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‏إظهار الرسائل ذات التسميات Boston Legal. إظهار كافة الرسائل
‏إظهار الرسائل ذات التسميات Boston Legal. إظهار كافة الرسائل

Autism? Should CNN Have Said Prime-time Television Tackles Aspergers not Autism?

I punched "autism" into the Twitter Search bar and one of the entries referenced a CNN Entertainment story titled "Prime-time television tackles autism".  When I saw the headline I assumed that the story referenced Aspergers not Autistic Disorder and I was right.  In movies or television, fiction eg. Boston Legal, or news Aspergers is the face of Autism while severely disabled, including intellectually disabled, persons with Autistic Disorder remain safely hidden out of sight ... and out of mind.

And of course US President Barack Obama's administration has seen fit to place a very high functioning University student with Aspergers,  who does not view autism as a medical disability, and presumes to speak on behalf of those severely disabled by Autistic Disorder when he claims that "WE" do not want to be cured,  on a national disability council and on the Interagency Autism Coordinating Committee. At the same time the good doctors in charge of the DSM-5 are busy converting the alleged autism spectrum of disorders from the original Autistic Disorder into one consistent with High Functioning Autism and Aspergers.

Yes, the final step on the exclusion of those with Autistic Disorder and Intellectual Disability, comprising 75-80% of those with the current Autistic Disorder diagnosis, from the Autism diagnostic category  is well under way. with the creation of the New Autism Spectrum Disorder in the DSM-5.   

When  the DSM-5 autism revisions, and exclusion of low functioning persons with Autistic Disorder,  are complete no one will notice. They will be too busy watching characters with Aspergers on re-runs of Boston Legal and Parenthood.
 

Autism, Fredericton Trails and the Joy of Conor

I try to present a realistic, straight up, non-ideological picture of autism on this blog site. I understand the need of some persons with High Functioning Autism and Aspergers Disorder to portray autism in a positive light. It is about their self esteem. They want to feel good about themselves autism and all. Unfortunately when those self validation efforts are carried out in media campaigns that all too often glorify autism, a neurological disorder with very serious challenges and deficits for many more severely affected by the disorder the public receives a distorted, unrealistic picture of autism disorders.

My son Conor, with Autistic Disorder, is one of the more severely affected. He does not function anywhere near his chronological age level. He has limited communication. He requires constant adult supervision ... for his safety. As the fictional television (Boston Legal) lawyer Denny Crane would say ... It's that simple.

My effort to be honest about Conor and his realities also leads me to the more pleasant part of painting the whole picture: the incredible Joy that Conor brings me every single day. Anyone who has visited this blog site from time to time knows that I love to post pictures of Conor on the Fredericton trail system. I love a lot about life in Fredericton but in particular I love the trail system which is literally seconds from our door.

The night after our somewhat strenuous Bridge Walk adventure Conor and Dad headed out for a more leisurely walk on the North Riverfront Trail down to the Circle Place, the Lawrence Amphitheater. It was windy, very windy but the wind only added to the fun as we made our way down the trail.

All part of the Joy of Conor.











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No Autism Funding Just Jibber Jabber In Harper Budget


Shelly Berman as Judge Robert Sanders on Boston Legal
"What is this jibber-jabber? I don't like jibber jabber in my courtroom"


Senator Jim Munson, who has been an unrelenting advocate on behalf of Canadians with autism disorders and their families, questioned Marjory LeBreton (Leader of the Government and Minister of State (Seniors) yesterday over the lack of funding for autism in the Harper government budget:

"Hon. Jim Munson: Honourable senators, my question is for the Leader of the Government in the Senate. Last week's federal budget talked a lot about infrastructure. My question is about another kind of infrastructure, namely, social infrastructure.

(1505)

I talked about it yesterday, as did Senator Oliver, in dealing with autism. I do not need to go over all the figures. One in 150 families is affected by autism.

Parliament has taken steps. We lobbied hard and Minister Clement listened and did some work.

Will the government consider taking a further step to create a division for autism within the Public Health Agency of Canada so that this condition can be looked at, receive the attention it deserves, and families can receive the help they so desperately need? I am looking for that national leadership focus.

Hon. Marjory LeBreton (Leader of the Government and Minister of State (Seniors)): I am well aware of the honourable senator's hard work on the subject of autism.

As the honourable senator knows, when Minister Clement was Minister of Health he set up a research chair to study ways to move this issue forward. Autism is one of many conditions that falls within the purview of provincial departments of health and, of course, health care is delivered by the provinces.

With regard to the budget, a great deal of money has been set aside at universities for research in science and technology. It is hoped that indirectly, through the money that has been provided to universities, to the science community and to the health system, in addition to all the money that the government transfers to the provinces for health care, the treatment of autism will move forward quickly in the near or immediate future.

With the budget and the actions that the government has taken, in our consultations in various areas, we have tried to reach out to the good suggestions that are there, including the worthy ones of the honourable senator.

I am sure that Minister Aglukkaq � who is from the North, I am happy to say � and her officials, will have reviewed the files that Minister Clement was working on in terms of autism. I cannot say definitively what they are but I will find out."

Debates of the Senate (Hansard) 2nd Session, 40th Parliament,
Volume 146, Issue 7 Thursday, February 5, 2009


The reply by the Honourable Marjory LeBreton betrays no actual knowledge of autism or the evidence based effective autism intervention, ABA, that so many autistic Canadian children require to help them overcome their deficits and live fuller lives. In case someon on Ms LeBreton's staff Stumbles Upon or otherwise inadvertently reads this blog site I offer the following information from the American Academy of Pediatrics, also found on the upper right hand corner of this blog site:

The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have been significantly better than those of children in control groups.31–4

American Academy of Pediatrics, Management of Children with Autism Spectrum Disorders

I also bring to the attention of the Honourable Ms LeBreton that many autistic Canadian adults are living in reprehensible residential care facilities if they are lucky and are not simply living on the ward of a general hospital as has occurred here in New Brunswick. Some are actually exported to the United States to receive residential based treatment not available here in New Brunswick and other parts of the country.

Please Ms LeBreton, stop posturing with nonsense about autism research dollars. Canadian research for autism is not generally directed at finding cures or treatment for autism. At least some of it goes to researchers more interested in promoting feel good "autism is beautiful" nonsense.

If Ms LeBreton has a conscience, and any integrity, I ask her to please stop with the "jibber jabber" (parents advocating for autistic family members have heard it for years) and start talking about funding ABA services for autistic children and decent residential care and treatment facilities for autistic adults wherever they happen to live in Canada.




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