven partners at the NBACL. 

The UNB-CEL Autism Intervention Training program was born in response to requests for tenders for autism training put out by the Lord government. That request resulted from intense and effective advocacy by many New Brunswick parents of autistic children led by the Autism Society of New Brunswick.  The actual program itself was first conceived at a meeting of a committee which was  meeting to establish an autism centre of excellence at UNB in Fredericton.  During a committee meeting a parent advocate member of the committee suggested that UNB should provide training in response to the government tenders. Dr. Paul McDonnell who was at the meeting confirmed that UNB had the professional resources to provide the training.  Anne Higgins, then with UNB-CEL, laid out a step by step process, including necessary time lines, that could be followed to meet the tender requirements. A pilot program was run and the UNB-CEL Autism Intervention Training was born!

Parent advocates, including yours truly, lobbied strenuously for the extension of the UNB training to our schools.  We met fierce opposition from some in the Department of Education who had their own agendas to pursue.  I was even subjected to threats from Department of Justice legal counsel, at the request of the then Director of Student Services, Robert Gerard, to keep me from participating in meetings between the Autism Society and Education department officials to discuss implementation of a commitment by Premier Shawn Graham to increase the numbers of UNB-CEL autism trained education assistants working with autistic students. 

We also met with fierce opposition from the New Brunswick Association for Community Living which included direct opposition from NBACL icon, then NB Human Rights chair, and now Alward transition team member Gordon Porter.  The current Education Minister's wife Krista Carr is an executive officer with NBACL and at the time she also opposed the Autism Society's position that alternative learning environments were necessary for some autistic students and in particular for those receiving ABA based instruction, provided by UNB-CEL autism trained aides, in quieter settings outside the regular classroom.  Danny Soucy is a current member of the Alward government, also affiliated with NBACL, and was also a  public opponent of Autism Society efforts to achieve the flexible inclusion necessary for many autistic children to be educated at all and in particular to receive ABA instruction from UNB-CEL Autism trained aides.

A third force opposing parents advocating for UNB-CEL training for our children was, and is, the union representing education aides, CUPE Local 2745 and its leader Sandy Harding. During the time I was ASNB President I had requested a meeting with Ms. Harding's predecessor to seek the CUPE Local 2745 support for autism trained education aides (TA's).  Ms Harding's predecessor was not interested and she herself upon taking office as Local 2745 president has been openly hostile to any serious training requirement for aides working with autistic students.  

CUPE Local 2745 has used its considerable clout to resist any training requirement and pushed hard for seniority as the only requirement for aides working with children with autistic disorders. As a labour lawyer with a quarter of a century experience, in New Brunswick and federally, I can say that such a lop sided approach to any job posting requirement is almost unheard of and, as the Alward government currently genuflects before CUPE Local 2745, constitutes an abandonment of management rights. Removal of the UNB autism training requirement in favor of pure seniority considerations and refusal to permit learning outside the classroom when necessary also constitute failure to accommodate the autistic disorders, the neurological based disabilities of children with autism contrary to Human Rights Act requirements.   Both the Alward government and CUPE Local 2745 are now discriminating against children with autism disorders by refusing to acknowledge the need for autism training for aides working with children with autism disorders which are in fact serious neurological disorders.

With these three major institutional forces aligned in lock step opposition to the accommodation of New Brunswick's autistic students comes a fourth factor - the current shaky state of the world economy. Economic factors currently provide perfect cover for the Alward government to abandon the quality and integrity of the UNB-CEL autism training for the sloppy in house training that was opposed by the Autism Society New Brunswick and for a surrender of our children's best interests in the face of the adult interests of untrained senior members of CUPE Local 2745.

In this perfect storm the revival for the public of the UNB-CEL Autism Intervention training program, and the quality and integrity it provides, is one bright light in the darkness.  It  is a beacon to guide us and provide hope that better days are ahead.

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Thank You To All Who Were Involved With NB`s Incredible Autism Success Story: The UNB-CEL Autism Intervention Training Program

The foundation for the autism service gains that have been made in New Brunswick over the past several years has been dismantled and shut down for good. The screen image above is what I found when I did a search of the University of New Brunswick web site looking to see what, if any, course would still be offered by the UNB-CEL Autism Intervention Training program.  The content section of the screen, however, was literally blank. The UNB-CEL Autism Intervention Training Program is no more.

I was aware for some time that the Alward-Carr-Porter team would not continue to train education assistants and resource teachers through the program.  Autism training will be done "in house" by an education department hierarchy that resisted the program in the first place because it wasn't their project and because they thought it cost too much.  Now pre-school early intervention autism workers will no longer be trained at UNB-CEL either.  Apparently Minister Carr and his combined education-early childhood development team feels that it can do better by consulting experts to instruct our autism intervention agencies on how to provide their own versions of in house early autism intervention.  Minister Carr and Gordon Porter  will call the services they oversee evidence based but an evidence based autism intervention requires a level of quality and integrity that in house training subject to conflicting adult interests is unlikely to meet.

The UNB-CEL Autism program arose as a response to determined advocacy by parents of autistic children.  The program provided NB`s autistic children and students with quality and integrity in the intervention and instruction they received.  Former Premier Bernard Lord responded very personally, and very constructively,  despite the at times combative nature or our advocacy, to our requests.  His government looked for service providers that could provide the necessary early intervention services.  Rather than import and pay huge fees to import services from Ontario a steering committee of various autism professionals, academics and parents involved with autism issues thought it would be a good idea to develop a program using local expertise.  Premier Lord, and after him Premier Graham,  agreed and UNB-CEL provided the autism training for the services our children needed.

Anne Higgins, a brilliant administrator who at that time was with the University of New Brunswick was a key part of the group that founded the UNB-CEL Autism Intervention Training program.  She put a tight organizational plan together and implemented it  with incredible efficiency.  UNB Professor Emeritus (Psychology) and clinical psychologist Paul McDonnell and UNB Psychology professor Barb D'Entremont led the team at UNB that developed the content for the program.  Private autism agencies were established and the UNB-CEL Autism Intervention Training program was used to train early autism intervention and clinical supervisors for New Brunswick's two official language groups.

New Brunswick parents of autistic children advocated for an extension of the UNB autism training to the school system with requests that teacher assistants and resource teachers working with students with autism also receive the UNB autism training.  Both Premier Lord and Premier Graham, in direct discussions with representatives of New Brunswick's autism community, responded positively.  

The training of early intervention and education personnel working with autistic children and students met with fierce resistance, some of it from career bureaucrats in the higher echelons of the Department of Education and some of it from New Brunswick's inaccurately characterized "inclusion" and "community" movement.  Now with Minister Carr and NBACL inclusion icon Gordon Porter in charge of both early childhood development and schools the UNB-CEL autism training is no longer wanted.   The foundation of our autism gains in recent years has been abandoned. My comments are gloomy but they reflect current realities under this administration. 

I would like to end this comment on a positive note though by thanking all persons involved with the UNB-CEL Autism Intervention Training Program, particularly Anne Higgins, Paul McDonnell and Barb D`Entremont.  I would also like to thank all the parents whose efforts in advocating for early intervention and education assistance for our autistic children led to the establishment of the UNB-CEL autism training.  Without determined, focused autism parent advocacy there would have been no UNB-CEL autism program. Thank you all.

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New Brunswick Autism Service Delivery Model At The CAUCE Conference 2008

The New Brunswick Autism Service Model will be discussed at the CAUCE Conference 2008 hosted this year by the University of Western Ontario. CAUCE, the Canadian Association for University Continuing Education, will be holding its 2008 Conference May 27, 2008 - May 31, 2008 at the Hilton London Ontario. Anne Higgins and Sheila Burt will be there for concurrent session 5 on May 30. Discussion of the New Brunswick Autism Service Model will focus on the UNB-CEL Autism Intervention Training Program:

How to Keep the Pieces Together: A Multi-Partnered Community Based Training Program

Anne Higgins, Director, Professional Development, College of Extended Learning, University of New Brunswick

Sheila Burt, Manager, Professional Development Division Delivery Team, University of New Brunswick

In 1998, a University of New Brunswick (UNB) professor and the autism community in the province lobbied the provincial government to fund intervention treatment for pre-school children. Today, the families of autistic children receive multi-partnered, systematized intervention services. The College of Extended Learning (CEL) at UNB is a pivotal partner in this endeavour, providing bilingual training and practicums, as well as holding together the many critical pieces of the complex service delivery. This session will examine the critical pieces that need to be paid attention to in the development and delivery of a multi-partnered, community-based training program and how the CEL has put mechanisms in place to anticipate problems and how these mechanisms are used to respond to multiple unique agendas.

The UNB professor referenced in the above excerpt is Professor Emeritus (Psychology) and Clinical Psychologist Paul McDonnell. Paul was honored by the Autism Society of New Brunswick in 2006 for his contributions to autism in New Brunswick. He is the only person who has been so honored and it is impossible to overstate his role in improving the lives of autistic persons in New Brunswick. He has worked directly with autistic children, educated parents, professionals and public decision makers. Paul has guided the autism community and autism advocates toward effective evidence based interventions for autism and has provided many of the cornerstone elements of the New Brunswick Autism Service Model.

In the excerpt it also states that "the College of Extended Learning (CEL) at UNB is a pivotal partner in this endeavour". I agree completely with that statement. Anne Higgins and Sheila Burt, working with Paul, Barb D'Entremont and Amanda Morgan from UNB have put together the UNB-CEL Autism Intervention Training Program which now provides training to persons working with autistic preschoolers and in New Brunswick schools. The UNB-CEL AIT program is marked by its quality and integrity and ensures that autistic children in New Brunswick receive quality effective evidence based intervention and education.

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Autistic Children "Rotting On The Vine" In Ontario - Why Not Consider "the New Brunswick Autism Model"?

In Wait list for autism therapy growing, critics charge the Star.com reports that "the wait list of autistic children who are eligible to receive intensive behavioural intervention therapy, or IBI, reached 1,148 on March 31, up from 985 last year." NDP critics argue that the government is moving at a slow, even glacial, pace resulting in many children "rotting on the vine" in the words of NDP critic Andrea Horwath who was also quoting parents she had met at a town hall meeting. The article describes spending increases by the McGuinty government but does not really describe a plan for getting children off the autism wait lists.

When I was in Ontario last week, as part of the Medicare for Autism NOW! campaign, I had the privilege of meeting some Ontario parents and discussing autism realities in Ontario. I heard of autistic children facing bureaucratic obstacles, waiting on lists for treatment only to "age out" before receiving treatment; or after just getting started. I mentioned the New Brunswick autism model as one that Ontario might want to consider.

In New Brunswick autism services are far from perfect but we have come far with the effort of determined parents, a sympathetic public and ... responsive political leaders. We have also been fortunate that political leaders of both major political parties in New Brunswick, aside from some exceptions, have tended to be genuine in their desire to help autistic children. So what is "the New Brunswick autism service model" and why is it working? (Yes, there are problems and the need to continually improve but generally we are much better off than Ontario.)

The key to "the New Brunswick autism model" is the University of New Brunswick Autism Intervention Training program offered through UNB's College of Extended Learning. The program provides training for autism support workers and clinical supervisors to provide evidence based interventions to children with autism during the pre-school years. Those interventions are provided by agencies which must be approved by the Department of Social Development and must be accountable for the quality of the services provided. The UNB-CEL AIT has also begun providing similar training to teacher/education aides and resource teachers. We are no longer debating whether ABA can be provided in New Brunswick schools as they are in Ontario. Here it has been happening. My son, Conor, has received ABA based instruction for the past 4 years. The teacher aides providing the instruction in school have been trained at UNB-CEL Autism Intervention Training program. While Discrete Trial Training is used for academic instruction, more general ABA principles are also employed in settings such as the school gym.

The UNB-CEL AIT program began as a response to a call for tenders by the Department of Family and Community Services (now the Department of Social Development) to provide pre-school autism intervention services in New Brunswick. It began, literally, at a meeting of the proposed UNB Autism Centre committee of which I was a member. Asked whether the College of Extended Learning could be of assistance Anne Higgins director of professional development at UNB-CEL listed the administrative milestones that would have to be met. Then, like few people I have ever seen, she and her team at UNB-CEL got the things done to meet those targets. The curriculum and instruction quality were overseen and assured by Clinical Psychologist and Professor Emeritus (Psychology) Paul McDonnell. With other Autism Society and parent reps on the committee we saw the program established from the outset and have complete confidence in the quality and integrity of the program. The program is continually evolving with input from the Departments of Social Development and Education and from the autism community.

A couple of years ago I was offered employment in the Toronto area with a labour organization whose leadership I had already worked with. It was really a dream job but I turned it down. In part because I grew up attending as many as three schools in one year as an "army brat" and my two sons had both had the opportunity to attend the same grade school and middle school without moving from place to place. But the biggest reason for not wanting to move was the fact that Conor was receiving ABA based school instruction from an aide trained at UNB-CEL using programs designed and overseen by a teacher who had received the Clinical Supervisor training at UNB-CEL. He has now had almost 4 years of such education and I am glad, for his sake, I decided to stay in New Brunswick.

I don't know if the Ontario bureaucrats would consider developing the New Brunswick model in Ontario for pre-school and school age children. Nor do I know if parents would want that. In Ontario they seem hung up on the IBI versus ABA labels a distinction without a real difference. But if autistic children are "rotting on the vine" in Ontario they might want to at least take a look at what we have done right here in New Brunswick.

If the people in Ontario are interested in what has happened in New Brunswick they might want to consider the CAUCE 2008 sessions, session five, on May 30 at the University of Western Ontario. Anne Higgins and Sheila Burt from UNB-CEL Autism Intervention Training will be participating and speaking about the pivotal role of UNB-CEL in providing multi-partnered, systematized autism intervention services.

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