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‏إظهار الرسائل ذات التسميات misrepresenting autism. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات misrepresenting autism. إظهار كافة الرسائل

CNN's Very High Functioning Autism Awareness Efforts Misrepresent Autism Disorders




CNN's Portrayal of Autism In the Days Surrounding WAAD 2013
Middle - Jack and John Elder Robison - High Functioning Aspergers
Bottom -Trevor Pacelli High Functioning PDD-NOS (Holli Dunn Photography)

To no big surprise successful, very high functioning Asperger's businsessman, author and family man John Elder Robison's new book Bringing Up Cubby has benefited from two high profile interview promotions on CNN. A promotional appearance with his son on Dr. Sanjay Gupta's Sunday show was followed with a gushing interview on the CNN morning show Early Start. CNN, and its in house neurosurgeon Dr. Sanjay Gupta, have long delighted in interviewing very intelligent persons with autism.

Neither of these interviews enlightened the world about the realities faced by those less fortunate than the Aspergers family Robison, those with severe autistic disorder. There was discussion of not having a lot of friends but no discussion of intellectual disabilities, serious self injurious behaviors, children wandering, sometimes with dangerous consequences, far from family or schools, the challenges of severely autistic children in schools or in finding a place to live when their parents grow old and ultimately become deceased.

CNN's autism awareness effort wasn't restricted to promoting very high functioning businessman John Elder Robison's literary career. It also assisted in kick starting the career of yet another very high functioning person with autism. The CNN obsession with high functioning autism continued  with a special to CNN article by Trevor Pacelli self described as a high functioning individual with PDD-NOS. Below his Holli Dunn Photography picture it states that: "Trevor Pacelli, 20, maintains a 3.6 GPA at community college and has been accepted to five universities."

Several years ago CNN afforded several episodes to the Amanda Baggs story, portraying her as low functioning. Subsequent to the CNN-Baggs collaborations several former acquaintances of Baggs, who attended the same private school for gifted youths, as she had attended came forward on the internet to describe her as a highly verbal, creative individual with normal functioning abilities.

I am not suggesting that CNN or Dr. Sanjay Gupta intentionally misrepresent autism to enhance ratings and profits. I recognize that Dr. Gupta has a busy schedule and it would not be easy for him and his crew to visit a facility caring for children, youth or adults with severe autism disorders.   I am simply stating that, for whatever reasons, Dr. Sanjay Gupta and CNN present misrepresent autism to the world by repeatedly featuring high functioning persons with autism.

Obviously Dr. Gupta and CNN are not alone in portraying high functioning autism as representing the entire autism spectrum.  Autism Speaks engages in the same exercise with  very high functioning  John Elder Robison and high functioning Alex Plank and tends to downplay intellectual disability and other inconvenient severe realities facing many with autistic disorder.

Autism fund raising power houses and major mainstream media alike misrepresent autism to the world painting a picture of autism as gifted, shy individuals while ignoring the harsher realities facing those on the severe end of the autism spectrum.

This misrepresentation provides cover for governments in funding autism research and  in providing services for those with severe autism disorders: why waste dollars researching or providing services for a disorder that appears not to be a disorder after all? 

No Autism Advantage for My Son As He Slaps His Head and Bites His Wrists


The pictures above were taken of my son Conor during our early morning walk yesterday.  We have enjoyed many such walks and yesterday was a beautiful fresh fall morning that we both enjoyed.  Most of the rest of the day was also great.  Conor is a lot of fun, notwithstanding his Autistic Disorder. I enjoyed every moment with him ... except as the day drew to an end.  

At about 7:30 pm last evening Conor started to repeat the phrase school on Sunday, school on Sunday, school on Sunday .... endlessly.  He also began slapping his head and biting his hands, wrists and legs.  My attempts to communicate with him and modify his behavior, which apparently Dr. Laurent Mottron, and his mentor Michelle Dawson, would consider advantageous behavior, were only mildly successful.  I tried to get him into his bedtime routine in the downstairs washroom, to get him brushing his teeth, washing his face etc. The immediate result was a full scale meltdown which I overcame simply by loudly commanding him to begin brushing his teeth.  

As Conor completed his bedtime preparation he calmed down.  At 8:00 pm he went to sleep on the living room couch as he often likes to do.  I placed pillows under his head and covered him with lots of thick heavy blankets, then stayed nearby working at a computer in the adjacent kitchen.  Conor made some gentle singing and whistling sounds but engaged in no more self injurious or loud behaviors as he quietly went to sleep.

I  was thankful, for his sake and mine, that my son's autism advantage had disappeared for the night, that his slapping, biting and screaming had stopped and that he was able to get some sleep.

I look forward to another beautiful morning walk with Conor today but I hope that his autism advantage does not return. 

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