End the Vaccine-Autism War Now: Do The Comparative Study and Quit Demeaning the Parents Who Actually Care for Autistic Children

The vaccine-autism war has continued unabated, primarily because of the actions of Dr. Paul Offit, Dr. Thomas Insel and the IACC. It will continue until a credible observational study comparing autism rates in vaccinated and unvaccinated populations is done.

The IACC ventured near a possible end to the war when it contemplated doing an observational study comparing autism rates in vaccinated and unvaccinated populations. Instead, under Dr. Insel's direction, it engaged in procedural shenanigans to take the option off the table, aggravating hostility and suspicion amongst those who observed the onset of autism symptoms in their children after vaccination.

Dr. Insel added to the mess by informing Senator Harkin's committee that such a study could not be done. Dr. Bernadine Healy, former head of the NIH, and Dr. Julie Gerberding, formerly of the CDC, have both stated that the observational autism study could and should be done. Dr. Duane Alexander has also stated that such a study could be done.

Dr. Paul Offit signaled that it was OK for the media to heap scorn on vaccine concerned parents when he painted himself as a martyr and began a crusade to silence any criticism or questioning of vaccines. Now mainstream media and bloggers, including alleged science bloggers , routinely demean and admonish the people who are actually helping autistic children ... their parents. In doing so they are hurting those same autistic children and elevating hostilities in the vaccine-autism war.

It is parents, not Dr. Paul Offit, who actually do the day to day caring for autistic children and who represent their children's interests. In telling these parents to sit down and shut up, in mocking these parents, the "vaccines above all else crowd" are in fact signaling their contempt for the role of the family, the role of parents, in caring for and raising children.


The IACC can continue to sit by and hope that the current Offit inspired media offensive against parents of autistic children who question whether vaccines caused or triggered their child's autism will silence those parents. It is a false and futile hope. Not because these parents are inherently stubborn but because they require more than condescension , flawed, conflicted, statistical massages, and trite cliches (correlation does not imply causation) before they will be persuaded.

If the IACC wants to end the vaccine-autism war it will recommend funding to do the comparative study called for by Dr. Healy and Dr. Gerberding and have it done by credible, conflict free, research authorities. The more the IACC resists calls for such a study the more it will appear it has something to hide. If it wants the vaccine-autism war to continue it will refuse to conduct the study.

It's that simple.

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Vaccine-Autism War: Will Beating Up Jenny and Oprah End the War?

From Newsweek to Discover online to the self appointed protectors of science who contend that any questioning of the safety of injecting substances containing mercury, aluminum and biological agents directly into the blood of young children on dozens of occasions constitutes "woo" the Offit Offensive has rolled out with a vengeance lashing out at Jenny McCarthy and Oprah Winfrey for the attention they bring to parents' concerns about vaccine safety. Will these vicious personal attacks convince those parents who have seen their children regress into autism after vaccination? I doubt it. I doubt it very much.

If the self styled anti-woo brigade really wants to persuade parents that their concerns about multiple injections of potentially toxic chemicals and biological agents into their children's bloodstream is risk free they should change course. Stop repeating the same failed tactics over and over and over again. Do the comparison study of vaccinated and unvaccinated populations that credible health authorities like Dr. Bernadine Healy, Dr. Julie Gerberding, Dr. Duane Alexander and neurologist, university professor, "autism dad" and successful vaccine autism litigant, Dr. Jon Poling have all said could and should be done.

Dr. Paul Offit and others should stop the silly name calling. You will change no minds with such foolishness. Stop playing in the "woo" and do the credible studies to change minds. If you want to stem the tide of concern over vaccine safety do the research that will convince people of vaccine safety .... or start accepting your own responsibility for continued public suspicion over the safety of vaccines.

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Vaccine-Autism War: National Post Junk Journalism Continues With Jenny McCarthy Attacks

Jenny McCarthy is an easy target.

For that reason the lazy, ill informed "journalists" at the National Post continue to attack Ms McCarthy in yet another doomed to fail attempt to quash public discussion of vaccine autism concerns. Meanwhile they continue to omit any reference to respected medical and research authorities like Dr. Bernadine Healey, Dr. Julie Gerberding, Dr. Duane Alexandre all of who have said that more research could and should be done on the issue. The junk journalists at the NP ignore Dr. Jon Poling a neurologist and father of an autistic child who brought a vaccine based autism claim to successful conclusion on behalf of his daughter when the government settled.

The NP despite having its attention brought to the Poling and Banks cases again omits any reference to these two cases in which it is known that the government settled vaccine autism claims. The NP omitted any reference to the IACC decision to include vaccine autism research in its strategic autism research planning. The NP omitted any reference to the criticisms of the epidemiological studies which are used to trumpet the position that the science has "decided" that vaccines do not cause or contribute to autism onset. The NP has omitted any reference to the well founded view that such studies do not examine the impact on vulnerable population subsets and possible connections to autism among such groups of children. The NP has omitted any reference to the fact that public health authorities have long discouraged the kinds of research that might disclose any vaccine autism connection.

In all fairness to the National Post Junk Journalists the issues listed above might be above their pay grade. Better for them to refrain from doing any real, hard journalism or any real, hard thinking.

Far better, and easier, to simply malign Jenny McCarthy. Of course those who actually know something about the subject and who want their concerns addressed will not be persuaded by such cheap, cowardly excuses for journalism

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Vaccine-Autism War: National Post Ripped Over Junk Journalism

Vaccines have saved the lives, and continue to save the lives, of many children.

To my knowledge no one doubts that fact. No one doubts that vaccine programs serve the public interest. Many people, however, want to be informed about the negative aspects of vaccines. Contrary to what many in the media believe there are serious, legitimate questions that remain about the possible role of vaccines and vaccine ingredients in relation to autism. Many parents of autistic children refuse to shut up and be silent. They refuse to be told that they can not discuss vaccine safety issues in public. They refuse to be told that vaccine programs are sacred cows which must not be questioned.

There is a need for more research to be done on vaccine safety issues generally and in relation specifically to autism. Dr. Bernadine Healy, Dr. Julie Gerberding, Dr. Duane Alexandre and neurologist and autism dad Dr. Jon Poling, he who successfully reached a settlement on behalf of his autistic daughter in a vaccine damage claim, have all called for more research to be done on possible vaccine autism connections. Sounds reasonable but many "journalists" have climbed aboard the "speak no evil", "ask no questions", "shut up and be a good little mommy or daddy" train of thought which dictates that it is wrong to discuss or research these issues. Such efforts to suppress free discussion by parents seeking to protect their children are counter-productive. The failure of such a strategy was recognized by the IACC, the Interagency Autism Coordinating Committee when its recently released strategic plan included vaccine autism research; if only to restore public confidence in vaccine programs.

Media outlets though continue to talk as though no legitimate questions have been asked. They offer completely one sided pictures of the legitimate vaccine autism issues. One recent example is the National Post article Junk science has a new cover girl in which the National Post attacks any and all who presume to ask questions about vaccine safety and autism. The NP article focuses on Jenny McCarthy and Oprah Winfrey and is blatantly one sided. Autism blogger Lea Schizas at Shaking the System, a blog she co-authors with Litsa Kamateros, has critiqued the NP's "journalism" in her aptly named comment Junk Journalism Once Again. Lea has written a letter to the National Post which I reprint here with her permission:

How like a newspaper to give a one-sided account and not bother to contact the biomedical specialists who are doctors and get their input. Has the newspaper business become so afraid to counter the billion dollar pharmaceutical industry and give a thorough investigation?

Allow me the opportunity to dissect Mr. Allen’s article with my own input:

A parent is a parent is a parent. As doctors themselves state we are the ones who best know our children. So whether Jenny was once associated with Playboy is not the issue but only a glamorous put down by this journalist. Jenny is not the only one who noticed a change in her child but thousands, and I state thousands because there were 4900 cases pending in the US last year all waiting to have their chance to say how vaccines had injured their children.

Also, I didn’t read the part where Jenny states she is pro-vaccine but wanting the medical profession to change the vaccine schedule for the children who might hide a disorder/dysfunction that makes them susceptible to multi-vaccines. Missing, too, was the fact that in the 80s US children received 10-12 vaccines by the age of 6 and now up to 36. Are you telling me that these compounded vaccines do not have the possibility of harming a toddler, ones who might have a mitochondrial dysfunction?

Where, also, is mention of the Hannah Poling or Bailey Banks cases where they were conceded in the courts that vaccines DID cause these children’s autism? How many cases of vaccine-injured children do we need to show that some children cannot handle the accumulated toxins needled into them? The medical professionals need to devise a test to try and evaluate a child’s susceptibility before their vaccines begin. And please get it right that no one disputes that vaccines have helped and will continue to help. But a better or delayed schedule should be considered. Children are now given at day one of birth the Hepatitis Vaccine, an age where any hidden health issues might not have surfaced yet.

And your mention of Humphrey Bogart, Louis Armstrong, and Elvis Presley advocating for vaccines gives no credence to an issue that back then had no clue about autism as much as there is now.

Research continues in various levels from genetic to environmental factors. And if you’re going to bash Jenny McCarthy, then why not mention Robert Kennedy as well with his own backing and autism advocacy about a meeting behind closed doors of top specialists and organizations where whispers of the possibility of vaccines harming children were spoken.

For this reason my title to Mr. Allen’s article is Junk Journalism Once Again.

Lea Schizas

In addition to the blog Shaking the System Lea Schizas and Litsa Kamateros publish on their web site The Autism Epidemic.

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Autism Science Foundation - Doesn't Science Require An Open Mind?

The Autism Science Foundation, a new purported autism advocacy group, has been formed and announced to the world.

I have some concerns about the ASF's approach to advocating for "autism science". The new Foundation has announced that it will focus on non-vaccine related causes of autism. From its inception it has ruled out the possibility that vaccines could cause or contribute to autism, even in potentially susceptible population subgroups. To this humble non-scientist such an approach smacks more of political goals than scientific research. The ASF makes a clearly political statement supportive of vaccine programs and concluding with finality that vaccines do not cause autism:

The Autism Science Foundation’s mission is premised on the following facts and principles:

• Vaccines save lives; they do not cause autism. Numerous studies have failed to show a causal link between vaccines and autism. Vaccine safety research should continue to be conducted by the public health system in order to ensure vaccine safety and maintain confidence in our national vaccine program, but further investment of limited autism research dollars is not warranted at this time.

In fact Dr. Bernadine Healy former CDC head, and Dr. Julie Gerberding, recent NIH head, have indicated that more vaccine autism research is needed. Dr. Duane Alexander, Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), an NIH agency stated, as reported by David Kirby at the Huffington Post that "scientists must investigate susceptible subpopulations of children, including kids with mitochondrial disorders and those who have trouble metabolizing mercury." Kirby quotes Dr. Alexander's statement from a February 24, 2009 interview with Dr. Geraldine Dawson of Autism Speaks:

"One question (is) whether there is a subgroup in the population that, on a genetic basis, is more susceptible to some vaccine characteristic or component than most of the population, and may develop an ASD in response to something about vaccination. We know that genetic variations exist that cause adverse reactions to specific foods, medications, or anesthetic agents. It is legitimate to ask whether a similar situation may exist for vaccines"

Given the existence of legitimate questions concerning possible vaccine autism questions it seems odd for an organization founded to provide quality scientific research to make such a dogmatic statement conclusively ruling out those very questions. It also seems odd that the founders of this organization believe that public confidence in the vaccine program will be maintained by shutting the door on areas of research in which substantial numbers of the population believe are legitimate areas of inquiry - including members of the public like Dr. Bernadine Healy, Dr. Julie Gerberding, Dr. Duane Alexander and Dr. Jon Poling.

Personally, this father of a 13 year old autistic boy does not have a rigid view of the vaccine-autism issues. While I once accepted without serous question the official view of these issues I have changed my position. While I have not concluded that vaccines or vaccine ingredients cause autism I now have an open mind on the issues, largely because of the views expressed by credible people like Dr. Healy. As a lawyer I can also not ignore the fact that some of the vaccine cases have resulted in settlements in favor of the plaintiffs where a vaccine-autism connection was alleged, particularly in the Banks and Poling cases.

Personally, this humble member of the public would have greater confidence in the safety of vaccine programs if more research of the type suggested by Doctors Healy, Gerberding and Alexander were conducted and the results were positive than by the incessant repetition of the dogma that the vaccine-autism link has been disproven. It has not. And many members of the public know that. It is time to do the research and move on.

Hopefully the "Autism Science Foundation" will stick to advocating FOR research of possible autism causes, and treatments, and not spend its time simply promoting the view, not shared by all, that there is no possible vaccine- autism connection.

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Autism Reporting: Mainstream Media's Incompetent Handling of Autism Issues

One point that has become crystal clear in the recent discussion of the vaccine-autism war. The mainstream media, as a general rule, is not competent in its coverage of autism issues. The New York Times and the Globe & Mail (self promoted as "Canada's National Newspaper") have been brutally one-sided in their misrepresentation of vaccine-autism issues. They have largely abandoned their journalists' hats to promote the views of public health authorities and the vaccine industry.

CNN's Campbell Brown has also weighed in with a largely ignorant, mostly bull and lots of bias, attack on those who express concerns about vaccine safety and autism disorders. Contrary to Brown's ill informed opinion there is evidence in support of a vaccine autism link. Science has not "decided" the issue. The question, according to at least 3 very senior and credible health authorities, doctors Healy, Gerberding and Alexander, is still very much open and should be studied further. On other autism issues Canada's CBC, the New Yorker, and many other major media outlets have pandered to the Neurodiversity movement's misrepresentation of autism and persons with autism.

There have been exceptions. The Vancouver Sun did an excellent series, Faces of Autism, on the diversity of autism spectrum disorders and was not afraid to show and describe the realities of life for a severely autistic girl and her vamily. Faces of Autism, with its balanced, honest portrayl of autism was everything in terms of responsible journalism that the CBC's Positively Autistic series was not. Likewise CBS (and US News and World Report) have done some excellent work on the vaccine-autism war presenting the very learned, well informed views of Dr. Healy that the existing studies are not specific enough to address population subsets that might be more vulnerable to autism exposure.

The reality today is that those actively informed about autism issues and seeking more perspective on autism issues are more likely to find them on the blogosphere. The Huffington Post has featured the autism vaccine issues on its Autism News page. It has provided an outlook for both sides of the debate, with David Kirby and Robert F. Kennedy featured on the same page as vaccine patent holder and industry spokesperson Dr Paul Offit. The Age of Autism is not as balanced as the Huffington Post but is an excellent site for information from the perspective of those who believe that vaccines cause or contribute to autism disorders.

Informed, balanced blogs are now being written by academics and professionals interested in autism issues. One of my favorites is Autism Research Blog: Translating Autism authored by Nestor L. Lopez-Duran Ph.D. a clinical child psychologist and neuroscience researcher working at a large Midwest university-based child psychiatric institute. The Lovaas Institute and the Center for Autism and Related Disorders also have blogs.

There are many fine parent blogs of which this blog is the best (just kidding). Many are listed on the side bar of this blog. There are also blogs by autistic persons, including Jonathan Mitchell's autism's gadfly and a blog by autistic artist Stephanie Lynn Keil.

The Neurodiversity movement with its anti-treatment, anti-cure, social construct model of autism has many blogs including the neurodiversity page at change.org authored by Dora Raymaker and Kristina Chew and Kevin Leitch's LB/RB. The latter site can offer provocative discussion on important issues at times but often degenerates into smears, name calling and insults of those who do not share a neurodiversity perspective. About.com Autism by Lisa Jo Rudy is a corporate blog written by a parent who shares a neurodiversity perspective but tries honestly to present all sides of autism issues objectively and with impeccable courtesy.

The mainstream corporate media really showed its colors with its grossly unbalanced reporting of the Autism Omnibus hearings jumping up and down in the air and declaring that science has spoken and that vaccines do not cause autism. The same media ignored the 2007 decision in Bank v HHS for which compensation was announced recently for a decision in which the Special Master accepted a claim that vaccines led to ADEM in a child which resulted in PDD-NOS, an autism spectrum disorder. The same corporate media, in announcing that vaccines did not cause autism also ignored the Poling case in which government acknowledged that vaccines caused "autism like" symptoms (autism currently is diagnosed by symptoms there being no accepted biological test). As stated above, the mainstream media largely ignored the views of former NIH head Dr. Bernadine Healy, recent CDC head Dr. Julie Gerberding and Dr. Duane Alexander an NIH agency head that more research on vaccine autism issues could and should be done preferring instead to regurgitate pejorative descriptions of parents who describe their own first hand observations of their children's regression after vaccine treatment.

Autism reports in the mainstream media should be taken with a huge grain of salt not because of the existence of a conspiracy, although conspiracies a la Madoff and Enron do exist, but because of the widespread ignorance of many in the media and their increasingly ill informed, imbalanced, and unobjective journalism.

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President Obama Requests Autism Research Dollars, Let's Hope Some Is for Environmental Autism Research

President Barack Obama has requested $211 million as part of the Department of Health and Human Services budget for autism research and services. Let's hope a substantial portion of the research is directed towards environmental research, including possible vaccine causes, and for treatments. The "it's gotta be genetic model" of autism research funding identified by Teresa Binstock in 1999 has ignored the environmental component of autism causation referenced on several occasions by Simon Baron Cohen. The notion that this complex condition is entirely genetic was never evidence based.

Hopefully President Obama will not let the IACC continue its shenanigans. Hopefully he will ensure that funding is set aside out for vaccine autism research as recommended by Dr. duane Alexander, Dr Bernadine Healy and Dr Julie Gerberding amongst others AND FOR ALL OTHER appropriate environmental autism research.

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An Open Letter to the Globe and Mail: The Vaccine Autism Debate Is Far From Over, The Research Is Not Complete

The following email was sent earlier today to Andre Picard of the Globe and Mail:

I am the father of a 13 year old boy diagnosed with Autistic Disorder assessed with profound developmental delays. I have never attributed his autistic disorder to vaccines or vaccine ingredients although I currently have an open mind on the subject. I was very disappointed with your opinion piece declaring that the vaccine autism debate should end now and that the science is clear. I submitted a comment on that piece listing some of the many pieces of information and evidence that you simply ignored in articulating your opinion. That comment was not accepted for publication by your moderators.

As a "neutral" in the vaccine autism war I would like to see the proper research done to resolve the issues that are very much alive in respect of these issues. Several prominent health authorities have now declared that the epidemiological studies to which you referred and which are used to support claims that vaccines do not cause autism are not in fact specific enough to explore the possible impact of vaccines in causing autism in vulnerable population subsets. These authorities include former NIH and American Red Cross head Dr. Bernadine Healy, recent CDC director Dr. Julie Gerberding and Dr. Duane Alexander, Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), an NIH agency. As of February 24, 2009, as reported at the Huffington Post Dr. Alexander has acknowledged in connection with autism spectrum disorders and vaccines that:

"scientists must investigate susceptible subpopulations of children, including kids with mitochondrial disorders and those who have trouble metabolizing mercury."

Dr. Alexander himself stated in the interview with Autism Speaks' Chief Science Officer, Geraldine Dawson, Ph.D:

"One question (is) whether there is a subgroup in the population that, on a genetic basis, is more susceptible to some vaccine characteristic or component than most of the population, and may develop an ASD in response to something about vaccination. We know that genetic variations exist that cause adverse reactions to specific foods, medications, or anesthetic agents. It is legitimate to ask whether a similar situation may exist for vaccines,"


As you probably know a decision of the US Vaccine Court was released since your opinion was expressed decreeing an end to vaccine autism debates. In Banks v HHS the Special Master accepted the plaintiff's claim that as a result of the MMR vaccination received on 14 March 2000, his child suffered a seizure and Acute Disseminated Encephalomyelitis (“ADEM”) which led to Pervasive Developmental Delay (one of the autism spectrum disorders), a condition from which he continues to suffer. I am sure you are aware of the Poling case in which the government acknowledged that vaccine caused the child's 'autism like symptoms". Autism as you may know is defined entirely by symptoms. CBS has reported that more than 1320 vaccine cases alleging brain injury, some including autism disorders, have resulted in government settlements.

I ask that the Globe and Mail, and you personally, exercise some journalistic balance, and inform the Canadian public, that the Vaccine Autism debate is, contrary to your previous opinion, far from over. Nor does the science make clear your claim that there is no vaccine autism connection. Three senior members of the American public health authority establishment have lent there voices to those of thousands of parents and many health care professionals who want to see the necessary research done to explore these issues.

Research, not the opinion of Andre Picard or the Globe and Mail, will provide the information that will help children, whatever the results of the research.

Respectfully,


Harold L Doherty
Fredericton New Brunswick

cc Facing Autism in New Brunswick

NOTE: As subsequently pointed out by jypsy, the Banks decision itself was made public some time ago and commented on by some involved in autism discussions. The compensation awarded to the injured child was announced last week for that decision.

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