Offit Offensive Has Failed, Vaccine-Autism War Continues, Child Vaccine Refusals Increase in U.S.

Breaking News Update:


I had just posted this comment when I read the CP Breaking News update Parents with more education less likely to let their daughters get HPV shots featuring extensive commentary by Field Marshal Paul Offit the man with great vaccine credibility ... with the main stream media ... not so much ... maybe none at all ...  with parents, including apparently better educated parents.  Personally I think including Paul Offit in an article about vaccine safety is counter productive if parents are the audience that authorities are trying to convince. The article despite the education levels of the parents, blames the internet for leading these parents to question public health authorities pronouncements on vaccine safety.  As always the possibility that parental concerns might be legitimate is not referenced in the article.  The Offit Offensive ... the insanity ... continues.

 
The latest news from the Vaccine-Autism front is summarized succcinctly in the CBC headline Child vaccine refusals increase in U.S. The article reports on the study by Philip Smith and his colleagues of the U.S. Centers for Disease Control and Prevention in Atlanta which found that "between 2003 and 2008, the percentage of parents who refused or delayed vaccination doses "increased significantly from 22 per cent to 39 per cent."  Authorities will scratch their heads over this information, will wonder how they can get through to those stupid, ignorant, hysterical and ill informed parents who do not accept their dictates about what is best for their children.  They will continue to follow the same insane strategy of trying to convince parents, while insulting them,  that all vaccines, and all vaccine ingredients are always safe no matter how many times they are given and no matter what contrary information they might stumble  upon.  

What the authorities will not do, can not do, is acknowledge that they have not always been forthright in addressing public concerns and that they have ignored credible health professionals who in fact do have questions about the state of the "science" on vaccine safety particularly as it pertains to autism. 

If anyone from American or Canadian public health offices reads this blog commentary and decides that what I  say in this comment is typical "anti-vaxxer" nonsense they should know that I have two sons all of whom have received all of the recommended vaccine shots. I have never attributed my youngest son's severe autistic disorder to vaccination although I do have an open mind on the issue now.  I do not  believe the rhetoric of the failed, and insane, strategy of public health authorities and mainstream media giants who simply dismiss parents, health professionals and researchers who question whether "science" has actually determined for all time that all vaccines are always effective and safe.  The strategy has failed and yet the strategy continues to be relied on by the same authorities and media giants hoping for a different result.

On January 24 2009 in Einstein's Reply to Paul Offit I questioned the rationality of public health authorities and professionals who keep following the same failed strategy to convince parents to vaccinate their children and expecting to see different results.  I set out two quotes as an introduction to that comment:

"These outbreaks have not, apparently, been sobering. If anything, the number of parents choosing to delay or withhold or separate vaccines is increasing. So what will it take?

Paul Offit

Insanity: doing the same thing over and over again and expecting different results.

Albert Einstein"

It is now 16 months later and Paul Offit and company keep doing the same thing over and over and over again and keep expecting to see different results. The insanity has not ended and there are no signs that it will. There are no signs that  public health officials or the mainstream media will abandon the Offit strategy which has been an utter failure.  The increases in vaccine refusals are clear indicators that it is insane to keep following the Offit strategy and expecting a different result.

Insulting Jenny McCarthy and other parents fighting for their children will not work.  Let me repeat that one since it is quite simple yet difficult for Offit and company to grasp: insulting Jenny McCarthy and other parents fighting for their children will not work.

Ignoring health professionals and researchers  like Dr. Bernadine Healy  and pharmaceutical official Dr. Julie Gerberding, both of whom have previously stated that a study comparing autism rates of existing vaccinated and unvaccinated populations could and should be done will not work. Ignoring a clinical and academic neurologist and parent like Dr. Jon Poling who has called for more environmentally focused autism research, including more vaccine oriented autism research will not work. Ignoring a researcher like Dr. Irva Hertz-Picciotto who says that the studies allegedly disproving a thimerosal autism connection are flawed and that stronger sceince is needed on the issue.

Playing politics by appointing those like Ari Ne'eman who oppose curing  autism to the IACC will not work.  Allowing an Alison Singer, nominated to the IACC by Autism Speaks, to  abandon that organization's mandate by voting against an historically crucial recommendation for the comparative autism vaccine study before jumping ship to join Paul Offit at the Autism Science Foundation, will not work. 

Parents know that the "science" on vaccines and autism is not as solid as portrayed by the Offit media armies. They know that research of vaccine and other potential environmental triggers of autism has been discouraged since the 1990's.  They know that public health authorities like the IACC have pushed the flawed thimerosal autism studies while refusing to  conduct the comparative studies recommended by Gerberding and Healy and while refusing the Hertz-Picciotto and Poling recommendations for stronger scientific research on thimerosal and other vaccine autism issues.

I am a parent who vaccinates my children but still has questions about vaccines.  I acknowledge the important role that vaccines have played in public health and disease prevention in children.  But there is a resource which is even more important in protecting and promoting the health of children and that resource is parents. It is that resource which has been subjected to unrelenting attack by the Offit armies as part of a failed and insane strategy to convince parents to vaccinate their children. 

It is long past time for the Offit armies, including the new Autism Science Foundation, mainstream media like the NYT, the Chicago Tribune, the Globe and Mail and PBS and internet foot soldiers like the blogging sites listed on the Autism Science Foundation web site to leave the field.  It is time for health authorities and researchers who understand that parents are the number one resource in child health promotion to work with parents and address their concerns instead of dismissing them. 

Will my small voice be heard and have any impact? Highly, highly unlikely.  The odds are good that a year from now, two years from now, vaccine refusals will have increased again in the US and the Offit armies will still be in the field attacking the number one child health resource ... their parents ... and hoping to see a different result.

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Autism Research, Treatment and Cure

My son Conor is 13 and has a diagnosis of Autistic Disorder. He is assessed with profound developmental delays. His initial diagnosis of PDD-NOS at age 2 was changed to Autistic Disorder a short time later. In the 11 years since his diagnosis there have been significant changes in autism service delivery for children here in New Brunswick and elsewhere in Canada and the United States. But there has been almost no effort made at all to find new treatments or cures for autism disorders.

The latest mainstream media discourse on autism treatment and cure arrives courtesy of the Chicago Tribune which has published a series of articles beginning with criticism of the Autism One conference and continuing this past week with a generalized attack on alternative treatments, particularly those advanced by DAN practitioners. While the Tribune has spilled much ink attacking what it calls alternative autism treatments, and DAN practitioners, it has not printed a single period, comma or question mark asking why there has been no serious research seeking autism treatments or cures by establishment medical authorities.

In the eleven years since my son's autism diagnosis autism researchers have continued their obsession with genetic autism research. While there had been some hints of a new Autism Research Paradigm Shift that would explore the interaction of genetic and environmental research it has not matured into a prevailing mindset. Genetic research is still out funded by as much as 20 to 1 over environmental research. There is not so much as a hint of a possible new, evidence based, treatment or cure for autism on the research horizon. And there are few signs of research aimed at providing treatment or cure.

The Chicago Tribune is outraged at parents and professionals seeking and providing alternative treatments for autism. Yet it does not even dawn on the Tribune journalists to ask why this situation exists. The answer is simple. For decades health authorities and researchers have abandoned parents to their own devices to find help for their autistic children. They have failed to spend significant resources searching for possible causes, treatments or cures for autism and now parents who don't have the luxury of ignoring the realities of their child's autism disorders, who don't want to abandon the field are under attack.

The journalists who chronicle current events fail to ask why treatments are not available and they will not ask why. Environmental research whether it arises from vaccines, power plants, plastics, children's toys or pesticides could have a negative impact on economic interests. The health interests of children particularly if they are not properly explored and proven will always be trumped by major financial interests.

Whether the Chicago Tribune likes it or not though parents will not quit on their children. While the health establishment and researchers dawdle in genetic past times parents of children with autism disorders will continue to try and help their children with the resources available whether the Tribune and health establishment like those resources or not.

.

autism

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Chicago Tribune Says Autism Treatment Uneccessary, Just Let It Be

Apparently the Chicago Tribune is of the view that the only real concern facing autistic children and their families is the risks faced by treatments, and DAN doctors in particular. In two very superficial articles, yesterday's Autism treatments: Risky alternative therapies have little basis in science and an article today titled Autism treatment: Success stories more persuasive to some than hard data the Tribune continues its war against Defeat Autism Now and DAN doctors by ridiculing anecdotal evidence of successful autism treatment.

Although the Tribune has now published articles on two consecutive days on the subject of autism treatments it makes no mention of the most evidence based autism intervention ... ABA. While the Tribune is concerned about telling parents of autistic children what it feels is wrong in the world of autism treatments it doesn't consider it important enough to mention the widespread public health support for the evidence based effectiveness of ABA as an autism intervention.

And once again the Tribune makes no mention of the failure by public health authorities and researchers to seek all causes of autism or to attempt to find actual cures. Instead the Tribune simply ignores the real issues presented by autism disorders and sings "let them be, Lord them be" providing anecdotal evidence from Doctors that autistic children as they age will progress without intervention:

"But in evaluating a therapy, the challenge is determining how much, if any, of the progress can be credited to the treatment.

That is because, over time, children with autism do develop, said Dr. Max Wiznitzer, a pediatric neurologist and an autism expert at Rainbow Babies and Children's Hospital in Cleveland. They make leaps; some may plateau or regress, but they show improvement.

"Kids are at their worst in the second and third year of life," Wiznitzer said. "That is when they are not talking. That is when they are most into themselves."

But around age 3 the children often begin to talk, he said. "Over 3 to 5 years, you see an improvement in communication skills. ... By school age, they have language to get needs and requests met," Wiznitzer said.

Between 10 percent and 20 percent of children with autism who were diagnosed early may make so much progress that they are indistinguishable from their peers and may "lose" the diagnosis.

This happens regardless of whether the child is undergoing alternative therapies, said Dr. Susan Levy, director of the Regional Autism Center at the Children's Hospital of Philadelphia. But parents may credit treatments for the gains."

And there we have it. In Chicago Tribune Autism World autism disorders do not require treatment. The solution to the challenges facing autistic children and their families can be found in the lyrics of John Lennon and Paul McCartney:

And when the broken hearted people
Living in the world agree,
There will be an answer, let it be.
For though they may be parted there is
Still a chance that they will see
There will be an answer, let it be.
Let it be, let it be. Yeah

There will be an answer, let it be.

No autism treatment, no ABA, no "alternative" treatment, no autism research into environmental causes or possible cures. the Chicago Tribune has "an answer" for parents concerned about their autistic children .... let it be.

autism

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Autism Rising in Chicago: Tribune Investigation Determines Autism Increase is Real

For the most part the article Autism treatments: Risky alternative therapies have little basis in science goes over old ground in attacking alternative autism therapies. At times it appears that the article is actually going to send current autism knowledge back to 1999 when Teresa Binstock outed the medical establishment for insisting that only genetic based autism research receive scarce funding dollars and that , by implication, environmental factors played no role in causing autism.

All of a sudden, almost out of the blue, the Tribune investigative report answers in the affirmative a question many have been asking by declaring that the startling rates of increase in autism over the past decade are real:

Chelation's popularity as a treatment for autism is driven by the unproven idea that the disorder is tied to accumulation of heavy metals in the body. Mercury, once common in vaccines as part of a preservative called thimerosal, is often pegged as the culprit. Yet the federal Institute of Medicine reported in 2004 that a review of dozens of studies had failed to show a link between vaccines, thimerosal and autism. Subsequent studies also found no connection. After thimerosal was removed from childhood vaccines except for some flu shots, autism diagnoses continued to rise.

Congratulations to the Chicago Tribune for its investigation confirming that autism is indeed rising; that the increases in autism are indeed real. Since genetics can not explain these startling increases it should be clear, based on the Chicago Tribune's conclusion, that the autism increase is real, that environmental factors have to be involved in causing autism disorders. Maybe the Tribune can now do an investigative piece explaining why health authorities have discouraged environmentally based autism research over the past decade and more.

Maybe if health authorities pushed research of some of those potential environmental causes or triggers they could find cures and parents would not be left on their own trying to help their autistic children without the benefit of help from, and usually under attack by, scientific and health authorities.

Maybe.

autism

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Autism Media Breakthrough

A major autism media breakthrough has occurred with the publication of Julie Deardorff's blog on several sites including the Chicago Tribune and the BradentonHerald.com. In Autism's road to recovery full of questions, few answers Ms Deardorff comments on debate over whether autistic children should be "recovered". She presents the perspective of Alex Plank, a high functioning person with Aspergers, attending college, and otherwise functioning very well in society. But the breakthough occurs when Ms Deardorff also presents the perspective of David Royko who tells the story of his autistic son Ben, who, at age 14, is not toilet trained and will never live independently:

Plank has a point, but he also is a functioning member of society. A film and video major at George Mason University in Virginia, Plank speaks on neurodiversity at conferences. He has a girlfriend and friends. His interests include computers, writing and acting.

Autism, however, encompasses a range of individuals, from quirky, socially awkward geniuses to those such as Ben Royko, who is still not completely toilet trained at 14, has to live in a residential school setting, has very limited functional language and will never be able to live independently.

It is rare for an article, column or blog, whether published in hard copy or online, to mention and describe a severely autistic person and the grim realities some of them face.

Full marks to Ms Deardorff, the Chicago Tribune, and other sites which publish her blog for daring to consider and discuss the invisible autistics, the severely autistic, who do not get discussed by Neurodiversity bloggers at the "Autism" Hub and are not invited, and re-invited, to appear on CNN and other feel good, ratings driven, news sources.

autism

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